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Author Topic: It looks like it is finally happening !!!!!  (Read 6551 times)
Des
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« on: February 21, 2011, 03:45:33 AM »
 :cheer: :cheer:

Final matching bloodtest on Thursday 24th Feb.
Appointment with the surgeon 1Mar.

Will soon have a date  :bandance; :bandance; :bandance; :bandance;

Bless the donors,  all of them.  :rofl; :yahoo; :bandance; :cheer: :cheer:

I know you want to know why I have not mentioned this good news before, :oops; well this is the same donor that has cancelled on me before so I did not want to count the kidneys before they were donated :).

So we have completed all our tests and all looks well. We are doing the VERY last of them all on the 24th. The files will be submitted to the surgeon and the dept of health. Once we have a stamped letter from them we will book theatre and we are A for Away.
« Last Edit: February 21, 2011, 04:07:24 AM by Des » Logged
Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
RichardMEL
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« Reply #1 on: February 21, 2011, 04:55:25 AM »
oh wow!! how exciting!!!

Fingers crossed that all continues to go smoothly!! WOO HOO!!

 :yahoo; :2thumbsup; :yahoo;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
monrein
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Might as well smile
« Reply #2 on: February 21, 2011, 05:16:31 AM »
Des, reading this post made me very very happy...I've got everything crossed for all to proceed smoothly and I'm really looking forward to jumping for joy when you can be added to the "members with transplants" list.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Des
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« Reply #3 on: February 21, 2011, 05:24:52 AM »
Thanks, I was a bit sceptical at first but now it is SO close I can taste victory. I know things can go wrong but for now I will be super excited and live in a dream world for a day or two.... everything is going to be picture perfect.   :flower;
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
willowtreewren
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My two beautifull granddaughters

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« Reply #4 on: February 21, 2011, 05:35:05 AM »
Oh, Des.... Oh, Des.

Got tears of joy in my eyes.  :cheer:

I can hardly wait to hear that you are A for AWAY!!!  :2thumbsup;

This is wonderful, wonderful news.....

 :flower; :flower; :grouphug; :grouphug;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #5 on: February 21, 2011, 06:27:01 AM »
Awesome Des! So happy for you I know your D unit sucks...glad that you may have some relief sooon!!!

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
boswife
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us and fam easter 2013
« Reply #6 on: February 21, 2011, 07:03:52 AM »
 :yahoo;  This is wonderful news!!!  So excited and cant wait till it's ALL done and your on the mend...  PATIENCE ..hehe
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
MooseMom
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« Reply #7 on: February 21, 2011, 12:14:40 PM »
Oh my God, how utterly, utterly wonderful!  It's all happening so FAST!!  Gosh, it seems like here in the US, such things take years!  I can't wait to hear more!

I just can't imagine what it must be like not to have to wait years and years for a new lease on life.  You are so incredibly fortunate, Des, and I am so happy for you.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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« Reply #8 on: February 21, 2011, 12:23:23 PM »
 :cheer: I am so happy for you Des! Keeping good thoughts that all moves forward and soon you'll have a date!  :yahoo;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
cariad
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« Reply #9 on: February 21, 2011, 02:45:26 PM »
Oh, Des! What a long, strange journey this has been for you! I am so glad your coworker has got her nerve back.

I'd love to hear what brought her round again. But never mind, eh? She's stepping up now, and hopefully you will be rid of that horrible dialysis forever. :yahoo; :yahoo; :yahoo;

I wish you only the best. Keep updating us!
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
Jean
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« Reply #10 on: February 21, 2011, 04:25:49 PM »
Yippee!!!!! What great news. Hope everything goes smoothly for you. Keep us posted!!!!   :clap; :clap;
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One day at a time, thats all I can do.
Chris
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« Reply #11 on: February 21, 2011, 05:24:05 PM »
That's great Des and less than 2 weeks to go.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Ang
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« Reply #12 on: February 21, 2011, 06:32:42 PM »
congrats , hope its all smooth sailing from here :beer1;
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live  life  to  the  full  and you won't  die  wondering
glitter
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« Reply #13 on: February 21, 2011, 06:38:16 PM »
I am so happy for you!! :cheer: :cheer: :bandance; :bandance;
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
chris73
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its me ...Chris

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« Reply #14 on: February 21, 2011, 06:38:49 PM »
Its always great to hear somebody else is getting off the D word!! I hate saying the word. Hope all goes as planned,it will be here b4 you know it. Keep "us" updated how things are going! God Bless!! Chris :cuddle;
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11/10/07 esrd
12/07/07 permcath placed
dialysis started 2 days later
transplant 4/15/08  from close friend and coworker  of 12 yrs. Thanks Jeff!!
RichardMEL
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« Reply #15 on: February 21, 2011, 08:59:23 PM »
This is why I put money on South Africa to win the World Cup (cricket)  :2thumbsup; :yahoo; :2thumbsup; :yahoo;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
YLGuy
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« Reply #16 on: February 21, 2011, 09:18:59 PM »
Oh Des, I am so happy for you!  :grouphug;
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Gandalf
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« Reply #17 on: February 22, 2011, 12:26:31 AM »
WOW Des that is so totally stunning.  I am going to be keeping you, and your donor, so very much in my thoughts.
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Des
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« Reply #18 on: February 22, 2011, 01:22:23 AM »
Thanks all you lovely people ! :thx; I will keep you all posted as soon as I know more. The surgeon's office phoned me today to discuss payment and medical aid. Now that makes it more real. OMGoodness!!!  I started studying my transplant bookl. I have pages of info on all the diff meds and their side effects to know off by heart, as well as alot of other stuff about signs of rejection, what to expect and lots lots more.

Chris : It will still be a month or two before the actual transplant, but who's worried about that , NOT ME.

Caraid: The transplant coordinator phoned my donor and she gave her a stern talking to. I don't know what was said (don't want to know) but she phoned and started the transplant procedure up again.

Moosemom - this actually started last year October. To me it feels much longer.       

Richard : Yeah! for our cricket team.   :rofl;

Alet: I am also doing the crying thing- I really really hope that it can just go through without any incident. :flower;
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
galvo
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« Reply #19 on: February 22, 2011, 04:38:25 AM »
Great news, Des!
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Galvo
billybags
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« Reply #20 on: February 22, 2011, 06:14:37 AM »
 :bandance; :bandance; :bandance; :bandance; :bandance; :bandance; :bandance;
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carol1987
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« Reply #21 on: February 22, 2011, 06:41:20 AM »
 :cheer: :cheer: yay... sending good thoughts that everything stays on track!!!
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Diagnosed with  PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was  "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
Des
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« Reply #22 on: February 22, 2011, 09:34:23 PM »
 :flower;  :thx;
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Chris
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« Reply #23 on: February 23, 2011, 07:17:07 PM »
Sorry Des, just noticed I read it wrong from your reply.
 
Sorry I keep missing you in chat on FB. I have been on other websites or not seeing you have posted a message.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Des
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« Reply #24 on: February 27, 2011, 09:37:41 AM »
All went exceptionally well on Wednesday.   Both of us seeing the surgeon on 1st Mar. :cheer: He will inform us which of her kidneys he will remove.  :yahoo;
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
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