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Author Topic: Frustrated and Impatient and Whining about it  (Read 7889 times)
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #25 on: July 03, 2011, 11:18:08 AM »
I didn't realize you two were a brother and sister team...I LOVE that! Siblings make the world go round! Hope the hospital visits get less and less...

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
The Noob
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« Reply #26 on: July 03, 2011, 12:07:54 PM »
no, just in sense of the D family on IHD. its a term of endearment :grouphug;
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #27 on: July 03, 2011, 01:24:45 PM »
Quote from: The Noob on July 03, 2011, 12:07:54 PM
no, just in sense of the D family on IHD. its a term of endearment :grouphug;
I think RS means aharris and Epofriend - brother and sister.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Chris
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« Reply #28 on: July 03, 2011, 06:16:18 PM »
It just goes to show how idiocracy is widespread in hospital situations. It did not seem bad as a kid with just diabetes in the hospital in the day's we had oxygen tents in the 70's ??? 
 
I know I have an occurance of sheer stupidity/ ignorance with each hospital stay since I first was diagnosed with kidney failure and put on d thru transplant. Why they allow a nurse to work on the transplant floor who is sneezing and coughing and not using a mask is beyong me.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
rsudock
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Posts: 1351


will of the healthy makes up the fate of the sick.
« Reply #29 on: July 05, 2011, 01:31:44 AM »
Quote from: okarol on July 03, 2011, 01:24:45 PM
Quote from: The Noob on July 03, 2011, 12:07:54 PM
no, just in sense of the D family on IHD. its a term of endearment :grouphug;
I think RS means aharris and Epofriend - brother and sister.

Okarol you are correct!

Xo,
R
Logged
Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Chris
Member for Life
******
Offline Offline

Gender: Male
Posts: 9219


WWW
« Reply #30 on: July 05, 2011, 04:38:10 PM »
We could all put together a book called The Misunfortunate events of being a patient at your hospital.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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