Sick of it

[Atooraya]

I don't just hate dialysis. I'm sick of it.
How do you handle it day in and day out? It's tough.

[YLGuy]

Very good question.

[okarol]

Fred, are you thinking about getting a transplant?
I cannot recall if you had considered it.
Not that it's a magic cure, but it's a different way to go.
 

[Henry P Snicklesnorter]

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[billybags]

You are so right, it is tough, every day is different. One day you are fine the next you feel like sh*t. It is not just the dialysis, its every thing else that goes with it. but what is the answer, you have to keep going no matter what.

[lola]

Otto has a picture of our kids and EVERY session they show it to him, as he never wants to put the needles in.

[willowtreewren]

Otto is a wise man!

[onestronglittlelady]

My loving husband of 17 years is on Dialysis with me, and we go in on the same days. That makes it harder and easier all at the same time. What I do is focus on are the blessings in my life. Do I have down days, yes we all do. The key is not staying in that place. I hope you find comfort in knowing you are not alone in your struggle, and this site has many people who care about you. Hope you find your sunshine soon!

[Atooraya]

I think the key for me to remember is that I still have tomeet my obligations towards my family. It it wasn't for them it would be really difficult to go on.

[MooseMom]

I think the key for me to remember is that I still have tomeet my obligations towards my family. It it wasn't for them it would be really difficult to go on.

That's the best reason.

[galvo]

It's bloody tough!

[Atooraya]

Okarol, im on a transplant list in L.A. 6_7 year wait. Grrrrrrr

[tyefly]

 I hate the waiting list.... southern cal  waiting list is very long..... 

Have you thought about Home hemo.....??

[Atooraya]

My perceptions is home hemp is less friendly vs pr.

[MooseMom]

I thought home hemp was popular in CA.....

[Atooraya]

Are there any advantages to home Hemo vs PD?

[okarol]

I thought home hemp was popular in CA.....

Hemp is very popular in California 

[okarol]

Okarol, im on a transplant list in L.A. 6_7 year wait. Grrrrrrr

We recently met with the transplant team in Los Angeles and were told the wait time now for an O blood type kidney is 10 years.
If I were you I would go to Scripps Green Hospital in La Jolla. Jenna switched her wait time form LA to there (which was 3 years at the time) and got a pager and 2 calls in 3 months! The wait time is shorter there. You can find out more info here: http://www.scripps.org/services/organ-and-cell-transplantation/medical-services__kidney-transplant-program - To learn more about our kidney transplant program, call us at 858-554-4310 or fill out the Transplant Candidate Application (PDF, 47.6 KB) and Transplant Contact Form (PDF, 20.9 KB) and fax to 858-554-4311.
If you cannot travel to get on a shorter list, but have a willing donor, can you ask about a swap program at your transplant hospital?

[jbeany]

Yup, it can be "trudgery" - as we've defined it here on IHD," a trudge through drudgery."  Some days, all you can do it slog through the muck and hope for dry ground.  Maybe write down a list of reason why you are still going to keep with you?  Or pictures of the reasons, if they have faces.....

Honestly, there were days that the only reason I kept moving was because the cat expected me home to feed her.  And ya know, sometimes that was enough.  They don't have to be big reasons.  A warm, full kitty tummy in the sun that I could rub was enough sometimes....

 

[Bruno]

I'm sick of it too, but right now the alternative is worse. I like the hemp suggestion but it's hard to get hold of in my genteel Sydney suburb, my current plan is to grow it in my backyard so I'm searching the internet for clues.
Another thought...could we not have a specialised thread on this...something like "Hemp Help for HD Buffs"...would that be legal, Mr. Moderator?

[jbeany]

I like the hemp suggestion but it's hard to get hold of in my genteel Sydney suburb, my current plan is to grow it in my backyard so I'm searching the internet for clues.
Another thought...could we not have a specialised thread on this...something like "Hemp Help for HD Buffs"...would that be legal, Mr. Moderator?

We've discussed it before - especially how smoking it will keep you off the transplant list.

Medical mj is legal in my state now.

[Marina]

Okarol, im on a transplant list in L.A. 6_7 year wait. Grrrrrrr

I  know  UC Davis  (in  Sacramento ) is  quite  aways  for you,  but   their  waiting list  is  so  much  shorter  than the   6.7yrs.                Depending on your  blood  type  it  could  be  anywhere  from  2-3yrs,     You  can  either  multiple list  or  transfer your  time over.


When I  started  PD  I  decided  I  couldn't and  wouldn't   go  anywhere  before  I  saw the  kids  grow  up,  graduate  from  college  and  start  a    family of  their own.
So  I  did  and  still do  everything I  can  to  stick  around   

[M3Riddler]

I don't just hate dialysis. I'm sick of it.
How do you handle it day in and day out? It's tough.

No one likes dialysis...but we have to realize its part of our lives and must accept it... In my opinion, that once you accept it as part of your life..you can move on and live your life to the fullest....Its all in your attitude...

[Marina]

No one likes dialysis...but we have to realize its part of our lives and must accept it... In my opinion, that once you accept it as part of your life..you can move on and live your life to the fullest....Its all in your attitude...

OMG,   you  hit the  nail  right  on the  head!!!!

My  late  sister  hated  dialysis  so  much (in  the  beginning).    She  wasn't  doing  so  great  physically,  nor  emotionally.    Her  lab  numbers  were horrible.         
Then  one  day  she  decided  that  "it  is  what  is  it  is,  I'm  gonna  make the  best  of  it"           Everything  improved,  her  emotions,  her  activity level,  and her  her  labs   numbers  too.
So  yes,  accepting  it   is  the  biggest  step.   ACCEPTANCE  IS  KEY!!     Everything  flows  nicely  after  that.

I  myself,  knew  it  was  my  reality  and  accepted  right  from the  start.   My  lab  numbers  were  great.    I  was always  referred  as  the  "poster  child"  for  my  unit. 
I  was  asked  by the  unit  if  I  would   talk  to   other  patients  if  needed.   Anytime  we  had  new patients  who  were  struggling  with  PD,  they  were  asked  if they  wanted  to  speak to  other  patients on  PD.  They  were  always  given  my  number  or  I was  given  theirs.           

[Atooraya]

Well, look I'm with you on all of this "acceptance" stuff. Intellectually,  I get it.it is what it is. The kidneys are not working anymore.  But we have to do so much to make this work- multiple exchanges per day. Receive the material.  Store it. Watch for peritonitis. Don't eat this don't eat that. It's just a lot of stuff. I'll make it work until the transplant.  But it ain't easy.