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Author Topic: Transplant Tomorrow  (Read 4566 times)
Lins
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« on: January 05, 2011, 12:51:00 PM »
I have only really posted when I was new here and it has been a while since I have been on, but just wanted to let everyone know that my boyfriend is finally getting his transplant tomorrow from his dad. Thanks in advanced for all of the well wishes and prayers. You all have taught me a lot!
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carol1987
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« Reply #1 on: January 05, 2011, 12:58:50 PM »
I am having a Transplant tomorrow too!!
Good Luck to your boyfriend and his father!!!  :waving;
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Diagnosed with  PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was  "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
monrein
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Might as well smile
« Reply #2 on: January 05, 2011, 02:11:49 PM »
All the best to both transplantees and to their donors.  I hope you'll update us later about how things went.   :grouphug;   :flower;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Sax-O-Trix
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« Reply #3 on: January 05, 2011, 02:12:49 PM »
Good luck to all of you! 
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Preemptive transplant recipient, living donor (brother)- March 2011
Chris
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« Reply #4 on: January 05, 2011, 03:52:51 PM »
Good Luck to your boyfriend and to carol1987. :2thumbsup;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
phyl1215
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« Reply #5 on: January 05, 2011, 05:13:36 PM »
Good luck....update us when you can.  :thumbup;
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PD 3 yrs.
TX list 4 yrs.
Deceased donor PERFECT MATCH Kidney transplant July 8, 2012


Learning To Dance In The Rain
Ang
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« Reply #6 on: January 05, 2011, 08:27:47 PM »
good luck :yahoo;
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live  life  to  the  full  and you won't  die  wondering
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #7 on: January 05, 2011, 10:00:44 PM »
Best wishes are good thoughts going out to both recipient and donor! :grouphug;
We love to hear updates - whenever you can!
« Last Edit: January 06, 2011, 09:20:24 AM by okarol » Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
tyefly
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Posts: 2016


This will be me...... Next spring.... I earned it.
« Reply #8 on: January 05, 2011, 10:14:22 PM »
Wonderful news.... two people on the same thread     getting transplants.....   
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
Lins
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« Reply #9 on: January 06, 2011, 11:55:00 AM »
carol1987 CONGRATS!!!! Prayers comming your way. Hope everything is going well. Our donor just got out of surgery and is headed to recovery about 5 hours later....the "slushie maching" that they put the kidney on between the donor and recipient wasn't working so there was a delay. They said about another 2 1/2 hours before recipient gets out of surgery. Try to keep you all updated.
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #10 on: January 06, 2011, 01:26:30 PM »
 :clap; Thanks Lins! I pray all goes smoothly!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
paris
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« Reply #11 on: January 06, 2011, 04:35:39 PM »
This is all so exciting!  When I first joined IHD, it was very rare for someone to post that they had a transplant.  It seems like there have been an amazing amount of members transplanted in the past 6 months.  Every time is a miracle and it is always exciting.   Prayers for everyone. Keep us updated.    :2thumbsup;    :yahoo;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
natnnnat
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« Reply #12 on: January 06, 2011, 05:52:40 PM »
Good luck to all  :thumbup; and please let us know how things go for you Lins, and carol1987!
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
ChickenLittle56
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Chickenlittle and Maria
« Reply #13 on: January 06, 2011, 07:05:48 PM »
I am praying that everything is going to be ok with Lins and her boyfriend and also with carol1987.  :grouphug; 'n'  :pray; to everyone.
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As I was coming out the Nephrologist office, I thought the sky was falling.
Knew I was going on dialysis since November 1999.
Had a fistula put in January 2000.
Been on 4-1/2 hour dialysis since August 28, 2001. (They took out 35Kg that single week)

Maria hasbeen on hemodualysis since January, 2005
carol1987
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« Reply #14 on: January 18, 2011, 07:33:29 PM »
Everything is good so far with me.. I am waiting for the first blood work results since I have been home... and I am a bit nervous.... I will hear tomorrow!

My Donor and DH and everyone in our chain did well....

Hope all is well with Lins family......
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Diagnosed with  PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was  "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
kellyt
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« Reply #15 on: January 18, 2011, 07:34:25 PM »
 :2thumbsup; :2thumbsup; :2thumbsup;   :beer1; :beer1; :beer1;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
tyefly
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Posts: 2016


This will be me...... Next spring.... I earned it.
« Reply #16 on: January 18, 2011, 08:37:40 PM »
very good news.......   :grouphug;
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
breezysummerday
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Posts: 355
« Reply #17 on: January 18, 2011, 09:33:39 PM »


 :cheer: :cheer:

please update....the good and the bad....how are you preparing as a caregiver, etc?
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caregiver to Ray
renal failure 6/08
listed 7/09
~thank you epoman~
Chris
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Posts: 9219


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« Reply #18 on: January 18, 2011, 09:34:21 PM »
How did boyfriend do Lins?
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Des
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Posts: 2318
« Reply #19 on: January 18, 2011, 11:23:04 PM »
 :cheer: :yahoo;

LOVE THIS THREAD!!!! :clap; :cheer:
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Lins
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« Reply #20 on: January 28, 2011, 02:26:15 PM »
Everything has gone great! He was doing labs about 3 times a week because of a high potassium but it has now stayed at 5.2 so they are not repeating labs for a week! His mom came and stayed with us for about a week which was a huge help! I stayed at the hospital with him, one night in the ICU due to high potassium and a low oxygen saturation when he came out of surgery. Due to the low oxygen they had a hard time keeping the pain under control the first 24 hours, but did great once they got him on some different pain meds. Then he spent 3 more nights on a kidney transplant unit and asked me to stay, so having his mom staying at our house helped a ton! She was able to Clorox everything before we came home. He has done great since we got home! He has wonderful color, his hemoglobin is back up and he has tons of energy. He was also having a hard time sleeping before the transplant, was on Ambien CR and still only sleeping a couple hours a night, but hasn't had to take anything for sleep since he got home!!!! YAY!


A couple of things that the surgeon does differently than what we have heard most do.......he and his donor were a 5/6 match and so they did not do the "induction" or the IV immunosuppressant, and they also did not put the stent in the ureter. He has done great with both of these changes. He was really excited not to have the stent when he got out of surgery!

His creatinine has jumped around a bit but this morning it was down to 1.3 which is the lowest its been!


Thank you for all the thoughts and prayers!
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carol1987
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« Reply #21 on: January 28, 2011, 02:28:04 PM »
Fantastic Lins!!!!  SO happy to hear it!! :clap; :clap; :clap; :clap; :clap; :clap;
Logged
Diagnosed with  PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was  "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
tyefly
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Gender: Female
Posts: 2016


This will be me...... Next spring.... I earned it.
« Reply #22 on: January 28, 2011, 02:35:13 PM »
So exciting......    seems like we are seeing more and more transplants.....   

   Here's to a new and better life
Logged
IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
Kay
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Posts: 51
« Reply #23 on: January 28, 2011, 02:56:16 PM »
Super news.   :2thumbsup; Will pray for you both - saw a transplant on the telly the other week and transplanted kidney was producing urine within five minutes of being hooked up. Donor was up and about the very next day and recipient was walking along the beach 2 weeks later   -  well wishes coming your way!
Kay :clap;
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Cordelia
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Posts: 2012
« Reply #24 on: January 28, 2011, 04:03:04 PM »
That's awesome news! :yahoo; :2thumbsup; Thanks for sharing with us! :grouphug;
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
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