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Author Topic: Have a transplant date: March 29th, 2011  (Read 12968 times)
Sax-O-Trix
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« on: February 08, 2011, 02:31:08 PM »
I am scared silly.  My brother has been approved to be my donor :clap;  I realize that it's not a done deal until it's over, so I will not get too excited until I am on the other side of the transplant.  I need to find a good check list of things to take care of before and after the surgery...  If you can think of things I need to take care, please post your suggestions.  I AM ALL EARS!
« Last Edit: May 15, 2011, 06:29:10 PM by Sax-O-Trix » Logged
Preemptive transplant recipient, living donor (brother)- March 2011
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #1 on: February 08, 2011, 02:34:48 PM »
congrats on the transplant date. one thing I would do is think about how are you doing to pay your bills while you are in the hospital? I always like to pay things ahead of time when a surgery is coming up so I don't have to worry about it when recovering...
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
boswife
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us and fam easter 2013
« Reply #2 on: February 08, 2011, 04:53:47 PM »
HOw very exciiting!  :clap; and how wonderful of your brother to do this for you.  It is a wonderful thing and i will love to follow your journey through it all.  It's been so enspiring to hear of all these that have happened over these last months and i would hope that it gives you great confidence that thiss will be good for you too.  Im very happy to hear of your 'turn"  :flower;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
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« Reply #3 on: February 08, 2011, 05:17:05 PM »
Congrats as mentioned, paying bills is an important one. If you are not paying them online yet, look into it so you can scheadule a onetime automatic payment. By some food that you may want that you can't have now. Just buy a smal amount just incase the kidney takes a little time to wake up.
 
Then there is the usual clean house, teach kids to be vigilant to clean hands
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
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Guide Dog by end of July 2012
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Home with Guide dog - July 27, 2012
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Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Ang
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« Reply #4 on: February 08, 2011, 06:03:18 PM »
congrats on your tx date,hope it all goes well

keep us in the loop

 :thumbup; :yahoo; :2thumbsup; :clap;
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paris
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« Reply #5 on: February 08, 2011, 06:40:02 PM »
I am very excited for you.   :yahoo;    A couple of things I wish I had with me  -- chapstick, it is so dry in the hospital and my lips were very sore.  Also, some kind of hard candy to suck on -- although I was drinking nonstop, my mouth was always dry.   I had no time to prepare, so I just went with the basics.  Take your own pillow!   I stayed in the hospital gowns. You will have a drain in the incision and sometimes it leaks and stains what every you're wearing.  I didn't want to ruin cute pajamas!!  LOL   I never read or watched tv while there.  You are very busy with meds, walking, doctors rounds.  And then you just want to sleep the rest of the time!  (of course, they wake you every couple of hours!) It all went by very fast - and suddenly I was home.    Good luck. It really is exciting. 
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carol1987
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« Reply #6 on: February 09, 2011, 11:49:45 AM »
For the first nights at home you may want an incline pillow or a bunch of pillows so you don't have to lay flat and it makes it a bit easier to get out of bed.  (since you no longer have the hospital bed to help you get up a bit)
A small broom with a long handle dustpan is handy to have , i was able to move around and sweep a bit, but I could not bend down with a dustpan.

You may want to have a few Thank You cards to send out , for any gifts you may get.
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Diagnosed with  PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was  "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
sgcline
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« Reply #7 on: March 14, 2011, 12:51:01 PM »
Have some food in the freezer that you can just pop in the oven and fix or have someone lined up to help with cooking.  Someone to help with cleaning and laundry is helpful too.  I agree you won't be able to bend over and pick up anything off the floor.  I was restricted to lifting 10 pounds.  You will be drinking lots of fluids.  Water is great but when you have to drink so much of it, it's nice to have other clean liquids handy - no caffeine and no carbonation (that was my doctors rules).
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10/8/10 - Diagnosed with kidney failure.  Determined was born with small kidneys.
2/9/11 – Pre-emptive kidney transplant.  My sister was my living donor.
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« Reply #8 on: March 14, 2011, 01:22:14 PM »
No carbonation? Huh. they got Carl drinking Sprite as soon as possible!

It is different everywhere.

Wipe down the drawer pulls, phones, remote, handles on the fridge, etc, with diluted bleach water.

And give your brother a GREAT BIG HUG!  :cuddle;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
carol1987
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« Reply #9 on: March 14, 2011, 01:56:14 PM »
Quote from: sgcline on March 14, 2011, 12:51:01 PM
Have some food in the freezer that you can just pop in the oven and fix or have someone lined up to help with cooking.  Someone to help with cleaning and laundry is helpful too.  I agree you won't be able to bend over and pick up anything off the floor.  I was restricted to lifting 10 pounds.  You will be drinking lots of fluids.  Water is great but when you have to drink so much of it, it's nice to have other clean liquids handy - no caffeine and no carbonation (that was my doctors rules).

Yes, Prepared dinners is a great idea.. we were fortunate my Dear Niece called my friends and we had dinners cooked and brought to us for 3 weeks!!!
It was especially helpful since my DH donated his kidney on the same day I got mine (chain donation) so we were both laid up...
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Diagnosed with  PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was  "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
sgcline
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« Reply #10 on: March 14, 2011, 04:31:08 PM »
I'm allowed to have carbonated drinks.  It just doesn't count towards my 3+ liters of clear fluids I am supposed to drink each day to keep from being dehydrated. 

Doctor said the new kidney is not attached to your brain, so the "dumb kidney" doesn't know when to slow down.  It works constantly.  If you don't drink enough, you will get dehydrated.  I actually have to drink 4+ liters a day or the doctors threaten to give me IV fluids.

Dumb kidney - one of the funniest things when I was in the hospital.  My sister donated her kidney to me.  When the doctor said I had a dumb kidney my sister's comment was "Well, it was smart when I had it!"    :rofl;
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10/8/10 - Diagnosed with kidney failure.  Determined was born with small kidneys.
2/9/11 – Pre-emptive kidney transplant.  My sister was my living donor.
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #11 on: March 14, 2011, 05:47:44 PM »
saxy it is almost time!!!! so happy for you! good luck!

Quote from: sgcline on March 14, 2011, 04:31:08 PM
Dumb kidney - one of the funniest things when I was in the hospital.  My sister donated her kidney to me.  When the doctor said I had a dumb kidney my sister's comment was "Well, it was smart when I had it!"    :rofl;


I love this witty banter between siblings! It warms my heart!!  :rofl;   :clap; thanks for sharing!

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Sax-O-Trix
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« Reply #12 on: March 23, 2011, 06:49:59 AM »
I feel like I am either on my way to the guillotine or the lion's den...  PRAT testing yesterday was exhausting. 
Eleven viles of blood, two chest x-rays, BP/weight check, six different "physicals" and an EKG later, I guess I passed.  The neph told me I was the most straight forward case they have seen. Being preemptive, I don't yet have any of the complications that come with Stage 5 ESRD except for fatigue and even that isn't that bad.  I am counting my blessings.  My donor goes tomorrow for his final testing and our final crossmatching. 

I hope I can do this...  I wish more than anything there was a "cure" for ESRD, but know I should be thankful that we have relatively effective treatment options.  It could be worse,  it really could - I need to keep telling myself that.

« Last Edit: May 15, 2011, 06:30:52 PM by Sax-O-Trix » Logged
Preemptive transplant recipient, living donor (brother)- March 2011
okarol
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« Reply #13 on: March 23, 2011, 11:24:45 AM »
It's so much to do at the end, and it's stressful. But you're moving forward and that's the best news!
How has your brother felt about the care and information he has gotten from the Living Donor coordinator? I ask because so many centers are great but some do not communicate well and leave the donor feeling used or abandoned. I hope if he has any questions he'll check out Living Donors Online - there's a message forum like this one too, with support from people who have already donated. www.livingdonorsonline.org - there's also a check list of what to bring to the hospital.
Do you have someone to help you after the surgery? The biggest thing is that you cannot drive, and the clinic visits in the first 3 weeks are one of the biggest challenges, in my opinion.
Wow - it's coming up soon!  :yahoo;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Des
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« Reply #14 on: March 23, 2011, 11:40:40 PM »
 :yahoo; :yahoo;

I am so nervous for you. It is like a test run for me as I'm doing this soon as well.

Good luck and I really hope all goes exceptionally well.  :bandance;
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Sax-O-Trix
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« Reply #15 on: March 29, 2011, 01:53:54 AM »
Well, here I am getting ready to leave for the hospital for the scheduled transplant in about 10 mins.  I am not ready for this in so many ways and am having a hard time wrapping my head around the whole thing.  I can't really think right now, lol. 

Wish me luck!  I'll be back to IHD as soon as I get a chance.  Thank you all for sharing your CKD/Transplant experiences, you have helped me deal with this more than any other source :thx;
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Preemptive transplant recipient, living donor (brother)- March 2011
carol1987
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« Reply #16 on: March 29, 2011, 04:09:28 AM »
will be thinking of you Sax...  !!  :pray;
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Diagnosed with  PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was  "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
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« Reply #17 on: March 29, 2011, 04:40:18 AM »
 :guitar:    :grouphug;

Looking forward to hearing that all is well and you are thriving with your new kidney!

 :2thumbsup;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
paul.karen
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« Reply #18 on: March 29, 2011, 05:29:17 AM »
Wishing the best for you and your donor.
May all go smoothly for you both.......
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Curiosity killed the cat
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Operation for PD placement 7-14-09
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Started home dialysis using Baxter homechoice
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TexanSummer
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« Reply #19 on: March 29, 2011, 07:26:40 AM »
You & your family are in my thoughts & prayers today! I hope all goes well for you!!!!!

 :cheer:  :cheer:   :grouphug;  :grouphug;
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Wife of Charles --
   diagnosed with psoriasis in 2000?
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   found out birth defect of kidney valve was cause 2/28/11
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« Reply #20 on: March 29, 2011, 07:33:32 AM »
wonderful news...... we have so many who are getting live donors transplant.....good luck to you and keep us posted...
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
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MooseMom
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« Reply #21 on: March 29, 2011, 09:46:06 AM »
Quote from: tyefly on March 29, 2011, 07:33:32 AM
wonderful news...... we have so many who are getting live donors transplant.....good luck to you and keep us posted...

Maybe our turn will come soon!  You never know, I guess.  Oh, wouldn't it be wonderful to have just the chance to have a normal life again?

SOT, I am so glad you've had this miracle come into your life.  I know everything will go smoothly and you will be up and around soon, back to your old self.  I can't wait to hear how you will live your new life. 
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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« Reply #22 on: March 30, 2011, 12:12:58 AM »
Hey Sax,
I hope all went well and you'll be back soon to give us the news - best wishes for a successful transplant.  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Des
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« Reply #23 on: March 31, 2011, 12:14:44 AM »
Any news yet????

How did it go?? :flower;
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Jean
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« Reply #24 on: March 31, 2011, 02:09:33 AM »
Should be all over but the shouting by now. Hope everything went well for you and you are passing lots of liquid gold.
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One day at a time, thats all I can do.
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