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| | |-+  It looks like it is finally happening !!!!!
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Author Topic: It looks like it is finally happening !!!!!  (Read 6553 times)
carol1987
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« Reply #25 on: February 27, 2011, 11:49:43 AM »

 :clap; :clap; :clap; :clap;
Oh Des! Fantastic... I will keep sending positive thoughts!!!
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Diagnosed with  PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was  "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
del
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del and willowtreewren meet

« Reply #26 on: February 27, 2011, 11:56:20 AM »

 :grouphug; Great news!!!
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Don't take your organs to heaven.  Heaven knows we need them here.
monrein
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Might as well smile

« Reply #27 on: February 27, 2011, 12:35:05 PM »

 :2thumbsup;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #28 on: February 27, 2011, 12:55:47 PM »

 :bandance; That's great Des!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
willowtreewren
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My two beautifull granddaughters

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« Reply #29 on: February 27, 2011, 03:56:25 PM »

 :cheer: :bandance; :cheer: :bandance;

Doing the happy dance, Des.... And March 1 is ALMOST HERE!!!!

 :bandance; :cheer: :bandance; :cheer: :bandance;

 :guitar: :guitar:

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Des
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« Reply #30 on: March 03, 2011, 02:44:36 AM »

Doc is removing her left kidney.

The right one has 2 veins and the left 1. (she likes the surgeon - that's good)

Had to see the cardiologist yesterday. They forgot to tell me that his report in our file was outdated.  :stressed;

closer people so much closer.  :bandance; :cheer:

Bit of bad news with the good -  I have to go in  for a hernia repair operation the 4 April. He wants to have it done before the transplant. I am not looking forward to that. I think I hate hospitals more than dialysis. (maybe not)


Oh and I had a big bunch of flowers delivered to my donor thanking her for all that she has done so far.... she was all teared up. (can't remember who gave me the idea, but thanks, it worked)  :flower;
« Last Edit: March 03, 2011, 02:54:07 AM by Des » Logged

Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Des
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« Reply #31 on: March 07, 2011, 04:08:46 AM »

I am now upset..... according to another transplant coordinator they are still waiting for a full medical report for both of us from our doctors.

Couldn't they have gotton this done earlier like OCTober!

 :stressed;
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
willowtreewren
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My two beautifull granddaughters

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« Reply #32 on: March 07, 2011, 04:44:47 AM »

Doctors assume that we know everything that we are supposed to know without bothering to, duh, tell us!

Sooooo aggravating, but things are coming along.  :grouphug;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #33 on: March 07, 2011, 01:41:20 PM »

I am now upset..... according to another transplant coordinator they are still waiting for a full medical report for both of us from our doctors.

Couldn't they have gotton this done earlier like OCTober!

 :stressed;

It would be great if the transplant team could give a check list to the donor and recipient instead of making them jump through hoops unexpectedly. It makes me crazy that it seem hit and miss - doesn't give you much confidence in their ability to pull it off!
Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
cariad
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What's past is prologue

« Reply #34 on: March 17, 2011, 10:28:23 AM »

I am just over the moon for you, Des. Things are finally coming together. There seems to always be some delay or complication, but I have no doubt you will get there soon. I cannot wait to hear the news! Get that support person ready to type away - once you go into the theatre, your support person will be bombarded with questions and comments! Thinking of you, hun!

 :flower; :cheer: :flower;
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
natnnnat
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WWW
« Reply #35 on: March 22, 2011, 03:46:10 AM »

I found your other thread about preparing your house...    "what? what?"  "what???" 
...and came in search of this one! 
Such good news Des, you've been doing it so rough for ages, I was really worried about you sometimes.   :grouphug;
Got my fingers crossed for you miss Des.   :thumbup; :thumbup; :thumbup;
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
Des
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« Reply #36 on: March 22, 2011, 05:09:20 AM »

I will be naming her (the kidney) Dezy because Desrey is the lovely person giving it to me.   :bow;
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Des
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« Reply #37 on: March 22, 2011, 05:13:39 AM »

I found your other thread about preparing your house...    "what? what?"  "what???" 
...and came in search of this one! 
Such good news Des, you've been doing it so rough for ages, I was really worried about you sometimes.   :grouphug;
Got my fingers crossed for you miss Des.   :thumbup; :thumbup; :thumbup;

Thanks ! I would really like to at least have some time line but the coordinator made it very clear: " Des, you can't plan this one! Just wait!."

So here I am waiting. :waiting; :stressed; :pray; 
Logged

Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Des
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« Reply #38 on: March 22, 2011, 05:15:55 AM »

I am just over the moon for you, Des. Things are finally coming together. There seems to always be some delay or complication, but I have no doubt you will get there soon. I cannot wait to hear the news! Get that support person ready to type away - once you go into the theatre, your support person will be bombarded with questions and comments! Thinking of you, hun!

 :flower; :cheer: :flower;

Thanks Cariad...... My person will be updating on facebook. But at least that is something...  :thx;
Logged

Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Des
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« Reply #39 on: March 31, 2011, 12:13:39 AM »

Week 3 and waiting  :stressed; :waiting;

Donor is still rearing to go.  :clap;
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Sugarlump
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10 years on and off dialysis

« Reply #40 on: March 31, 2011, 03:34:47 AM »

Hold on to that thought and you'll be joining that list very soon
Wishing you all the best and sending you all the luck in the world xxx

 :2thumbsup;  :2thumbsup;
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
rsudock
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will of the healthy makes up the fate of the sick.

« Reply #41 on: May 01, 2011, 10:46:20 PM »

still thinking about you Des and hoping it works out!

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
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