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Author Topic: New Here Not To Dialysis  (Read 2009 times)
clardieri7
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« on: January 27, 2011, 09:58:57 AM »
Hi,

Nice to meet every one, hope to get a lot of  support here.
Going through a really rough time in my life. Just to give you the basics
I'm 23 been on D for 5 yrs this summer, and have been through 7 fistulas (most that didn't even work)
1 miracle fistula (I'll give you the details later) two catheters, and not on the transplant list.
All encouragement welcome  :grouphug;, please no negativity, I have enough of that in my life :stressed;   :'( 
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Dialysis Suks!! ~ May we all learn to deal
MooseMom
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« Reply #1 on: January 27, 2011, 12:32:03 PM »
Oh, you will get all of the encouragement you need from this wonderful group of people!  Welcome to IHD; we are here to help you in any way we can!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Rerun
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Going through life tied to a chair!
« Reply #2 on: January 27, 2011, 01:22:55 PM »
Hi Clar.... and welcome to IHD.  I'm so glad you found us.  I'm not really negative but if you don't have anything nice to say you can sit by me!!

            :guitar: 

Please feel free to come here and vent your frustrations.  Sounds like you have been through a lot for your young age.

Looking forward to getting to know you.

Rerun, Moderator     :welcomesign;
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rsudock
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will of the healthy makes up the fate of the sick.
« Reply #3 on: January 27, 2011, 03:12:04 PM »
hello Clar welcome to IHD!!!

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
RichardMEL
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« Reply #4 on: January 27, 2011, 10:07:26 PM »
Welcome clardieri7!!!

 :welcomesign;

No negative comments here - I'm boggling that you have had 7 fistulas... trying to figure out where they all went?!?!! Glad one is or was at least working for you at some point.

Hopefully we can help. It sounds like a very difficult 5+ years, specially for a young person!!!

Hang in there and come back often!

RichardMEL, Moderator
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
clardieri7
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« Reply #5 on: January 28, 2011, 10:22:12 AM »
Thank you all for welcoming me :clap; :yahoo; :cuddle;
Quote from: RichardMEL on January 27, 2011, 10:07:26 PM
Welcome clardieri7!!!

 :welcomesign;

No negative comments here - I'm boggling that you have had 7 fistulas... trying to figure out where they all went?!?!! Glad one is or was at least working for you at some point.

Hopefully we can help. It sounds like a very difficult 5+ years, specially for a young person!!!

Hang in there and come back often!

RichardMEL, Moderator
Sorry I meant 7 surgeries to fix two fistulas, 3 actual fistulas, two on my right, one on my left, lol sorry. All surgeries but one were all in my right arm. It's completely covered in scars from the wrist all the way up. Only one in my left   arm has worked, the doctor actually told me after the surgery that it wouldn't work, than a few months later it just started working on it's on! I also have FSGS. Here's a question: Do they know what caused your FSGS, because they never found a reason for mine?
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monrein
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Might as well smile
« Reply #6 on: January 28, 2011, 10:24:58 AM »
 :welcomesign; to IHD.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
clardieri7
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« Reply #7 on: January 28, 2011, 10:31:18 AM »
Thank you, you guys are sooo nice
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Cordelia
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« Reply #8 on: January 28, 2011, 03:59:31 PM »
Welcome! :grouphug; :welcomesign;
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
galvo
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« Reply #9 on: January 28, 2011, 08:29:16 PM »
G'day Clardieri7 and  :welcomesign;.
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Galvo
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