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Chris
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« Reply #175 on: June 16, 2011, 10:02:55 PM » |
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I did something, but forgot. Must not have been good enough.
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Diabetes - age 7
Neuropathy in legs age 10
Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
-glaucoma and surgery for that
-cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
- vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection
Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000
Kidney and Pancreas Transplant - December 3, 2000
Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures - Priceless
No two day's are the same, are they?
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Sugarlump
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« Reply #176 on: June 17, 2011, 11:49:35 AM » |
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Thanks POPPY!!! Will take pics Sugarlump hits America I am so excited can't sleep now even if forecast wet next week I have a tankini to wear!!!!  |
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10 years of half a life 3 years HD 1st transplant Feb 08 failed after 3 months Back to HD 2nd transplant Dec 10 failed after 11 months Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital) Back on HD (not easy to do that third time around) Fighting hard (two years on) to do home HD ... watch this space! Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!! The power of optimism over common sense  |
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Sugarlump
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« Reply #177 on: June 17, 2011, 11:53:17 AM » |
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I finally AFTER THREE WEEKS OF TRYING AND SWEARING managed to get my new iphone to take my itunes from my shuffle YYYYYYAAAAYYYY! All by my lil self! Iwas so happy I danced round the room  |
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10 years of half a life 3 years HD 1st transplant Feb 08 failed after 3 months Back to HD 2nd transplant Dec 10 failed after 11 months Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital) Back on HD (not easy to do that third time around) Fighting hard (two years on) to do home HD ... watch this space! Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!! The power of optimism over common sense |
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jbeany
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« Reply #178 on: June 17, 2011, 12:13:35 PM » |
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« Last Edit: June 18, 2011, 06:17:11 PM by jbeany »
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"Asbestos Gelos" (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter". A term used by Homer for invincible laughter in the face of death and mortality.  |
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Sugarlump
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« Reply #179 on: June 19, 2011, 06:09:02 AM » |
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I'M SO EXCITED!!!!! by the POINTER SISTERS!!!! very appropriate!!!!! I love it when I can finally make something work bei it gadget, technonoly, or man!!!!!  |
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10 years of half a life 3 years HD 1st transplant Feb 08 failed after 3 months Back to HD 2nd transplant Dec 10 failed after 11 months Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital) Back on HD (not easy to do that third time around) Fighting hard (two years on) to do home HD ... watch this space! Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!! The power of optimism over common sense |
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tyefly
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« Reply #180 on: June 19, 2011, 07:50:00 AM » |
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I have been learning to propagate plants and this morning I went to check some plants that I had started a few weeks ago.... I have root.....lots of root...
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IgA Nephropathy April 2009
CKD May 2009
AV Fistula June 2009
In-Center Dialysis Sept 2009
Nxstage Feb 2010
Extended Nxstage March 2011
Transplant Sept 2, 2011
Hello from the Oregon Coast.....
I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir
The clearest way into the Universe is through a forest wilderness.
- John Muir
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kristina
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« Reply #181 on: June 19, 2011, 08:54:53 AM » |
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Great news, tyefly! Good luck!
I remember using root-powder on all sorts of cuttings
and sometimes they developed roots and sometimes they did not.
I had a very good experience today as well.
I have been trying to read scores of piano-music
which I had not come across before,
& play the piano with both hands at the same time
and it is finally working.
I am very pleased about this because I have no teacher
and I thought sometimes it might be too difficult.
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
He was completion and fulfillment in itself, like a meteor which follows its own path.
- Robert Schumann -
... Oportet Vivere ...
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BillSharp
Jr. Member
 Offline
Gender: 
Posts: 62
rock 'n roll will never die
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« Reply #182 on: June 19, 2011, 10:29:12 AM » |
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Yesterday my wife and I hung an extending 10-power mirror on her bathroom wall. Tricky job because we live in a building with steel studs and a stud-finder doesn't work. That means lots of poking around.
After we finished with the mirror, we hung a new towel rack. Oops! The new brackets are 1/4 inch too far apart. Sigh. So we removed one bracket plus the mollys from the old rack, spackled all the holes, and called it a day. Then, dinner and a segment of "In Treatment". All this was more than I could do a few months ago, so I'm very happy.
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Started passing stones at age 14 (Cystinuria)
Transplant in 1989 at age 50
Transplant failed in 2009 at age 70
Hemo and transplant list
Cadaver Transplant 7/1/2011 at age 72 (zero mismatch)
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RichardMEL
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« Reply #183 on: June 19, 2011, 08:10:02 PM » |
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3/1993: Diagnosed with Kidney Failure (FSGS) 25/7/2006: Started hemo 3x/week 5 hour sessions  27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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Poppylicious
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« Reply #184 on: June 20, 2011, 03:49:46 AM » |
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Sugarlump
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« Reply #185 on: June 20, 2011, 05:52:42 AM » |
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Add matching sarong to that tankini and some very sexy dresses.... can just about close my suitcase. Chris tells me currently thunderstorms in Chicago  THEY KNOW I'M COMING!!!!!!! |
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10 years of half a life 3 years HD 1st transplant Feb 08 failed after 3 months Back to HD 2nd transplant Dec 10 failed after 11 months Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital) Back on HD (not easy to do that third time around) Fighting hard (two years on) to do home HD ... watch this space! Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!! The power of optimism over common sense |
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willowtreewren
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« Reply #186 on: June 20, 2011, 06:11:02 AM » |
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I hope you enjoy every minute of your trip, Sugar!  |
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Wife to Carl, who has PKD. Mother to Meagan, who has PKD. Partner for NxStage HD August 2008 - February 2011. Carl transplanted with cadaveric kidney, February 3, 2011. |
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RichardMEL
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« Reply #187 on: June 20, 2011, 09:49:37 PM » |
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3/1993: Diagnosed with Kidney Failure (FSGS) 25/7/2006: Started hemo 3x/week 5 hour sessions 27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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Sugarlump
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« Reply #188 on: June 21, 2011, 03:36:49 PM » |
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well rich i am sitting here in my chicago hotel room after a good flight very smooth sipping champagne and eating chris's godiva chocolates... this is the life ...on 31st floor in a corner suite looking over Mitchigan Avenue... this is the life....and eating ice cream flavoured oreos... sugar is in heaven........... |
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10 years of half a life 3 years HD 1st transplant Feb 08 failed after 3 months Back to HD 2nd transplant Dec 10 failed after 11 months Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital) Back on HD (not easy to do that third time around) Fighting hard (two years on) to do home HD ... watch this space! Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!! The power of optimism over common sense |
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RichardMEL
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« Reply #189 on: June 21, 2011, 08:44:21 PM » |
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Great news SL since I just received an email from a Airport Operations guy saying Chicago was now a mess due to a bad storm that came through. Glad you avoided it and are having an awesome time there with Chris!!
Celebrate away and enjoy yourself!! That's what life is all about!
PS: I expect a lousy tshirt....
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3/1993: Diagnosed with Kidney Failure (FSGS) 25/7/2006: Started hemo 3x/week 5 hour sessions 27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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Sugarlump
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« Reply #190 on: June 22, 2011, 08:31:45 AM » |
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No storms here Rich weather quite good (hot and humid thank god for air conditioning!!!) You need to sack the information guy!!!
Eating breakfast in bed it maybe 10.21 am here but 16.22am in England and my brain everso slightly confused...
Might manage the t shirt !!!! off to the Hancock Building shortly...
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10 years of half a life 3 years HD 1st transplant Feb 08 failed after 3 months Back to HD 2nd transplant Dec 10 failed after 11 months Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital) Back on HD (not easy to do that third time around) Fighting hard (two years on) to do home HD ... watch this space! Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!! The power of optimism over common sense |
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Sugarlump
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« Reply #191 on: June 22, 2011, 08:37:28 AM » |
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10 years of half a life 3 years HD 1st transplant Feb 08 failed after 3 months Back to HD 2nd transplant Dec 10 failed after 11 months Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital) Back on HD (not easy to do that third time around) Fighting hard (two years on) to do home HD ... watch this space! Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!! The power of optimism over common sense |
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Poppylicious
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« Reply #192 on: June 22, 2011, 02:20:01 PM » |
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Hey Poppy went and looked at the pool last night it was blowing a gale on the rooftop cant imagine swimming on the 40th floor in a thunderstorm but i am game for most things!!! Will send you a pic!!! when my tankini finally makes it in the water xxx
I love Chicago with all its phallic skyscapers and everything busy busy busy and larger than life ... may stay here forever eating
pancakes n bacon n maple syrup forever (delivered by trolley to my bedside how cool is that!!!! how can suffolk ever compete!)
Ha! If you stay there forever eating all that food you'll never get into your tankini, let alone the pool! You'll need the serenity of slow-paced Suffolk to help you unwind when you get home! (Bring me some ice-cream flavour Oreo's!) |
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Sugarlump
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« Reply #193 on: June 22, 2011, 02:54:43 PM » |
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10 years of half a life 3 years HD 1st transplant Feb 08 failed after 3 months Back to HD 2nd transplant Dec 10 failed after 11 months Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital) Back on HD (not easy to do that third time around) Fighting hard (two years on) to do home HD ... watch this space! Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!! The power of optimism over common sense |
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paris
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« Reply #194 on: June 22, 2011, 06:02:10 PM » |
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Any food consumed on vacation has no fat or calories. Someone told me that, so I know it is true!! Glad everything is going so well. Isn't Chris a sweet guy? It is great that you two got to meet. Keep us updated on your adventures. Have fun!! |
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It's not what you gather, but what you scatter that tells what kind of life you have lived. |
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Bajanne
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« Reply #195 on: June 22, 2011, 06:10:14 PM » |
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Lovely to hear your visit is going well. ENJOY!!!
I have been looking for the smiley we used to have saying 'It aint nothing without picts'!!
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith" I LOVE my IHD family!  |
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Sugarlump
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« Reply #196 on: June 22, 2011, 06:57:31 PM » |
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CHRIS and SUGARLUMP get to enjoy real Chicago Town pizza at the hottest pizza joint in town!!!! Thank you Sidney the Kidney for making this possible after 7 years of difficulties...God I love America |
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« Last Edit: June 22, 2011, 06:59:50 PM by Sugarlump »
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10 years of half a life 3 years HD 1st transplant Feb 08 failed after 3 months Back to HD 2nd transplant Dec 10 failed after 11 months Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital) Back on HD (not easy to do that third time around) Fighting hard (two years on) to do home HD ... watch this space! Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!! The power of optimism over common sense |
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Sugarlump
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« Reply #197 on: June 22, 2011, 07:30:32 PM » |
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Great news SL since I just received an email from a Airport Operations guy saying Chicago was now a mess due to a bad storm that came through. Glad you avoided it and are having an awesome time there with Chris!!
Celebrate away and enjoy yourself!! That's what life is all about!
PS: I expect a lousy tshirt....
RICH here's your lousy t-shirt now everso slightly used by me!!!! See you in Vegas to collect it???  |
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10 years of half a life 3 years HD 1st transplant Feb 08 failed after 3 months Back to HD 2nd transplant Dec 10 failed after 11 months Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital) Back on HD (not easy to do that third time around) Fighting hard (two years on) to do home HD ... watch this space! Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!! The power of optimism over common sense |
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Chris
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« Reply #198 on: June 26, 2011, 06:23:03 PM » |
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I got a t-shirt from Sugarlump after getting to the hotel. Not sure if she took a picture or not of it. Met MooseMom and her husband today and the weather was nice.
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« Last Edit: June 26, 2011, 06:58:20 PM by Chris »
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Diabetes - age 7
Neuropathy in legs age 10
Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
-glaucoma and surgery for that
-cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
- vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection
Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000
Kidney and Pancreas Transplant - December 3, 2000
Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures - Priceless
No two day's are the same, are they?
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willowtreewren
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« Reply #199 on: June 26, 2011, 06:51:25 PM » |
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I get a warm fuzzy feeling from all these folks meeting up! We had our Solstice party last night and 35 folks showed up. It was good fun! Today I have simply taken the day off. That is a first in a long, long time. I did absolutely nothing productive and it felt GREAT!  Aleta
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Wife to Carl, who has PKD. Mother to Meagan, who has PKD. Partner for NxStage HD August 2008 - February 2011. Carl transplanted with cadaveric kidney, February 3, 2011. |
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I Hate Dialysis Message Board
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