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Author Topic: Preparing the house for transplant  (Read 39991 times)
mike22
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« Reply #25 on: March 13, 2011, 09:31:43 AM »

I havent receive a transplant yet, I'm still waiting. But I have already laid out plains as to how I plan to keep the house clean. Lysol and hand sanitizer will be just as important as me meds. I may seem a little OCD to people but it will be well worth once i get that kidney.
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Sugarlump
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10 years on and off dialysis

« Reply #26 on: March 13, 2011, 01:12:08 PM »

Don't forget to add luck to you list... sometimes you need a bit of good luck for things beyond your control!
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10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Des
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« Reply #27 on: March 13, 2011, 11:58:09 PM »

Don't forget to add luck to you list... sometimes you need a bit of good luck for things beyond your control!

Bring the luck then . :rofl;
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Sugarlump
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10 years on and off dialysis

« Reply #28 on: March 14, 2011, 03:14:48 PM »

I wish you all the luck in the world  :clap;
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
paris
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« Reply #29 on: March 14, 2011, 06:48:54 PM »

I must admit that my cleaning was for the most part something that needed to be done anyway and to keep my mind and hands busy.  I was not at all sorry I did it.  I was never a germaphobe before and I'm still not "phobic" about it.  I do things differently now because of my transplant, but not overboard.  If you have the time and energy to clean your house from top to bottom before you transplant I think you would be smart to take advantage, because you are going to be sore and slow moving for a while post transplant.

I agree with KellyT.  It was so nice to come home with everything done. You won't feel like cleaning for awhile. I rest easier when things are picked up. Because we have 10 grandkids under 13yrs old, who visit all the time, I do use bleach on railings, doorknobs, counters etc, and the hand sanitizer sits by the door.  It can't hurt to err on the site of caution.   Keeping you in my thoughts and prayers.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
rsudock
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will of the healthy makes up the fate of the sick.

« Reply #30 on: March 17, 2011, 11:08:13 PM »

I was just thinking about how we prepare OURSELVES for transplant....like before I get my kidney I am going to give myself a pedicure and manicure, also pluck my eyebrows, and shave my legs. Is that weird to think?


Also I was thinking about the things I bring to the hospital...pert plus b/c it is conditioner and shampoo in one! heating pad for the hospital bed, magazines, phone charger, slippers, tweezers, toothbrush and paste, face wash pods, pajama pants, and white tank tops...

anybody else think of other things?
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Des
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« Reply #31 on: March 17, 2011, 11:31:55 PM »

Because you are in ICU you are not allowed anything except small towel, face cloth ,soap, toothpaste and tooth brush. They will send your bag home with hubby. (this I know for a fact) But once you are transferred to highcare or normal ward you can start wearing pj's and bring all the nice goodies in.

Well that is how it is here in South AFrica anyways. 
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
monrein
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Might as well smile

« Reply #32 on: March 18, 2011, 05:04:53 AM »

I was just thinking about how we prepare OURSELVES for transplant....like before I get my kidney I am going to give myself a pedicure and manicure, also pluck my eyebrows, and shave my legs. Is that weird to think?


Also I was thinking about the things I bring to the hospital...pert plus b/c it is conditioner and shampoo in one! heating pad for the hospital bed, magazines, phone charger, slippers, tweezers, toothbrush and paste, face wash pods, pajama pants, and white tank tops...

anybody else think of other things?

Not weird at all about the body maintenance stuff bbut at y hospital they made me take off all nail polish (on my new pedicure).  They need to be able to see the nails for some reason.  I personally always just wear the hospital gowns but bring a nice robe to wear over them...too many tubes, discomfort, need for access, etc to fuss with pyjama pants etc.  Bring slippers or sandals too.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Sugarlump
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10 years on and off dialysis

« Reply #33 on: March 18, 2011, 06:07:07 AM »

Ipod for music and drown out background noises particularly late at night!
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
carol1987
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« Reply #34 on: March 18, 2011, 10:36:25 AM »

I was just thinking about how we prepare OURSELVES for transplant....like before I get my kidney I am going to give myself a pedicure and manicure, also pluck my eyebrows, and shave my legs. Is that weird to think?


Also I was thinking about the things I bring to the hospital...pert plus b/c it is conditioner and shampoo in one! heating pad for the hospital bed, magazines, phone charger, slippers, tweezers, toothbrush and paste, face wash pods, pajama pants, and white tank tops...

anybody else think of other things?

Not weird at all about the body maintenance stuff bbut at y hospital they made me take off all nail polish (on my new pedicure).  They need to be able to see the nails for some reason.  I personally always just wear the hospital gowns but bring a nice robe to wear over them...too many tubes, discomfort, need for access, etc to fuss with pyjama pants etc.  Bring slippers or sandals too.

I agree.... no pj bottoms... the incision is low and also had a drain..   Nail polish would be removed at my hospital also...
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Diagnosed with  PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was  "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
kellyt
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« Reply #35 on: March 19, 2011, 10:17:16 PM »

Nail polish should be removed at all hospitals.  That's usually protocol.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
-Lady Noir-
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Where's your will to be weird?

« Reply #36 on: March 20, 2011, 01:59:20 PM »

Ipod for music and drown out background noises particularly late at night!

 :2thumbsup;
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Expose yourself to your deepest fear. After that, fear has no power, and the fear of freedom shrinks and vanishes. You are free

..Nik..

Fiancee to Mike
Mikes 'history'....
Born September 12 1983
Seizure July 2003 [Unrelated to kidney]
Diagnosed with 'Polycystic Kidney Disease' July 2003 (Wrong diagnosis)
Diagnosed with  IgA Glomerulonephritis April 2004
On active transplant waiting list 2006
Hyperparathyroidism developed gradually
Parathyroidectomy May 2009 (Affected kidney function)
Hospitalized for hyperkalemia June 2009
Catheter inserted June 2009


Started CAPD June 2009
Stared APD September 2009

ABO Incompatible transplant 01 December 2010
Donor = Mikes father Greg
Sugarlump
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10 years on and off dialysis

« Reply #37 on: March 20, 2011, 04:25:05 PM »

I just clicked on the list of new replies to your posts and could have sworn the title of this was
PREPARING HORSE FOR TRANSPLANT!!!!   (??!!**  :urcrazy; )
I really must get new reading glasses! :bandance;
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Des
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« Reply #38 on: March 21, 2011, 10:59:53 PM »

 :rofl; :rofl; :rofl; :rofl;
Sorry, Sugarlump, I can't help you on this one!!!

Well I was going to prepare my horse for getting me to the transplant on time but I changed my mind.

I would rather take the car. :rofl;
Logged

Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
MooseMom
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« Reply #39 on: March 21, 2011, 11:19:25 PM »

I brought all kinds of personal toiletries and crap for the post-surgical period and didn't use one single item.  The hospital supplied everything, and it was just easier to use their stuff, especially since they stuck it on my bill without asking.  I have three pairs of those horrid socks they give you; I actually wear them around the house in the winter when I'm having a sloppy day.  Don't bother with taking your own nightwear; wear the hospital gowns so that your own stuff won't get ruined by various bodily fluids.  My hospital provided gowns, robes and socks...even little paper panties!  Save your own stuff for when you get home.

I lie...the one thing of my own that I DID use was deodorant.

Remember, if you bring a lot of stuff, it has to be moved with you as you are moved from recovery to ICU to the regular ward.  Things can go walkies all too easily.

Oh...maybe earplugs!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
kellyt
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« Reply #40 on: March 21, 2011, 11:46:32 PM »

Take your own blanket (preferably a nice bright color to cheer up your room), your own pillow and your own bath towel.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Des
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« Reply #41 on: March 22, 2011, 12:44:59 AM »

I have spoken to the transplant coordinator and only one very important item needs to go.

Polly our Indian Ringneck. All birds carry the CMV virus (even the wild ones) this virus holds a major threat to transplant patients. It gets airborne everytime the bird shakes it's feathers. When you breath in the CMV virus it eats "holes" in the lungs.

I thought I'd just keep him in the garage.
 ???       
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #42 on: March 22, 2011, 12:53:50 AM »

I have spoken to the transplant coordinator and only one very important item needs to go.

Polly our Indian Ringneck. All birds carry the CMV virus (even the wild ones) this virus holds a major threat to transplant patients. It gets airborne everytime the bird shakes it's feathers. When you breath in the CMV virus it eats "holes" in the lungs.

I thought I'd just keep him in the garage.
 ???     

I doubt birds carry CMV, but have been told they may have other risky germs.
I know many transplant patients who have kept their birds. They stayed away from them for the first 3 months, but afterwards returned to living together. Lori Hartwell has a 19 year old parrot that she had for 19 years of her last transplant.
We had a beautiful cockatiel but the transplant team clearly said "no birds" so now she has been adopted by another family. We miss her!
Even the Center for Disease Control does not rule out birds for transplant patients http://www.cdc.gov/healthypets/bonemarrow_transplant.htm but my hubby felt that any risk was too great.
« Last Edit: March 22, 2011, 12:59:02 AM by okarol » Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Des
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« Reply #43 on: March 22, 2011, 12:59:19 AM »

We are going to miss him too!

This is one rule they won't budge on.
« Last Edit: March 22, 2011, 05:17:24 AM by Des » Logged

Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
kellyt
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« Reply #44 on: March 22, 2011, 07:06:09 PM »

I was told no birds, as well.  I don't have any, but I was told they carry lost of stuff (like what Okarol mentioned).

I'm so sorry you have to say good-bye.  Pets are part of the family.    :cuddle;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
willowtreewren
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My two beautifull granddaughters

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« Reply #45 on: March 22, 2011, 07:11:56 PM »

I hope you can find a good family for your parrot.  :cuddle;

Thinking of you daily.  :kiss;

 :2thumbsup;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
chook
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Born to be a Granma!

« Reply #46 on: March 22, 2011, 07:46:05 PM »

I am rethinking a transplant. We live in an OLD house and at the moment, are over run with mice. I've been away almost 9 weeks and the little mice have been everywhere. Hubby has done his best to stem the tide but as we are having a bumper season, the mouse population has exploded. This will not be good to return to after a transplant. I will be hoping my call comes in a drought, when the mice are better behaved!
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Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
Sugarlump
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10 years on and off dialysis

« Reply #47 on: March 22, 2011, 11:45:28 PM »

How about a cat chook to catch 'em all!!!!!!  :boxing;
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10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Des
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« Reply #48 on: March 22, 2011, 11:47:10 PM »

good idea!
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Sugarlump
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10 years on and off dialysis

« Reply #49 on: March 22, 2011, 11:56:14 PM »

:rofl; :rofl; :rofl; :rofl;
Sorry, Sugarlump, I can't help you on this one!!!

Well I was going to prepare my horse for getting me to the transplant on time but I changed my mind.

I would rather take the car. :rofl;

I'm still laughing about this I swear it said Preparing horse for transplant and I thought maybe, new medical advances and they've found way of using horse kidneys ... oh dear ... but they'd be huge in comparison wouldn't they ????

 :rofl;  :rofl;  :rofl;
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
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