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natnnnat
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« on: February 07, 2011, 03:09:24 AM »
My mother in law Marge passed away on Sunday 6th Feb.  She had bowel cancer, had numerous operations and radiation in the past two years, had an ileostomy bag which failed, and was in hospital since September last year.  She was moved into palliative care on December 31 2010.  She stayed cheerful through all that, till we were told that she was now 'stable' and had to be moved to a nursing home.  We were told that on 25th January.  She deteriorated rapidly for the next two weeks, but was discharged anyway.  She lasted almost three days at her new nursing home, where the staff were kind and looked after her with great care.  Wish she had spent the last four weeks there instead of at palliative care.  Its pretty ironic that when she was so frail and sick she was assessed as medically 'stable' and shifted out, at a time when she really did need to be 'stable' in terms of not having to move yet again.

Generally speaking the family are alright.  Its a lot easier when the person had suffered so much, to see the troubles end.  Plus my dad is coming down for the funeral, I love paternal visits so that will be good.  Gregory's strategy for forgetting his troubles is to rebuild his computer, which as happened quite a lot lately :-)
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
galvo
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« Reply #1 on: February 07, 2011, 04:03:07 AM »
May she rest in peace.
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Galvo
looneytunes
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Wishin' I was Fishin'
« Reply #2 on: February 07, 2011, 04:07:26 AM »
So sorry for your loss, NN.  It's hard to watch a loved one go through all that she went through.  Now,she can be at peace.   :grouphug;
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"The key to being patient is having something to do in the meantime" AU
monrein
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Might as well smile
« Reply #3 on: February 07, 2011, 04:33:22 AM »
May she now rest in peace. 
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
carol1987
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« Reply #4 on: February 07, 2011, 04:41:56 AM »
i am so sorry for your loss....  :grouphug;
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Diagnosed with  PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was  "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
jbeany
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Cattitude
« Reply #5 on: February 07, 2011, 08:49:03 AM »
 :grouphug;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
Poppylicious
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« Reply #6 on: February 07, 2011, 09:07:51 AM »
So sorry Nat. 

*huggles* for you and Gregory.
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
natnnnat
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« Reply #7 on: March 16, 2011, 04:52:39 AM »
Thanks for your messages.  Sorry I didn't reply sooner, life gets logistical sometimes.  But when you posted, I read them out to Gregory and he was glad to hear from you all.  I think he's slowly coming good, it was a big shock to him, even though it wasn't a surprise.  He was really close to his mother.  Especially after all those years on dialysis, he always said it was her who got him through it, she would help him with his PD especially, ordering all the supplies and helping him lay stuff out etc.  I think the nurses went crook at her once because he was meant to be doing it himself and they found out she was doing a lot for him.
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #8 on: March 16, 2011, 07:00:36 AM »
Rest in Peace...
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
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