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Author Topic: My 33 year old friend Charmaine died the 24th Jan  (Read 4511 times)
Des
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« on: January 24, 2011, 09:57:10 PM »
Charmaine is a fellow D pasient at the unit and went to hospital for antibiotics. She was in a normal ward. She died in the early hours of yesterday morning. Diabetic coma. Her sugar went too low while she was sleeping and she never woke up.

My heart is breaking and the tears are streaming down my face as I sit here. She was going to get married in Feb.

Her fiance visited me at the unit last night and my chest was just aching with the hurt and sadness that he projected.

I am so sad.....  :'(

Why do bad things happen to good people? ??? :'(
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
galvo
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« Reply #1 on: January 24, 2011, 10:54:18 PM »
Terrible news, Des. My condolences.
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Galvo
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« Reply #2 on: January 25, 2011, 12:42:25 AM »
Des, I am so, so sorry.  It is so hard.  :grouphug;
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #3 on: January 25, 2011, 12:56:04 AM »
 :'( So young. It's tragic. I don't have any answers. So very sorry Des.  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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« Reply #4 on: January 25, 2011, 04:16:39 AM »
I just did a frantic search to find the name of your friend who joined IHD:  it was Charlene. Thank goodness it is not the same name.  But I'm really sorry to hear this Des.   :grouphug;
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
monrein
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« Reply #5 on: January 25, 2011, 05:21:29 AM »
 :grouphug;  Very sad Des.   :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Cordelia
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« Reply #6 on: January 25, 2011, 10:25:58 AM »
I'm so sorry to hear your sad news. :grouphug; My father passed away 25 years ago on the 24th of January, I still miss him so much 25 years later. :'( :(
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
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« Reply #7 on: January 25, 2011, 11:24:02 AM »
So sorry Des.

*huggles*
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
Darthvadar
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« Reply #8 on: January 25, 2011, 12:19:50 PM »
Oh no!...

How sad.... May she rest in peace...

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
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In da House.
« Reply #9 on: January 25, 2011, 02:47:08 PM »
R.I.P. God Bless.
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
Kay
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« Reply #10 on: January 25, 2011, 03:01:07 PM »
Dear Des,
My heart goes out to you.
Try to imagine your friend in a good place - we are everyone of us going there - she just went a little bit sooner.
Life is full of sorrow - take time to grieve and then keep busy. I lost both of my brothers when they were young-
one in a car accident another with a brain tumour.  I always imagine them in another room -  I truly believe we will
meet again.
With deepest condolences,
Kay
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Lillupie
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wedding 12-10-11

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« Reply #11 on: January 25, 2011, 03:21:38 PM »
I am so sorry to that.  It makes me sad to hear someone who passed away.

Lisa
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Check out my Facebook profile for CKD "Help Lisa Spread Awareness for Kidney Disease"

It is my utmost dream and desire to reach out to other kidney patients for them to know that they are not alone in this, also to reach out to those who one day have to go on dialysis though my book i am writing!

dx with lupus nephritis 5/99'
daughter born 11/2005
stage IV CKD 11/2005-6/2007
8/2007- PD cathater inserted
9/2007- revision of PD Cathater
10/2007 started PD
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« Reply #12 on: January 25, 2011, 05:51:25 PM »
Sorry to hear Des and from first hand knowledge, those diabetic lows are more dangerous in a hospital when I wasn't in the right ward. Luckily I was found on the floor by a aide walking by.
 
Hospital Idiots are universal.
 
Hoe you have had a better day.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
del
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« Reply #13 on: January 25, 2011, 06:10:36 PM »
 :cuddle; :cuddle;
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Don't take your organs to heaven.  Heaven knows we need them here.
boswife
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us and fam easter 2013
« Reply #14 on: January 25, 2011, 06:32:35 PM »
heartbreaking..  Im so sorry for your sadness, and that of her man.  Im so sorry  and send my prayers..
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
kitkatz
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« Reply #15 on: January 25, 2011, 06:56:05 PM »
That is so sad.  Prayers for her and for you!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Jean
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« Reply #16 on: January 26, 2011, 12:05:29 AM »
So sorry to hear this Des. Prayers for her and for you to help you thru this hard time.
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One day at a time, thats all I can do.
rsudock
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« Reply #17 on: January 26, 2011, 02:57:30 AM »
why do  bad things happen to good people?? I couldn't agree more...hang tough friend deepest sympathies!!!

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Des
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« Reply #18 on: January 27, 2011, 02:53:19 AM »
Thankyou so much my friends.

I have just returned from the funeral. It was the saddest thing EVER.

I am going to take a while to recover from this one.

Thanks again.

Lov
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Rerun
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« Reply #19 on: January 27, 2011, 04:39:19 AM »
Leave it to me to be pissed, but she was in the HOSPITAL.... and her blood sugar went too low?  Isn't anyone looking into that?  What was it SHIFT CHANGE????  Where were those people!  OMG!

What's done is done and my heart goes out to you and her family, but JESUS! 
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carol1987
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« Reply #20 on: January 27, 2011, 08:03:05 AM »
 :cuddle; I am so sorry......
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Diagnosed with  PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was  "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
Brightsky69
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« Reply #21 on: January 27, 2011, 08:38:50 AM »
 :'( So sorry....
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Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
ODAT
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« Reply #22 on: January 27, 2011, 01:12:06 PM »
I am sorry for your loss. Rerun has some valid questions for sure. My mom is diabetic and I often worry about this happening to her. How low is low? We monitor my mom but how fast can bs fall that this could happen if she was checked regularly especially in the hospital.

 :grouphug;
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As is your sort of mind, so is your sort of search: you will find what you desire.
Rerun
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Going through life tied to a chair!
« Reply #23 on: January 27, 2011, 01:25:16 PM »


bs = blood sugar   :secret;
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Chris
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« Reply #24 on: January 27, 2011, 03:34:23 PM »
Quote from: ODAT on January 27, 2011, 01:12:06 PM
I am sorry for your loss. Rerun has some valid questions for sure. My mom is diabetic and I often worry about this happening to her. How low is low? We monitor my mom but how fast can bs fall that this could happen if she was checked regularly especially in the hospital.

 :grouphug;
A hospitalmost of the time just checks the blood sugar before meals and then at bedtime. On has to complain that they do not feel right to get their blood sugar checked, but if you are familiar with hospital stays, that call light is never answered in a timely matter at times or they come in 20 minutes later or even forget you.
 
Is your mom type one or type two diabetic ODAT?
With insulin, there are different types which allow bs to drop / maintain at different rates. Medication for type two diabetics acts on the same principle but reacts at a different rate. BS can drop at different rates due to activity, food, stress, other meds, body weight,so everyone has differences. Some people need to check their lood sugar more than 4 times a day. I was up to 10 times a day. How low is low, people react differently to which number is to low for them, but below 80 is time to start monitoring more or get some food. normal bs range is 80 to 140 mg/dl according to the ADA.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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