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Author Topic: What's the best thing that's happened to you today?  (Read 57672 times)
Chris
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« Reply #250 on: July 01, 2011, 02:54:29 PM »
Mix day today of events, but since I lost my sunglasses when I was with Sugarlump, I had to try to get a replacement clip. Unfortunately my frames are to old to order parts and I had to order something new. SO I picked out some prescription sunglasses and they pretty much look like my avitar. It was not the solution I wanted especially spending that much money ($414, but cheaper than rx glasses (I have to have added stuff on those)) and they look kick :sir ken; , almost The Matrix movie style....lol
 
Other than tat, day was a cluster*&^% with getting going, vehicle service, and doctor visit.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
gothiclovemonkey
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« Reply #251 on: July 01, 2011, 03:39:57 PM »
Today was my town's Fourth of July "sparks in the park" and my son was in the parade, with th boy scouts! Its his first year!! It was great :) Fireworks tonight!
 :yahoo; :yahoo;
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"Imagine how important death must be to have a prerequisite such as life" Unknown
HemoDialysis since 2007
TX listed 8/1/11 inactive
LISTED ACTIVE! 11/14/11 !!!
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #252 on: July 01, 2011, 04:52:51 PM »
Spending time with my brother and watching movies. Right now we are watching the Battle Los Angeles with the aliens. Just so thankful I have the support of my brother. He even made me lunch and took me to the library.

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
MooseMom
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« Reply #253 on: July 01, 2011, 09:01:29 PM »
Quote from: rsudock on July 01, 2011, 04:52:51 PM
Spending time with my brother and watching movies. Right now we are watching the Battle Los Angeles with the aliens. Just so thankful I have the support of my brother. He even made me lunch and took me to the library.

xo,
R

I have to admit to being a real cinema snob, but I do love those big alien battle movies!

The best thing that happened to me today?  I love Wimbledon tennis and was appalled to see that NBC wasn't covering Nadal v Murray live, so I listened to the live match coverage on Wimbledon radio.  I just thought it was so cool to be able to listen to live radio from the other side of the world.  Technology has advanced so quickly; I still marvel at being able to fly through the clouds on an airplane.  I always imagine some young Aztec girl gazing up into the sky and wondering what it would be like to fly though the clouds.  It's amazing that I don't have to imagine it because I've actually been up there.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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« Reply #254 on: July 01, 2011, 11:56:31 PM »
Quote from: Chris on July 01, 2011, 02:54:29 PM
SO I picked out some prescription sunglasses and they pretty much look like my avitar.
Oh god please Chris, put on a morning suit and get a photo taken....? pretty please?  8)
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
Ang
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« Reply #255 on: July 02, 2011, 02:34:28 AM »
did not get out of the pj's all day
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live  life  to  the  full  and you won't  die  wondering
Sugarlump
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10 years on and off dialysis
« Reply #256 on: July 02, 2011, 09:42:48 AM »
Quote from: Ang on July 02, 2011, 02:34:28 AM
did not get out of the pj's all day

I love days like those  :2thumbsup;  :2thumbsup;  :2thumbsup;
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Chris
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« Reply #257 on: July 02, 2011, 07:48:39 PM »
Quote from: natnnnat on July 01, 2011, 11:56:31 PM
Quote from: Chris on July 01, 2011, 02:54:29 PM
SO I picked out some prescription sunglasses and they pretty much look like my avitar.
Oh god please Chris, put on a morning suit and get a photo taken....? pretty please?  8)
I do have a tux like suit, but has a black vest and not grey like the avitar.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Chris
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« Reply #258 on: July 02, 2011, 07:53:32 PM »
The best thing that happened today was on the way to taking my vehicle to the dealer for service on Tuesday. I beat my dad there! :yahoo; :bandance;  We took two different routes and I turned off the main street way before the route he took whatever which one he took. The next thing I know after turning on the next major street after a couple lights, he was right behind me. Then at some points I slowed down enough so he would get the yellow light  :rofl;  Today was a good day for Ricky Bobby!
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Sugarlump
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10 years on and off dialysis
« Reply #259 on: July 03, 2011, 01:28:41 AM »
I have been invited over to Sunday lunch by friends....Ah yes
 :beer1;  :beer1;  :beer1;
Can't believe that last Sunday I was in Dennys Diner in Chicago with
CHRIS MOOSEMOM & MIKE seems like forever now I am home back in sunny Suffolk....
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
RichardMEL
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« Reply #260 on: July 03, 2011, 04:01:29 AM »
Today was a pj day for me as well - well for a good part of it anyway. I did want to go do my usual walk... but it was grey and a bit rainy outside, and my kitty was snuggled up all warm with me on the bed an I just thought "oh hell it's Sunday. I can take a day of" (but I will probably regret it!). On top of that for the first time in a LONG time I put just two bets on 2 races and picked the winner in each one so turned $10 or so into $30 or so. Not muchm, but better than doing my dough. My sister came over in the afternoon and we watched her team play footy - and they won by 9 points which was good for her (unlike my woeful tigers who lost by 103 points yesterday in a performance that was well... I have no words). Anyway..... yeah a pretty quiet day but a good one.
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Chris
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« Reply #261 on: July 03, 2011, 01:57:55 PM »
Odd events going on here. Dad woke me up today (1 pm) to ask what I thought about getting a lab or retriever pup and then train it for my needs. I told him we can't just train a dog to do that, it's specialized training procedure. He then asked would you still want a dog and I said yes. So we are going up state tomorrow to look at some lab pups and golden retriever pups at a breeders home 2 hours away on the 4th. I also still will be going for a guide dog so we'll have 2 if I'm accepted.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #262 on: July 03, 2011, 04:21:07 PM »
Quote from: Chris on July 03, 2011, 01:57:55 PM
Odd events going on here. Dad woke me up today (1 pm) to ask what I thought about getting a lab or retriever pup and then train it for my needs. I told him we can't just train a dog to do that, it's specialized training procedure. He then asked would you still want a dog and I said yes. So we are going up state tomorrow to look at some lab pups and golden retriever pups at a breeders home 2 hours away on the 4th. I also still will be going for a guide dog so we'll have 2 if I'm accepted.

Nice!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Des
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« Reply #263 on: July 06, 2011, 02:58:18 AM »
I made ANOTHER very good friend.

Recently a new member from South Africa joined with PKD.

We are starting a very good friendship. We chat like we have known each other for years and years.  :flower;

Thanks to IHD!!!!!!!!!! :bandance;
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
billybags
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« Reply #264 on: July 06, 2011, 05:56:15 AM »
We went out for lunch, first time for months and hubby walked from the car park and back with out a stick. That was a fete in its self. We had a lovely lunch.
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jbeany
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« Reply #265 on: July 06, 2011, 07:54:28 AM »
An uninterrupted night's sleep in my own bed - ahhhhhhh.  So good to be home and my surgery went well - no complications at all.  I have a waist line again!!!   (The pain management team were idiots, but that's a rant for another time and place!)
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
cariad
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« Reply #266 on: July 06, 2011, 08:05:46 AM »
Wow, such great news from around the world!

Jbeany, that's fantastic! What an ordeal it's been for you.

Billybags, I can relate to what an achievement that is on your husband's part. Glad you got out and got to relax and enjoy!

Des, I am just over the moon for you! You so need and deserve an ally and understanding soul to turn to as you navigate a bewildering-sounding system that few on here can help you through.
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
Sugarlump
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10 years on and off dialysis
« Reply #267 on: July 06, 2011, 10:16:56 AM »
TODAY I HIRED A PERSONAL TRAINER AND had my first session!!!!
This is for SIDNEY the KIDNEY

I did think at one point I might just die quietly but the trainer (ex-military i dont half pick em!!!) is very nice and friendly as well as a harsh
taskmaster!!!! but I enjoyed it.
By the time Vegas comes around i hope to have lost a stone and a half and have a very toned bod!!!! OR died trying xxx

 :cheer:   :cheer:   :cheer:
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
jbeany
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« Reply #268 on: July 06, 2011, 02:38:39 PM »
Nice Sugarlump!

And I was feeling good that I managed to take a shower!   ;D
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
cariad
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« Reply #269 on: July 06, 2011, 04:02:43 PM »
Way to set the bar for the Vegas trip way too high for me, Sugar!!! (Joke! I am suitably impressed and cursing my laziness right now.)
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
gothiclovemonkey
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« Reply #270 on: July 06, 2011, 04:18:09 PM »
I got told I will be on the list in  Peoria Illinois!! :)  :yahoo; :2thumbsup; :clap; :cheer:
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"Imagine how important death must be to have a prerequisite such as life" Unknown
HemoDialysis since 2007
TX listed 8/1/11 inactive
LISTED ACTIVE! 11/14/11 !!!
jbeany
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« Reply #271 on: July 06, 2011, 07:50:07 PM »
Quote from: gothiclovemonkey on July 06, 2011, 04:18:09 PM
I got told I will be on the list in  Peoria Illinois!! :)  :yahoo; :2thumbsup; :clap; :cheer:


Hurray!!!!    :bandance; :bandance; :bandance; :bandance; :bandance; :bandance; :bandance;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
cariad
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What's past is prologue
« Reply #272 on: July 15, 2011, 06:53:57 AM »
Oooo, I have a great one from yesterday!

I went down to Bastille Days just because I felt I could use the exercise and I did not feel right knowing that they were doling out cake and I was not there to grab a piece for the kids. I made it down there, got a tiny piece of cake, and wandered over to get a proper schedule. The local radio station has a booth with the schedules, so I go over there, I am about to ask the woman there a question, but there is another man there before me. She says to him would you be interested in the wine tasting? We are giving away free tickets to the first 6 visitors. You would be number 5.

I plant myself there. This wine tasting costs $25/person, way too high for us, but I would be willing to buy a ticket if I received one for free. Well! She then asks him if he wants Friday or Saturday and hands him FOUR tickets. They keep talking. I am trying to look interested in all of their promotional materials, but it is probably obvious I am just waiting around to be asked about the tasting. He finally leaves. I am ready to engage in inane chatter for as long as it takes for her to offer me the tickets, but thankfully she does so fairly quickly. On the way home, carrying my piece of cake, I phone Gwyn and tell him to call our Fest Friend and see if she can grab her on again/off again fella and go with us. (Our Fest Friend is the one who always rings us up to see if we'll go with her to the various festivals around town.) We have to secure a babysitter, and if our Fest Friend cannot join us, we have a few other couples to ask before we just unload the extra tickets scalper-style. Woo-hoo!
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
cattlekid
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« Reply #273 on: July 15, 2011, 07:53:52 AM »
Well, it hasn't happened yet, but today will be a great day because my mom and dad are stopping in for a visit on their way to South Dakota for our family reunion.  I haven't seen them since last summer which was long before I started into all this dialysis stuff.  They will be here overnight and then next week I'll be flying to South Dakota for the reunion itself. 

I'm really excited for the reunion.  It's for my dad's side of the family, which doesn't get together often.  The last time we were all together was in 2008 for my sister's wedding.  We are also staying in Custer State Park in the Black Hills, which should be beautiful as long as there are no random forest fires.  Can't wait to see Mt. Rushmore again as well as Crazy Horse.  I haven't been to SD since about 1983, so I'm sure there has been a lot of progress on Crazy Horse since then.
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gothiclovemonkey
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« Reply #274 on: July 15, 2011, 10:02:33 AM »
I got asked out by a very amazing man :) i think i might accept....
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"Imagine how important death must be to have a prerequisite such as life" Unknown
HemoDialysis since 2007
TX listed 8/1/11 inactive
LISTED ACTIVE! 11/14/11 !!!
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