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Author Topic: Wakey wakey !!!  (Read 1678 times)
KICKSTART
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« on: January 24, 2011, 03:50:31 PM »
Dont know what is going on today but my left leg just doesnt want to know ! Went to bed fine , no injuries , no strains, got up this morning and i cant put any weight on it ! I know i have issues with my PTH, my meds for it and now possibly my calcium levels , so im wondering is this partly to do with all those? Its a terrible pain in it from just below my hip to just above my knee , my thigh bone i guess, Luckily im going to see my neph tomorrow, so you can just call me hop-a-long for now !
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
Brightsky69
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« Reply #1 on: January 24, 2011, 04:05:24 PM »
I don't know...maybe your just getting old.   ;D I am kidding......just kidding. I kid because I love.   ;D ;D ;D
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Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
looneytunes
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« Reply #2 on: January 24, 2011, 06:51:19 PM »
Hey KS...(or hop-a-long)...let us know what your neph says! 
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"The key to being patient is having something to do in the meantime" AU
RightSide
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« Reply #3 on: January 24, 2011, 06:56:48 PM »
It could be calcium or PTH.

Before I got my PTH and calcium under control, my legs would sometimes give out under me, and I would end up collapsing on the floor.  Happened to me in the supermarket.  Happened to me in my own kitchen.

Or when I would try to get out of bed in the morning, I would just fall right over onto my bedroom floor.

Now that my PTH and calcium are back within range, these symptoms have disappeared.
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MakeMyDay
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« Reply #4 on: January 25, 2011, 11:13:10 AM »
Are you on long term prednisone by any chance? I was on high dose prednisone for a about a year and had the same kind of pain. It just continued to increase. I dint want to scare you, but after an MRI scan they found out that I had avascular necrosis on both the hips.

If you are not on prednisone it out be PTH/calcium.
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"So it's written, so it shall be done."
May 2010 : started HD
Dec 2010 : switched to PD
Jan 2011 : completed transplant eval @ Mayo Arizona
Nov 15th 2011 : Successful living donor transplant @ Mayo
Poppylicious
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« Reply #5 on: January 25, 2011, 11:16:17 AM »
Hey Hoppy, hope it was better today.  What did the neph say?

 ;D
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
KICKSTART
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« Reply #6 on: January 25, 2011, 02:38:35 PM »
Boing , boing ! Got up all fine , not a trace of pain ! Mentioned it today , neph said probably all the changes going on re PTH and calcium.
He said it certainly WASNT old age Brighty matey  :rofl;
Meeting went well , was very informative and FINALLY he gets it that i have a sense of humour !!!! :clap;
I saw my insides today which was most interesting and NO i didnt shove my head up my a****  :rofl; He showed me my CT scans and thankfully there are no changes to the growth in my left lung.
He has increased my Cinacalcet to 60 mg (gulp) and started me on Vit D .
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
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