DarkSoul0703
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Posts: 7
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« on: March 09, 2011, 06:15:09 PM » |
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So, like the topic, I wanted to let you all know, that my partner (who is owner of this account) is dying. She went off dialysis last Monday, Feb 28th. She is in the care of hospice now and they are keeping her comfortable with some different drugs right now. It's not easy losing the person you love, but she choose to do this. I wanted to let you all know. Thanks. Jennifer, wife and partner to Belinda Foley.
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Belinda, partner to Jennifer, Step-mom to Layne, John and Hunter
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MooseMom
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« Reply #1 on: March 09, 2011, 06:18:31 PM » |
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I am so, so sorry to hear this. I know she suffered a lot on dialysis; I remember her saying how much trouble she had with throwing up after each treatment. It must have been very difficult for both of you. I know that she had been contemplating stopping dialysis. Sometimes that is the best option. There is a difference between fighting adversity and allowing yourself to be continually tortured.
I know that hospice will keep her comfortable, and I hope you will find solace in their care for her. Thank you so much for letting us know; that was very kind of you.
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« Last Edit: March 09, 2011, 06:23:32 PM by MooseMom »
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"Eggs are so inadequate, don't you think? I mean, they ought to be able to become anything, but instead you always get a chicken. Or a duck. Or whatever they're programmed to be. You never get anything interesting, like regret, or the middle of last week."
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willowtreewren
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« Reply #2 on: March 09, 2011, 06:30:40 PM » |
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Wife to Carl, who has PKD. Mother to Meagan, who has PKD. Partner for NxStage HD August 2008 - February 2011. Carl transplanted with cadaveric kidney, February 3, 2011.  |
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jbeany
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« Reply #3 on: March 09, 2011, 06:47:12 PM » |
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"Asbestos Gelos" (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter". A term used by Homer for invincible laughter in the face of death and mortality.  |
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galvo
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« Reply #4 on: March 09, 2011, 07:12:58 PM » |
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So sorry!
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Galvo
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looneytunes
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« Reply #6 on: March 09, 2011, 08:18:21 PM » |
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Jennifer, though it saddens us to lose one we love, that same love allows us to respect their right to make this decision. My heart goes out to you and you both will be in my prayers.  |
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"The key to being patient is having something to do in the meantime" AU
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gothiclovemonkey
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« Reply #7 on: March 09, 2011, 08:22:10 PM » |
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Im very sorry to hear this... its a hard decision.......... i almost chose the same myself...
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"Imagine how important death must be to have a prerequisite such as life" Unknown
HemoDialysis since 2007
TX listed 8/1/11 inactive
LISTED ACTIVE! 11/14/11 !!!
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Des
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« Reply #8 on: March 09, 2011, 10:08:10 PM » |
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Thank you so much for letting us know. (Thinking of all of us in this difficult time in your lives.) May you cherish the last few days with her. We (IHD) will always be here when you need to talk.  Please send her our love if you can. Luv Des |
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...
South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
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Jean
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« Reply #9 on: March 10, 2011, 02:09:55 AM » |
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So sorry to hear of this. Sending hugs and prayers to both of you.
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One day at a time, thats all I can do.
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KICKSTART
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« Reply #10 on: March 10, 2011, 02:32:23 AM » |
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I am so sorry but i can understand why people make this choice. I have no words to comfort you, i wish i could take away the pain you are both going through. I admire your strength. Bless you both.
KSx
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
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carol1987
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« Reply #11 on: March 10, 2011, 03:34:33 AM » |
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I am so very sorry....
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Diagnosed with PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
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Darthvadar
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« Reply #12 on: March 10, 2011, 04:18:55 AM » |
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Thinking of, and praying for you both!...
Thank you so much for letting us know...
May God bless and protect you at this difficult time...
Love...
Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
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monrein
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« Reply #13 on: March 10, 2011, 07:02:05 AM » |
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I'm thinking of you both and wishing you peace at this time. So very difficult for you each in different ways. |
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
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phyl1215
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« Reply #14 on: March 10, 2011, 07:17:56 AM » |
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May you both find peace...keeping you both in my prayers.
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PD 3 yrs.
TX list 4 yrs.
Deceased donor PERFECT MATCH Kidney transplant July 8, 2012
Learning To Dance In The Rain
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peleroja
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« Reply #15 on: March 10, 2011, 07:18:47 AM » |
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I am so sorry for your loss. Know that we are all thinking about you and your partner.
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Ladybag
Newbie
Offline
Gender:
Posts: 28
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« Reply #16 on: March 10, 2011, 07:58:16 AM » |
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I just wanted to say that I am sorry and I am thinking of both of you right now. When I read your post I cried for both of you this is a tough decision for both of you. Please know my thought and prayers are with you now and forever.
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IGA Nephropahty Dec. 2007
ESRD May 2010
PD Cathiter May 2010
Dialysis June 2010
Kidney Transplant April 13, 2011
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YLGuy
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« Reply #17 on: March 10, 2011, 08:02:20 AM » |
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I am so sorry to hear. You are both in my thoughts and prayers.
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paris
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« Reply #18 on: March 10, 2011, 08:39:33 AM » |
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I am so very sorry. It is a hard decision and even harder for the loved ones to go through. May she find the peace she is looking for. |
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It's not what you gather, but what you scatter that tells what kind of life you have lived. |
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kristina
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« Reply #19 on: March 10, 2011, 11:02:32 AM » |
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I am so sorry for your loss.
Thanks for letting us know.
All the best to you and your family
from Kristina.
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
He was completion and fulfillment in itself, like a meteor which follows its own path.
- Robert Schumann -
... Oportet Vivere ...
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MakeMyDay
Newbie
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Gender: 
Posts: 26
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« Reply #20 on: March 10, 2011, 11:05:34 AM » |
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I'm so sorry to hear this.
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"So it's written, so it shall be done."
May 2010 : started HD
Dec 2010 : switched to PD
Jan 2011 : completed transplant eval @ Mayo Arizona
Nov 15th 2011 : Successful living donor transplant @ Mayo
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Marsh
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« Reply #21 on: March 10, 2011, 06:11:50 PM » |
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rsudock
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« Reply #22 on: March 10, 2011, 11:55:01 PM » |
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Rest in Peace...thank you for letting us know...
xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
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AguynamedKim
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« Reply #23 on: March 11, 2011, 03:54:13 AM » |
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I'm so sorry to hear what you've both been going through. |
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WishIKnew
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« Reply #24 on: March 11, 2011, 05:18:32 AM » |
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Thinking of you.....
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