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Author Topic: Sending good wishes to Epofriend  (Read 14903 times)
aharris2
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Volcan Pacaya, Guatemala

« Reply #50 on: April 20, 2011, 05:24:34 PM »

Thanks yet again guys. Sluff, ya know, that's not the word they use to describe me here at the hospital. I think the word starts with a "b" and they add colorful modifiers.

Wednesday night, 4/20/2011, and nothing goes easy. Rolando's minor pleural effusion easily drained by a syringe as of his hospitalization with the hand issue has become a much larger effusion post blood thinners and post surgery that can only be drained via chest tube. It seems something is bleeding into it but we don't know what and cause/effect is not obvious.

Chest tubes are a very nasty, very painful thing and they continue to hurt a lot until they are removed. We've had a setback in the fluid drainage and we are hoping against hope that the chest tube will be sufficient to drain it.

I feel so bad for Rolando but he has been extraordinary through this whole thing.
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
okarol
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« Reply #51 on: April 20, 2011, 11:21:16 PM »

 :( I hope you get out soon Ro.
Thanks for keeping us updated Alene, I think sainthood is perfect for you!  :pray;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
phyl1215
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« Reply #52 on: April 21, 2011, 07:28:20 AM »

 :grouphug; :grouphug;
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PD 3 yrs.
TX list 4 yrs.
Deceased donor PERFECT MATCH Kidney transplant July 8, 2012


Learning To Dance In The Rain
aharris2
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Volcan Pacaya, Guatemala

« Reply #53 on: April 21, 2011, 07:12:08 PM »

 :(

Surgery in the morning to clear the pleural cavity and reexpand the lung.

 :pray; that all goes well and this fixes the problem.
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
AguynamedKim
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« Reply #54 on: April 21, 2011, 08:41:28 PM »

Sending more good wishes your and Rolando's way.
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okarol
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« Reply #55 on: April 21, 2011, 08:52:30 PM »

Oh man, I am sending a prayer and a bunch of love your way Rolando!  :-* :cuddle; :cuddle; :cuddle; :cuddle; :cuddle;  :pray;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Chris
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« Reply #56 on: April 22, 2011, 06:56:51 PM »

I hope everything goes well
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
boswife
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us and fam easter 2013

« Reply #57 on: April 22, 2011, 07:27:53 PM »

Just checking  :pray;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
okarol
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« Reply #58 on: April 22, 2011, 09:41:06 PM »

 :grouphug; :grouphug; :grouphug;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Bajanne
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« Reply #59 on: April 22, 2011, 10:39:09 PM »

My caring thoughts and prayers are with you all the way :grouphug; :grouphug;
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Sax-O-Trix
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« Reply #60 on: April 23, 2011, 05:45:39 PM »

 :grouphug;
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Preemptive transplant recipient, living donor (brother)- March 2011
aharris2
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Volcan Pacaya, Guatemala

« Reply #61 on: April 24, 2011, 05:13:36 AM »

Sorry for the wait and thank you everyone (okarol,  :-* )

Rolando came through the surgery just fine. It was the "small" surgery where they cut small holes and go in with minilights, minivideos, and minigadgets to cleanup and peel away (causes me pain just to write that!) He is hurting, the nurses say that any chest wall surgery is immensely painful so he spent 24hrs in intensive care for monitoring vitals AND for hourly administration of fentanyl.

We're in a regular room now. Thank God. That particular ICU had a strange rule - one could visit overnight, but the visitor cannot sleep. If the visitor (caregiver, family member, whatever) falls asleep they are escorted out. I was pretty tired by Saturday morning. Dialysis for Rolando meant a trip home and naptime for me.

He still has a chest tube in but he's breathing easier. We are waiting for the chest doctors. to give us the game plan for going home.

Rolando did go 5 for 5. Grandchild #2, arrived on Good Friday, 4/22/2011, at night.
  :flower; Welcome to Little Violeta

Happy Easter everyone!
« Last Edit: April 24, 2011, 05:15:02 AM by aharris2 » Logged

Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
Zach
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"Still crazy after all these years."

« Reply #62 on: April 24, 2011, 05:32:35 AM »

Now get some rest.
 :-*
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
boswife
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us and fam easter 2013

« Reply #63 on: April 24, 2011, 08:16:07 AM »

good news  :2thumbsup;  and agreed..now YOU go get some rest!!   :grouphug;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #64 on: April 24, 2011, 10:32:05 AM »

 :cheer: It's so good to hear from you! Thank God Ro is ok!
Wishing you and your family a very blessed Easter!  :basket:
Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
aharris2
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Volcan Pacaya, Guatemala

« Reply #65 on: May 01, 2011, 06:52:46 AM »

Day 25 and still no game plan for going home. Such is the nature of the chest tube. Rolando is feeling pretty good and is looking quite svelte.

One day during the week both daughters (the twins) visited with the granddaughters - 8 month old Sophia and the newly arrived, days old Violeta. Very nice and Rolando's first opportunity to meet the newbie. Sophia and mommy came by again last night.

We were able to get out of the room (in a wheelchair) for the first time yesterday. We stayed on the floor but will venture far and wide next time to stave off stircraziness... in both of us!
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
jbeany
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Cattitude

« Reply #66 on: May 01, 2011, 01:31:26 PM »

 :grouphug;
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« Reply #67 on: May 01, 2011, 01:58:27 PM »

I was hopping to hear good news, but atleast there was some in your post .
 
Wish they could get Rolando out of there and healthy.
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
okarol
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Posts: 100933


Photo is Jenna - after Disneyland - 1988

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« Reply #68 on: May 01, 2011, 03:47:33 PM »

 :waiting; That's a long time. It must be so tough for you both.
Are you able to watch any basketball?
Take care. xoxoxox  :-*
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Sluff
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« Reply #69 on: May 01, 2011, 06:21:09 PM »

Sounds like Ro is on the right path.  Hope he gets out of there soon.  :grouphug;
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aharris2
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Volcan Pacaya, Guatemala

« Reply #70 on: May 01, 2011, 07:22:54 PM »

Shortly after I posted, the doc came by. There is a game plan for going home! They will be placing something called a pleurx catheter in the effusion which will allow us to drain fluid periodically at home until it stabilizes. That should happen after dialysis tomorrow with discharge from the hospital Tuesday or Wednesday.
 :pray;
We are both desperate to get out of here.

Okarol, I have been trying to watch the b-ball but have only been marginally sucessful. They are masters of sleep deprivation torture here at the hospital so whenever there is a lull in the action Rolando and I both take a siesta. I tune in the game and, 30 seconds later, I am asleep. That's how things went for March Madness as well.

We did make it outside today, twice. It was a beautiful breezy warm sunshiny afternoon and a very nice evening. A little taste of freedom was nice.

Thanks for your kind words.
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
Darthvadar
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« Reply #71 on: May 01, 2011, 11:32:43 PM »

Thank God the door to home seems to be opening, even if just a little...

Great news...

Hope he gets home VER soon...

Love...

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #72 on: May 02, 2011, 12:40:46 AM »

 :pray; Hoping and praying you're both home soon.  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
aharris2
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Volcan Pacaya, Guatemala

« Reply #73 on: May 03, 2011, 05:56:36 AM »

Day 27 - They f***ed up yesterday and didn't order up the anesthesiologist for the procedure. So, after 3 hrs down in interventonal radiology Rolando was returned to the room - hurting, hungry (NPO since the morning, NPO = anesthesia so how come no anesthesiologist?) and desperate for a bathroom break. The inefficiency here is incredible.

Amazingly, we did get a good night's sleep here last night. They will try again early this afternoon to get the chest tube out and the pleurx cath in. Hope the ducks are nicely...

UNBELIEVABLE!!! The dialysis techs just walked in here to take him for dialysis! NO!!! He dialyzed yesterday. But, a quick phone call to the neph and that snafu is worked out.

...in a row  :bow;

OMG!
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
okarol
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Posts: 100933


Photo is Jenna - after Disneyland - 1988

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« Reply #74 on: May 03, 2011, 08:30:59 AM »

 :banghead; crazy!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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