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Mymothersdaughter
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« on: March 26, 2011, 01:28:52 PM »
Hi I'm Tricia. My mom has had kidney disease since I was a young child. 3 transplants and 30 years later my mom is now 65 and has been back on D for the past 8 years. The past 4 years have been very challenging. When my mom first had to go back on dialysis, after having her 3rd transplant give her 10 years of fairly normal life, she was on PD at home. My husband and I and our two kids moved 5 hours away, 5 years ago, and my parents were able to come visit regularly. But 3 years ago, my mom got an infection and spent 5 weeks in hospital fighting for her life. She has been on Hemo ever since and her quality of life has decreased. So I've joined as I could really use some support and some insight into how to support my mom better.
« Last Edit: March 26, 2011, 01:52:41 PM by Mymothersdaughter » Logged
willowtreewren
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My two beautifull granddaughters

WWW
« Reply #1 on: March 26, 2011, 01:57:05 PM »
Dear Daughter,
You have certainly come to the right place. Kidney disease has created a huge family of support here.

 :welcomesign;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
MooseMom
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« Reply #2 on: March 26, 2011, 02:13:35 PM »
Hi Tricia!  Oh man, your mother has been through so much.  Does she have internet access?  If she does, do you think she might be interested in joining us?  Could we help her in any way?

It's hard to be supportive in a practical way when you live so far away.  I lived a long way from my mom when she was on dialysis, so I know what you must be feeling.  Is she a candidate for another transplant?
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
peleroja
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I have 16 hats, all the same style!
« Reply #3 on: March 28, 2011, 08:09:58 AM »
Welcome to the group, Tricia.  I think it's cool when family members join so they can understand dialysis better.  Lots of good information here.  Glad you found us!
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looneytunes
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Wishin' I was Fishin'
« Reply #4 on: March 28, 2011, 04:02:53 PM »
Hi Tricia and welcome to IHD.   :welcomesign;   
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"The key to being patient is having something to do in the meantime" AU
monrein
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Might as well smile
« Reply #5 on: March 28, 2011, 04:29:47 PM »
 :welcomesign; to IHD.  Wow, both you and your Mom have been through so much.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
galvo
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« Reply #6 on: March 28, 2011, 09:09:25 PM »
G'day, Tricia, and  :welcomesign; :ausflag;
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Galvo
Rerun
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Going through life tied to a chair!
« Reply #7 on: March 29, 2011, 07:23:11 AM »
Hi Tricia, and welcome to IHD.  I'm so glad you found us.  I wish you lived closer to your Mom and so does she.  Visit her often.  Us too as you can use the support.

Rerun, Moderator    :welcomesign;
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tyefly
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This will be me...... Next spring.... I earned it.
« Reply #8 on: March 29, 2011, 07:23:52 AM »
Welcome.......... glad to see you hear......   
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
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