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| | |-+  TIE OFF AV FISTULA IN GROIN
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Author Topic: TIE OFF AV FISTULA IN GROIN  (Read 2117 times)
huldafolk
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« on: January 17, 2011, 07:06:49 AM »

Hi; Just wanting to know if anyone has ever had an AV fistula tied off in the upper leg/groin area.?  I have had it in place for over 7 years. It has never been used for D , but rather was placed to increase blood flow through my IVC to prevent further blood clotting (Past constriction of IVC due to huge polycystic kidneys that were removed).  It has caused a back flow/congestion of venous flow in my leg causing ulcers and pain and engorgement of the leg.  The vascular surg. is going to tie it off on Jan 18,2011 in order to assist with the leg issues. but mainly because of future kidney transplant. He feels that the venous pressures in the area would be too great for the kidney graft to withstand. They have left me on Plavix and ASA ,but have taken me down off the coumadin for the procedure( I had a RCA heart stent placed 10 weeks ago). The anesthetist said that on review of my chart ,that I remain at risk for a heart attack due to the instrumentation of the heart vasculature 10 weeks ago, although the risk is lower now than it would be if the surg. was being done in the fist 4 to 6 weeks after the stent placement.
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1980 diagnosed with ADPKD
2003 EMERG. Bi-lateral nephrectomies IVC STENT
2003-now 3x/week 4hours each hemo at clinic
2003-2004 multiple complications /ileostomy
2004 reversal of ileostomy
2010 colostomy
2003 to now ,on transplant list(on and off due to complications)
8 years on list> said to be at top of list for transplant.
2010 RCA Heart STENT
2011 Restent RCA with Drug Eluting (70% closed in 3 months)
LAD stent with drug eluting (66mm long stent)
On transplant list again!!2011/3
huldafolk
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« Reply #1 on: January 30, 2011, 02:16:14 PM »

Just an update,  had the surg. and all went well for the start and immediate post op.  About 24 hours after the surg. I began to experience extreme leg pain from groin down to foot.  I could not get my leg into a comfortable position that would alleviate the pain.  It was so intense that I could not even touch the skin of my leg without causing pain . This lasted for about another 24 hours, then has subsided except for the area around the biggest/thickest vessel that was present down the inside of my leg.  It seemed to be pain related to the sudden closing off of the large vessels that formed over 7 years that I had the groin fistula in place.  I don't think even the vascular surgeon was expecting that I would have such extreme pain, as they wanted to stop my IV pain meds well before I was ready to have it stopped. I just switched over to oral hrdromorph which was barely adequate for the first and second post op day at home.  At least this is one step closer to the elusive transplant, and I won't have that kind of pain to deal with post transplant.  NOT DEAD YET!!!! :beer1;
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1980 diagnosed with ADPKD
2003 EMERG. Bi-lateral nephrectomies IVC STENT
2003-now 3x/week 4hours each hemo at clinic
2003-2004 multiple complications /ileostomy
2004 reversal of ileostomy
2010 colostomy
2003 to now ,on transplant list(on and off due to complications)
8 years on list> said to be at top of list for transplant.
2010 RCA Heart STENT
2011 Restent RCA with Drug Eluting (70% closed in 3 months)
LAD stent with drug eluting (66mm long stent)
On transplant list again!!2011/3
rsudock
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will of the healthy makes up the fate of the sick.

« Reply #2 on: January 30, 2011, 02:18:54 PM »

sorry you were in so much pain but glad surgery went well!

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
How about another decade of solid health?
Kay
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« Reply #3 on: January 30, 2011, 02:24:07 PM »

Sounds like you have had a lot to deal with over the years. Hope the pain has subsided now and that longed for transplant is on its way to you! Keep smiling :cuddle;
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karrye
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If Life give you Limes, make lemonade instead.

« Reply #4 on: January 31, 2011, 10:19:42 AM »

Congratulations on making it through the pain and the surgery.  You have a transplant in the future and this was one needed, if painful, step in a new and bright direction! :2thumbsup;
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Caregiver to husband:
Had surgery April 25, 2011 to bring fistula nearer to top of the skin.
Had staples removed from surgery on fistula May 3, 2011
Who started dialysis 1st week of December 2010.
Complete kidney failure November 30, 2010.
Surgery for 95% blockages in his right carotid and jugular February 22, 2011
Heart attack -- January 24, 2011
Chemotherapy -- September 2009 to April 2010
Colon Cancer -- April 2009
Colon removed --August 2009
Diagnosed with diabetes, Summer of 1996.
huldafolk
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« Reply #5 on: February 03, 2011, 07:01:33 AM »

Further update;  I have reduced my dry weight 1.5 kg since the fistula was tied off.  The legs appear very similar in size and volume.  I have had a sudden increase in blood pressures since the surg.  I am running at ~ 165/100 p 87 . I have a constant headache requiring increasing amounts of T3 and hydromorph.  I feel that the symptoms that I am having at dialysis treatments is an indication that the dry weight goal is too low.  There is no way that I can take off more fluid to get lower pressures, as the headache and full body sweats are making me have to stop treatments early .  I have to wonder if anything vascular has changed that has resulted in the increased blood pressures.  Post treatment prior to surg. I was ~ 125/70 ~ if not lower and crashing.  Any ideas??  I have neph and Vascular surg. in on the situation . Waiting for their replys.
Logged

1980 diagnosed with ADPKD
2003 EMERG. Bi-lateral nephrectomies IVC STENT
2003-now 3x/week 4hours each hemo at clinic
2003-2004 multiple complications /ileostomy
2004 reversal of ileostomy
2010 colostomy
2003 to now ,on transplant list(on and off due to complications)
8 years on list> said to be at top of list for transplant.
2010 RCA Heart STENT
2011 Restent RCA with Drug Eluting (70% closed in 3 months)
LAD stent with drug eluting (66mm long stent)
On transplant list again!!2011/3
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