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Dialysis: General Discussion
Painful fistulas
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Topic: Painful fistulas (Read 2553 times)
BillSharp
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rock 'n roll will never die
Painful fistulas
«
on:
March 03, 2011, 09:54:11 AM »
Does anyone else have painful fistulas? Mine are on the inner right arm, under my bicep. The bottom buttonhole really hurts when I'm cannulated, the top not so much. After D is over, I have an uncomfortable feeling in my fistula all the time; not real severe pain, but more an itchy burning sensation. I've had an angioplasty in my fistula, so I know its not clogged. Anybody else?
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Started passing stones at age 14 (Cystinuria)
Transplant in 1989 at age 50
Transplant failed in 2009 at age 70
Hemo and transplant list
Cadaver Transplant 7/1/2011 at age 72 (zero mismatch)
Stacy Without An E
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God's Action Figure
Re: Painful fistulas
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Reply #1 on:
March 03, 2011, 11:45:29 AM »
No two fistulas seem to be the same, even if they're inserted by the same surgeon.
When they first placed the fistula in my upper left arm, I had very little pain after needle insertion. But after a few months, it started to burn incessantly. For the first time ever, I had to shorten a few treatments it had gotten so bad. One item to look for is your pump speed. I run at 300 now, which the doctor's don't care for, but the pain lessens when its set at that number.
I had an angioplasty too and I felt like I wasted their time because there were no clots and the flow was really good.
I know its a minor bit of advice, but I hope it helps.
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Stacy Without An E
1st Kidney Transplant: May 1983
2nd Kidney Transplant: January 1996
3rd Kidney Transplant: Any day now.
The Adventures of Stacy Without An E
stacywithoutane.blogspot.com
Dialysis. Two needles. One machine. No compassion.
tyefly
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This will be me...... Next spring.... I earned it.
Re: Painful fistulas
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Reply #2 on:
March 03, 2011, 06:34:29 PM »
I with Stacy slower speeds better fistulas.......
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IgA Nephropathy April 2009
CKD May 2009
AV Fistula June 2009
In-Center Dialysis Sept 2009
Nxstage Feb 2010
Extended Nxstage March 2011
Transplant Sept 2, 2011
Hello from the Oregon Coast.....
I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
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monrein
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Re: Painful fistulas
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Reply #3 on:
March 04, 2011, 04:38:52 AM »
You may also be going through a nerve with that one buttonhole. My venous, which was deep, went right through a nerve which was annoying as I cannulated it but I got used to the sensation and it worked well so I didn't bother starting a new one. The feeling afterwards might be from the irritation of the nerve which never gets a chance to fully rest before another session comes along.
Is it worth trying to establish a new site for that needle?
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
sullidog
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Re: Painful fistulas
«
Reply #4 on:
March 10, 2011, 04:02:18 PM »
My graft hurts a bit when running at 450. That's where my doctor wants it though and what I say he could give two craps about.
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
BillSharp
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rock 'n roll will never die
Re: Painful fistulas
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Reply #5 on:
March 11, 2011, 09:44:32 AM »
Dr. gave me the option of starting a new buttonhole, so I'm thinking about it. My flow at 400 is pretty darn good, so I'm torn. (I need the 400 flow to get good Kt/v.)
Thanks for responding.
Logged
Started passing stones at age 14 (Cystinuria)
Transplant in 1989 at age 50
Transplant failed in 2009 at age 70
Hemo and transplant list
Cadaver Transplant 7/1/2011 at age 72 (zero mismatch)
Stacy Without An E
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God's Action Figure
Re: Painful fistulas
«
Reply #6 on:
March 11, 2011, 11:54:19 AM »
There was a period a few years ago (during Year 3 & 4 of Dialysis) where I was taking massive amounts of Vicodin to evade the pain. I've paid the price now because I've lost some of my hearing. Doctor Goddess (my goodness is she freakin' beautiful) prescribed Gabepentin to lower my nerves sensitivity. It makes me dizzy, so I wait until two hours before treatment to dose myself.
Dialysis is horrible enough; you shouldn't have to suffer the entire time.
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Stacy Without An E
1st Kidney Transplant: May 1983
2nd Kidney Transplant: January 1996
3rd Kidney Transplant: Any day now.
The Adventures of Stacy Without An E
stacywithoutane.blogspot.com
Dialysis. Two needles. One machine. No compassion.
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