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Author Topic: transplant meds and sexuality?  (Read 9082 times)
Des
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« on: February 25, 2011, 03:10:56 AM »
Does these meds affect your sexlife?
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
monrein
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Might as well smile
« Reply #1 on: February 25, 2011, 05:56:09 AM »
I would say that the effects are positive in the sense that one feels healthier (as long as all is well with the trx) and therefore more energetic for sex.  Of course everyone's experience is different because I still had a very healthy sex drive even while on D.  I don't know what the listed side effects say because I never read them unless I start to have a problem.  So far, painful hands are the only things that bother me, but they don't interfere with sex since I've given up acrobatics (just kidding).
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
RichardMEL
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« Reply #2 on: February 25, 2011, 06:07:45 AM »
Dare I admit this here but I haven't had once since my tx to know BUT I do agree you feel much better and well I am quite curious to know. I certainly feel raring to go (as it were!!  :rofl;). The subject did come up in a way when I was talking to the tx co-ordinator a month or so ago, and she told me that you become more fertile, so using contraception is important(unless your goal is to get pregnant(or get someone pregnant)).

I don't know that any of the common tx meds specifically affect sexual performance or desire... from my point of view the desire is certainly there!!!  :rofl; :yahoo;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
sparklelady
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« Reply #3 on: February 25, 2011, 06:09:26 AM »
I had no sex drive while on D. Since my transplant, Jan 3rd, that has changed!!
Hubby is happy!!
I'm assuming the meds affect everyone differently, but for me, it was a positive change.
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Des
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« Reply #4 on: February 27, 2011, 09:31:16 AM »
So far so good. One thing to look forward to   (RM :2thumbsup;)

Monrein & sparklelady GOOD to hear.   :bandance;
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #5 on: February 27, 2011, 04:46:49 PM »
Can't wait for a second transplant...naked Fridays will be back!!! You think I'm kidding?  ;D

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
-Lady Noir-
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Where's your will to be weird?
« Reply #6 on: February 27, 2011, 08:43:27 PM »
 :rofl; Naked fridays? I'm intrigued!


Well, since Mikes has his tx his sex drive has gone through the roof  :cheer:
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Expose yourself to your deepest fear. After that, fear has no power, and the fear of freedom shrinks and vanishes. You are free

..Nik..

Fiancee to Mike
Mikes 'history'....
Born September 12 1983
Seizure July 2003 [Unrelated to kidney]
Diagnosed with 'Polycystic Kidney Disease' July 2003 (Wrong diagnosis)
Diagnosed with  IgA Glomerulonephritis April 2004
On active transplant waiting list 2006
Hyperparathyroidism developed gradually
Parathyroidectomy May 2009 (Affected kidney function)
Hospitalized for hyperkalemia June 2009
Catheter inserted June 2009


Started CAPD June 2009
Stared APD September 2009

ABO Incompatible transplant 01 December 2010
Donor = Mikes father Greg
RichardMEL
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« Reply #7 on: February 27, 2011, 09:37:56 PM »
oooh I hope the Vegas do falls on a Friday!!  >:D >:D >:D >:D >:D
 :shy;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #8 on: February 28, 2011, 11:55:30 AM »
lol I knew some of you would be enticed by my comment!!!

xo,
R
Logged
Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Chris
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WWW
« Reply #9 on: February 28, 2011, 07:15:58 PM »
Why be naked on just Friday?
Did you forget hump Wednesday's? :-[ :sarcasm; :rofl; :rofl; :rofl; :rofl;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Sugarlump
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10 years on and off dialysis
« Reply #10 on: March 04, 2011, 07:57:22 AM »
I've been permanently "hot under the collar" lately must be the medication.
If anyone finds out which med it is let me know, it's driving me crazy!  :P
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10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
-Lady Noir-
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Where's your will to be weird?
« Reply #11 on: March 06, 2011, 12:35:27 AM »
 ;)

Are you on cyclosporine? Apparently that can cause an increase in sex drive ..
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Expose yourself to your deepest fear. After that, fear has no power, and the fear of freedom shrinks and vanishes. You are free

..Nik..

Fiancee to Mike
Mikes 'history'....
Born September 12 1983
Seizure July 2003 [Unrelated to kidney]
Diagnosed with 'Polycystic Kidney Disease' July 2003 (Wrong diagnosis)
Diagnosed with  IgA Glomerulonephritis April 2004
On active transplant waiting list 2006
Hyperparathyroidism developed gradually
Parathyroidectomy May 2009 (Affected kidney function)
Hospitalized for hyperkalemia June 2009
Catheter inserted June 2009


Started CAPD June 2009
Stared APD September 2009

ABO Incompatible transplant 01 December 2010
Donor = Mikes father Greg
RichardMEL
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« Reply #12 on: March 06, 2011, 01:12:22 AM »
What about the prednisolone?

Yeah I'm on the cyclosporin, but my dose is now down to 75mg twice daily (started @ 225x2) and if anything mine's increased even more...lol
Logged


3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Sugarlump
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Posts: 2160


10 years on and off dialysis
« Reply #13 on: March 06, 2011, 02:37:55 AM »
No tacrolimus, prednisolone and myfortic.
Since doc lowered the pred, my sexual desires have been off the scale! How weird is that?
No man will be safe from me soon  :rofl;
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #14 on: March 06, 2011, 11:47:31 AM »
yes i was and still take cyclosporine! even though I am on D I still have the transplant kidney and the cyclosporine stops it from making antibodies which would give me a high PRA and we don't want that!
Logged
Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Sugarlump
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Posts: 2160


10 years on and off dialysis
« Reply #15 on: March 06, 2011, 12:03:12 PM »
That's an interesting comment about your cyclsporin that you still take it for your non-working kidney.
When my first transplant failed they took me off all meds except a minor dose of prednisolone (3mg daily) and
when I subsequently went in for transplant number two I had very high levels of antibodies from the first
kidney...so if they had kept me on the cyclosporin, we could have prevented my current problems.... so why the hell
didn't they at least give me the choice?
So do you still take prednisolone as well? I swear that is the culprit, besides the high sex drive problem I feel like I'm getting
a personality change and becoming more reckless and less controlled by inhibitions. It's a strange thing :o
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
rsudock
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Posts: 1351


will of the healthy makes up the fate of the sick.
« Reply #16 on: March 06, 2011, 12:11:10 PM »
yes I am still on prednisone 5mg as well. in all fairness i think it was the norm for docs to have patients stop taking their transplant drugs, but now they realize that is the culprit of high PRA. My brother who's kidney rejected 7 years earliers was also taken off all his transplant drugs and he has a high PRA now too. We both have the same neph and it just wasn't something that was done I guess back then....ask your doc if he has read any current research about that now?

I am not sure about the sex drive b/c even though I am on all these transplant drugs now still, with D and blood pressure meds I am NOT about sexy time any longer. I could care less really...I wonder if going to endocronologist would be the answer? I went to the OB/GYN last week and he says physically everything checked out fine....hhhmmm?
Logged
Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Sugarlump
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*****
Offline Offline

Gender: Female
Posts: 2160


10 years on and off dialysis
« Reply #17 on: March 06, 2011, 12:29:00 PM »
At my next clinic appointment, I'm definitely going to ask the doc to do a blood test for hormone levels to see if anything is out of range and then maybe they can work out why.
And I shall now ask him why they didn't consider leaving me on the cyclosporin and whether they would consider it in the future. I think you're probably right about the advances in transplant medicine, even in the last couple of years treatment options seem to be advancing very rapidly.
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Sugarlump
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Gender: Female
Posts: 2160


10 years on and off dialysis
« Reply #18 on: March 07, 2011, 01:47:24 AM »
I'm going to add PARANOIA to my list of symptoms from Prednisolone...
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Sunny
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Posts: 1501


Sunny
« Reply #19 on: March 07, 2011, 02:05:40 AM »
It's the prednsone, absolutely, regarding the sex drive.
I'm on 5 milligrams a day now since my transplant 5 months ago and I notice. Also, I was on prednisone 10 years ago for 6 months to treat Goodpastures Disease and increase sex drive is something I noticed then too. As far as I'm concerned, that's the only redeeming quality of prednisone, all the other side effects have been really awful.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
Sugarlump
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10 years on and off dialysis
« Reply #20 on: March 07, 2011, 03:55:13 AM »
That is so NOT a conversation i want to have with my doc ...but, if anything its getting worse (and please bear in mind here I'm single and not in any relationship  :) ) and it worries me what it will drive me to do !!!! so I guess somehow I will have to broach the subject with him. And find out if there is any cure ??? or alternative to Prednisolone.
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Sugarlump
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*****
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Gender: Female
Posts: 2160


10 years on and off dialysis
« Reply #21 on: March 14, 2011, 08:35:41 PM »
No improvement on high sex drive and general reckless behaviour ...clinic on Thursday ...perhaps it will be simple to resolve and I can calm down!
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
RightSide
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Posts: 1117
« Reply #22 on: March 30, 2011, 05:43:02 PM »
Quote from: Des on February 25, 2011, 03:10:56 AM
Does these meds affect your sexlife?
No, but lack of a girlfriend certainly does.    ;D
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Sugarlump
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10 years on and off dialysis
« Reply #23 on: March 30, 2011, 06:53:02 PM »
 :(
Actually I'll have to stop blaming the pred as they reckon I've got overactive thyroid gland now to add to my tale of woes and that might be the culprit x  Too much adrenalin coursing round my body ...

 :bandance;  :bandance;  :bandance; dance anyone?
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10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
gothiclovemonkey
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Posts: 1659
« Reply #24 on: March 30, 2011, 08:19:09 PM »
Gee, just when i was all psyched about trx, yall had to say that it gets u all hot n bothered....
im a single lady here people! now i think ill just stick to D :p  Im rather enjoying not being interested in sex... keeps me a tiny bit more sane... then again... i have caught myself staring off at places i normally wouldnt want to look at... maybe my step mom is right.
"I need to get laid." :rofl;
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"Imagine how important death must be to have a prerequisite such as life" Unknown
HemoDialysis since 2007
TX listed 8/1/11 inactive
LISTED ACTIVE! 11/14/11 !!!
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