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carol1987
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« Reply #25 on: March 29, 2011, 06:59:29 AM » |
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That is awful...  Hope Everything else is going great for them!! |
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Diagnosed with PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
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okarol
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« Reply #26 on: March 29, 2011, 11:55:53 AM » |
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Yes - he's doing well - the story continues [merged topics]  okarol/admin |
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« Last Edit: April 10, 2011, 10:37:52 AM by okarol »
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cariad
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« Reply #27 on: March 29, 2011, 03:10:53 PM » |
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I pray that Larry G's "journey" takes him on a great big U-turn back to good health and a great life! This is such wonderful news!!!
He's found his way out of dialysis trudgery and is now on the newly-transplanted med roller coaster, hopefully soon to be charting the calm waters of renal stability. Way to go, Larry! Congrats!   And drink up! |
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria
People have hope in me. - John Bul Dau, Sudanese Lost Boy
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AguynamedKim
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« Reply #28 on: March 29, 2011, 05:14:15 PM » |
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Go go Larry!  |
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tyefly
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« Reply #29 on: March 29, 2011, 05:20:28 PM » |
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Hope your doing well.... you will be up and fishing soon..... I am sending those flies I promised....
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IgA Nephropathy April 2009
CKD May 2009
AV Fistula June 2009
In-Center Dialysis Sept 2009
Nxstage Feb 2010
Extended Nxstage March 2011
Transplant Sept 2, 2011
Hello from the Oregon Coast.....
I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir
The clearest way into the Universe is through a forest wilderness.
- John Muir
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boswife
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« Reply #30 on: March 29, 2011, 08:10:11 PM » |
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
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RichardMEL
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« Reply #31 on: March 30, 2011, 02:14:49 AM » |
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 3/1993: Diagnosed with Kidney Failure (FSGS) 25/7/2006: Started hemo 3x/week 5 hour sessions  27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!!  BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE! |
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boswife
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« Reply #32 on: March 30, 2011, 06:33:48 AM » |
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(running/well reading over this this morning and Richard................... you made me  ) |
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
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LarryG
Full Member
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Gender: 
Posts: 149
Grateful to my donor, I feel great!.
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« Reply #33 on: March 30, 2011, 05:58:48 PM » |
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Hi all. I am a transplanted guy. Everthing went well and I am adjusting. The kidney from my beautiful donor is working really well. It is producing so much urine and the creatine levels has dropped to 1.5 the last check. the doctors are very pleased I had a rough night yesterday but feel really good today. Had some fluid retention. I am eating well. Have not walked much but will try and get through the halls today. I feel so good and it is so good not to have that washed out dialysis feeling. Anyway I will post more later.
Larry
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LWG
Diagnosed ESRD Jan 2008
Wegener's granulomatosis
Uncontrollable Hypertension
AV Fistula inserted Jan 2 2009
Transplant waiting list University Illinois Chicago Division of Transplant.
Angioplasty and Coil placement to limit Blood Flow from Fistula Jan. 18 2011
Transplant by living donor March 28 2011
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boswife
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« Reply #34 on: March 30, 2011, 06:31:56 PM » |
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
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carol1987
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« Reply #35 on: March 30, 2011, 07:15:46 PM » |
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Diagnosed with PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
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galvo
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« Reply #36 on: March 30, 2011, 07:27:39 PM » |
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Good news, Larry!
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Galvo
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tyefly
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« Reply #37 on: March 30, 2011, 07:31:25 PM » |
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Very Good New LarryG.... keep up the good work...
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IgA Nephropathy April 2009
CKD May 2009
AV Fistula June 2009
In-Center Dialysis Sept 2009
Nxstage Feb 2010
Extended Nxstage March 2011
Transplant Sept 2, 2011
Hello from the Oregon Coast.....
I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir
The clearest way into the Universe is through a forest wilderness.
- John Muir
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Des
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« Reply #38 on: March 30, 2011, 10:51:57 PM » |
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Hi all. I am a transplanted guy. Everthing went well and I am adjusting. The kidney from my beautiful donor is working really well. It is producing so much urine and the creatine levels has dropped to 1.5 the last check. the doctors are very pleased I had a rough night yesterday but feel really good today. Had some fluid retention. I am eating well. Have not walked much but will try and get through the halls today. I feel so good and it is so good not to have that washed out dialysis feeling. Anyway I will post more later.
Larry
Quoted from other thread. (Last Day)  glad to hear you are doing great.!!!! |
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...
South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
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Des
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« Reply #39 on: March 31, 2011, 12:03:34 AM » |
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Quote from Facebook :
"Thanks all for your kind words and support. You don'y know what it means to me to hear from all of you.I am doing so much better today. I just need to get up and start walking around. Nathalie my donor went home today.She is doing really well"
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...
South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
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LarryG
Full Member
Offline
Gender:
Posts: 149
Grateful to my donor, I feel great!.
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« Reply #40 on: April 03, 2011, 06:23:29 PM » |
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I am home and it is good to be here. So I have gone from one extreme to the other as far as fluid restrictions and I have to urinate almost every ten minutes. I am so grateful for the sacrifice and the gift of my donor. Who would had thought placing an ad on Craigslist and in less than three months I would be transplanted. Positive thinking and determination and a loving altruistic donor and miracles do happen.
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LWG
Diagnosed ESRD Jan 2008
Wegener's granulomatosis
Uncontrollable Hypertension
AV Fistula inserted Jan 2 2009
Transplant waiting list University Illinois Chicago Division of Transplant.
Angioplasty and Coil placement to limit Blood Flow from Fistula Jan. 18 2011
Transplant by living donor March 28 2011
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willowtreewren
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« Reply #41 on: April 03, 2011, 06:30:09 PM » |
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I'm so glad for you, Larry!  That overly frequent urination might be caused by slight irritation form the stent. Things should settle down when it is removed. You have THAT to look forward to! Aleta |
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Wife to Carl, who has PKD. Mother to Meagan, who has PKD. Partner for NxStage HD August 2008 - February 2011. Carl transplanted with cadaveric kidney, February 3, 2011. |
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LarryG
Full Member
Offline
Gender:
Posts: 149
Grateful to my donor, I feel great!.
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« Reply #42 on: April 03, 2011, 09:11:20 PM » |
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Yes I know....hopefully I can convince them to put me out for that one.  |
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LWG
Diagnosed ESRD Jan 2008
Wegener's granulomatosis
Uncontrollable Hypertension
AV Fistula inserted Jan 2 2009
Transplant waiting list University Illinois Chicago Division of Transplant.
Angioplasty and Coil placement to limit Blood Flow from Fistula Jan. 18 2011
Transplant by living donor March 28 2011
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tyefly
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« Reply #43 on: April 03, 2011, 09:36:53 PM » |
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Great news that you are doing so well.... better to Pee than NOT......LOL
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IgA Nephropathy April 2009
CKD May 2009
AV Fistula June 2009
In-Center Dialysis Sept 2009
Nxstage Feb 2010
Extended Nxstage March 2011
Transplant Sept 2, 2011
Hello from the Oregon Coast.....
I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir
The clearest way into the Universe is through a forest wilderness.
- John Muir
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LarryG
Full Member
Offline
Gender:
Posts: 149
Grateful to my donor, I feel great!.
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« Reply #44 on: April 04, 2011, 10:53:08 PM » |
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Had my followup today after one week of my kidney transplant and everything is great. Doctor says I don't look like someone who was transplanted a week ago. Creatine is 1.3 and all vitals are good except magnesium is down a little so more magnesium foods rather than pills.
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LWG
Diagnosed ESRD Jan 2008
Wegener's granulomatosis
Uncontrollable Hypertension
AV Fistula inserted Jan 2 2009
Transplant waiting list University Illinois Chicago Division of Transplant.
Angioplasty and Coil placement to limit Blood Flow from Fistula Jan. 18 2011
Transplant by living donor March 28 2011
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galvo
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« Reply #45 on: April 05, 2011, 02:50:16 AM » |
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Going well, Larry.
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Galvo
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natnnnat
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« Reply #46 on: April 10, 2011, 05:35:26 AM » |
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Natalya – Sydney, Australia wife of Gregory, who is the kidney patient: 1986: kidney failure at 19 years old, cause unknown PD for a year, in-centre haemo for 4 years Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy 5 weeks Haemo 2012 Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140. Infections in June / July, hospital 1-4 Aug for infections. Over the years: skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries Generally glossy and happy. 2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards Submitted February 2013 :: Graduated Sep 2013. http://godbold.name/experiencingdialysis/Heartfelt thanks to IHD, KK and ADB for your generosity and support. |
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LarryG
Full Member
Offline
Gender:
Posts: 149
Grateful to my donor, I feel great!.
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« Reply #47 on: April 10, 2011, 08:31:50 AM » |
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Natnnnat, It is two weeks in and I feel great. The incision is still a little sore and the swelling is down. No side effects from the meds so far and a lot of my skin issues I had before has disappeared. The best thing two weeks of dialysis free living. I am recouping nicely as well as my donor and another problem is the time I have on my hands feeling good. Not use to waking up refreshed without that dialysis washed out feeling.
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LWG
Diagnosed ESRD Jan 2008
Wegener's granulomatosis
Uncontrollable Hypertension
AV Fistula inserted Jan 2 2009
Transplant waiting list University Illinois Chicago Division of Transplant.
Angioplasty and Coil placement to limit Blood Flow from Fistula Jan. 18 2011
Transplant by living donor March 28 2011
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LarryG
Full Member
Offline
Gender:
Posts: 149
Grateful to my donor, I feel great!.
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« Reply #49 on: May 19, 2011, 04:10:42 PM » |
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After transplant followup today.Hard to believe it has been about 7 weeks. All looks good and now come back in three weeks for follow ups. Still need more Magnesium and Phosphorus and Potassium down but feeling pretty good.
Nice hard to state that it is so good being out of dialysis.
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LWG
Diagnosed ESRD Jan 2008
Wegener's granulomatosis
Uncontrollable Hypertension
AV Fistula inserted Jan 2 2009
Transplant waiting list University Illinois Chicago Division of Transplant.
Angioplasty and Coil placement to limit Blood Flow from Fistula Jan. 18 2011
Transplant by living donor March 28 2011
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I Hate Dialysis Message Board
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