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Author Topic: Hell  (Read 8510 times)
KICKSTART
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In da House.
« on: April 03, 2011, 03:50:58 AM »
Cant say much right now but things have gone from bad to worse, so bad they are fitting me with a panic button. Im skipping and cutting short my D at the moment , i  have too ! . Will come back when i can.
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
chook
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Born to be a Granma!
« Reply #1 on: April 03, 2011, 04:56:11 AM »
 Oh KS. I wish I could send you some words that would make things better. Your life seems to be such a struggle. PLEASE try to take care of yourself and your health. Feeling unwell will add to the drama but you know this. Will be watching for a post from you and keeping you in my thoughts!
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Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
looneytunes
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Wishin' I was Fishin'
« Reply #2 on: April 03, 2011, 06:44:52 AM »
KS...I'm thinking of you   :grouphug;
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"The key to being patient is having something to do in the meantime" AU
boswife
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us and fam easter 2013
« Reply #3 on: April 03, 2011, 08:47:01 AM »
Im grateful you let us know, but i wish for better for you :(
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
YLGuy
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« Reply #4 on: April 03, 2011, 09:39:59 AM »
I am so sorry. I hope things get better fast.  :grouphug;
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PatDowns
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Celebrating 60th B'Day. 12/26/15
« Reply #5 on: April 03, 2011, 10:24:07 AM »
Quote from: KICKSTART on April 03, 2011, 03:50:58 AM
Cant say much right now but things have gone from bad to worse, so bad they are fitting me with a panic button. Im skipping and cutting short my D at the moment , i  have too ! . Will come back when i can.

I agree with Calypso's suggestion from a previous thread of yours - you need to seek professional counseling.  In addition to his comment that, "It is not normal to want to hurt yourself due to the actions of others bringing you down," leaving short cryptic messages on here, believing everyone is against you (paranoia) and taking on the martyr role are all signs of crying out for help.  Please get professional help and then know you have support on IHD.
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Frank Moiger aka (previously) NoahVale and now PatDowns, the name originally chosen by a good dialysis mate who died in 12/2013.  I started in center hemodialysis as a 22 y.o. in 1978.  Cadaver transplant in 1990 and then back to in center hemodialysis in 2004 (nocturnal shift since 2011) after losing my transplant.  Former Associate  Director/Communications Director of the NKF of Georgia, President of the Atlanta Area AAKP Chapter, and consumer representative to ESRD Network 6.  Self-employed since 1993.

Dialysis prescription:
Sun-Tue-Thur - 6 hours per treatment
Dialysate flow (Qd) - 600 
Blood pump speed(Qb) - 315
Fresenius Optiflux200 NR filter - NO REUSE
Fresenius 2008 K2 dialysis machine
willowtreewren
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My two beautifull granddaughters

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« Reply #6 on: April 03, 2011, 12:39:20 PM »
Quote from: PatDowns on April 03, 2011, 10:24:07 AM
Quote from: KICKSTART on April 03, 2011, 03:50:58 AM
Cant say much right now but things have gone from bad to worse, so bad they are fitting me with a panic button. Im skipping and cutting short my D at the moment , i  have too ! . Will come back when i can.

I agree with Calypso's suggestion from a previous thread of yours - you need to seek professional counseling.  In addition to his comment that, "It is not normal to want to hurt yourself due to the actions of others bringing you down," leaving short cryptic messages on here, believing everyone is against you (paranoia) and taking on the martyr role are all signs of crying out for help.  Please get professional help and then know you have support on IHD.

Kickstart, I think you know that we care for our fellow travelers here on IHD and this is coming from someone who only knows you from your posts, BUT...

You have complained about how your mother and her sisters seem to need drama. It may be difficult for you to hear this, but recent posts and disappearing from the scene also make it appear that you have acquired some of these same traits. It is far from unusual for children to repeat personality characteristics of their parents, even if they do not like those characteristics. I wish I had a dollar (or Euro) for every time I heard my own mother speaking through my mouth!

I agree that counseling may help you deal with issues that go beyond difficulties with dialysis.

 :cuddle;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Sax-O-Trix
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« Reply #7 on: April 03, 2011, 01:54:41 PM »
 :cuddle;  I hope you are able to work through this current crisis!  There just has to be someone out there who can help you in person.  Don't leave any stones unturned!
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Preemptive transplant recipient, living donor (brother)- March 2011
Tracy
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Loved the Movie!
« Reply #8 on: April 04, 2011, 08:42:26 AM »
So glad to hear from you.  Hang in there!  :grouphug;
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9/1990 Found out I have Type 1 Diabetes
7/2008 Told I have GFR 30
2/2009 Kidney/Pancreas Transplant
5 days later, both removed due to massive rejection
Back on List
2/26/10 Fistula placed
3/11/10 Told GFR 9
5/14/10 Started in center Hemo
Waiting on another Transplant
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #9 on: April 25, 2011, 07:51:56 PM »
Thinking of you Kickstart, hope to hear from you soon.  :waving;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Ang
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« Reply #10 on: April 25, 2011, 11:32:57 PM »
take care

come back even to say gidday when you feel :bump; up to it
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live  life  to  the  full  and you won't  die  wondering
Jean
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« Reply #11 on: April 26, 2011, 12:17:33 AM »
 Anne, remember, keep your chin up. I know that may not help a whole lot, but it is sound advice   :cuddle; :cuddle;
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One day at a time, thats all I can do.
monrein
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Might as well smile
« Reply #12 on: April 26, 2011, 05:18:28 AM »
 :grouphug; 
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Stoday
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« Reply #13 on: April 26, 2011, 04:15:16 PM »
Oh dear! Kickstart hasn't posted anything for 24 days now. That's a record for Kicks.

I fear the worst.  :(
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Diagnosed stage 3 CKD May 2003
AV fistula placed June 2009
Started hemo July 2010
Heart Attacks June 2005; October 2010; July 2011
lola
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I can fly!!!
« Reply #14 on: April 26, 2011, 04:18:40 PM »
can someone call her????
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www.caringbridge.org/visit/ottomachado
Brightsky69
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« Reply #15 on: April 26, 2011, 04:39:19 PM »
Hang in there
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Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
okarol
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« Reply #16 on: April 26, 2011, 05:06:58 PM »
Quote from: lola on April 26, 2011, 04:18:40 PM
can someone call her????

She never gave her phone number for our emergency contact list.  ???
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
willowtreewren
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My two beautifull granddaughters

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« Reply #17 on: April 26, 2011, 05:42:19 PM »
 :'(
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
lmunchkin
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"There Is No Place Like Home!"
« Reply #18 on: April 26, 2011, 06:44:09 PM »
KS, I have no idea what you are going through, but I want you to know that my heart aches for you and you are in my PRAYERS!!  Please, from what I have read earlier, don't do something stupid! Seek help from counseling. Or go to a Church for assistance!

We are here if you need to vent.  Let us be the "Whipping Post" for what you are going through. Just don't do something you may regret, okay?

lmunchkin     :pray;    :pray;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #19 on: April 26, 2011, 09:08:54 PM »
Sending you love and comfort Anne!!!

xo,
Rachel
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
galvo
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« Reply #20 on: April 27, 2011, 12:34:22 AM »
Come back soon, Kicky!
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Galvo
Brightsky69
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« Reply #21 on: April 27, 2011, 07:18:15 AM »
Quote from: okarol on April 26, 2011, 05:06:58 PM
Quote from: lola on April 26, 2011, 04:18:40 PM
can someone call her????

She never gave her phone number for our emergency contact list.  ???

There is a list?? I didn't know that.
Logged
Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #22 on: April 27, 2011, 08:47:33 AM »
Emergency Contact List http://ihatedialysis.com/forum/index.php?topic=356.0
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kitkatz
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« Reply #23 on: April 28, 2011, 08:56:50 PM »
Sending love and support your way right now!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #24 on: May 01, 2011, 10:38:34 PM »
sending love your way....hope you are back soon!

xo,
R
Logged
Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
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