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AlohaBeth
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Topic: AlohaBeth (Read 19494 times)
paris
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AlohaBeth
«
on:
January 04, 2011, 03:14:55 PM »
Please keep her in your thoughts tomorrow. The doctor is sending her to get a sonogram tomorrow. He wants to skip the mammagram part and go straight to a sonogram. The insurance company approved it today and she goes tomorrow morning. She has an unusual condition and a history of breast cancer in the family (one aunt died, another aunt(sister of the one who died) was diagnosed and had a double mastectomy. Beth is unusually young, but the doctor isn't taking any chances. Not a lump - I think I wish it was. She is anxious. I will be going with her --- of course!! Some prayers
couldn't hurt! Thanks everyone.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
jbeany
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Cattitude
Re: AlohaBeth
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Reply #1 on:
January 04, 2011, 03:23:01 PM »
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"Asbestos Gelos" (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter". A term used by Homer for invincible laughter in the face of death and mortality.
Jean
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Re: AlohaBeth
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Reply #2 on:
January 04, 2011, 04:47:46 PM »
For sure!!!
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One day at a time, thats all I can do.
YLGuy
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Re: AlohaBeth
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Reply #3 on:
January 04, 2011, 04:59:56 PM »
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RichardMEL
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Re: AlohaBeth
«
Reply #4 on:
January 04, 2011, 05:05:01 PM »
Well of course AB is ALWAYS in my thoughts
but very much so for tomorrow. Best wishes for good results and nothing bad. Still it is good to get checked and if there IS something going on to know sooner rather than later is definitely the best way to go to jump on anything ASAP and treat it.
My best thoughts and wishes to you all!
Logged
3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!!
BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
breezysummerday
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Re: AlohaBeth
«
Reply #5 on:
January 04, 2011, 05:34:12 PM »
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caregiver to Ray
renal failure 6/08
listed 7/09
~thank you epoman~
okarol
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Photo is Jenna - after Disneyland - 1988
Re: AlohaBeth
«
Reply #6 on:
January 04, 2011, 06:35:12 PM »
Sweet Beth, sending her lots of good positive thoughts and prayers and love.
Take care Paris, I will be thinking of you both.
Logged
Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story --->
https://www.facebook.com/WantedKidneyDonor
Please watch her video:
http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock!
http://www.livingdonorsonline.org
-
News video:
http://www.youtube.com/watch?v=J-7KvgQDWpU
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten
Re: AlohaBeth
«
Reply #7 on:
January 04, 2011, 08:20:13 PM »
Sam and I will definitely make this a matter for prayers. Our caring thoughts are with Alohabeth (and you, Paris) at this time.
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"
I LOVE my IHD family!
monrein
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Might as well smile
Re: AlohaBeth
«
Reply #8 on:
January 05, 2011, 05:04:24 AM »
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
del
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del and willowtreewren meet
Re: AlohaBeth
«
Reply #9 on:
January 05, 2011, 06:08:25 AM »
Hope everything goes well.
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Don't take your organs to heaven. Heaven knows we need them here.
Darthvadar
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Re: AlohaBeth
«
Reply #10 on:
January 05, 2011, 07:10:04 AM »
Everything crossed for Beth!....
Please keep us informed....
Love....
Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
carol1987
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Re: AlohaBeth
«
Reply #11 on:
January 05, 2011, 08:28:39 AM »
Will be praying!
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Diagnosed with PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
thegrammalady
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Re: AlohaBeth
«
Reply #12 on:
January 05, 2011, 01:11:30 PM »
hugs and prayers
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s
......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.
Lead me not into temptation, I can find it myself.
Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.
Some mistakes are too much fun to only make once.
Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
Zach
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"Still crazy after all these years."
Re: AlohaBeth
«
Reply #13 on:
January 05, 2011, 01:47:40 PM »
All my love.
Logged
Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant. Not yet, anyway. Only decided to be listed on 11/9/06. Inactive at the moment.
I make films.
Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat 5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600; Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -): 2,450 Calories, 84 grams Protein/day.
"Living a life, not an apology."
MooseMom
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Re: AlohaBeth
«
Reply #14 on:
January 05, 2011, 05:02:36 PM »
You must all be such a bundle of nerves.
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"Eggs are so inadequate, don't you think? I mean, they ought to be able to become anything, but instead you always get a chicken. Or a duck. Or whatever they're programmed to be. You never get anything interesting, like regret, or the middle of last week."
Sluff
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Re: AlohaBeth
«
Reply #15 on:
January 05, 2011, 05:54:18 PM »
Praying for good results. She is very young. I know you won't be sleeping tonight but please rest and try not to worry. It may be nothing right now.
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rsudock
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will of the healthy makes up the fate of the sick.
Re: AlohaBeth
«
Reply #16 on:
January 05, 2011, 06:05:45 PM »
prayers and everthing crossed!!
xo,
R
Logged
Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Chris
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Re: AlohaBeth
«
Reply #17 on:
January 05, 2011, 07:24:59 PM »
Sory to hear, but I'm sure it will be alright. She has a lot of support.
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Diabetes - age 7
Neuropathy in legs age 10
Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
-glaucoma and surgery for that
-cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
- vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection
Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000
Kidney and Pancreas Transplant - December 3, 2000
Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures - Priceless
No two day's are the same, are they?
Rerun
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Going through life tied to a chair!
Re: AlohaBeth
«
Reply #18 on:
January 05, 2011, 07:44:05 PM »
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kitkatz
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Re: AlohaBeth
«
Reply #19 on:
January 06, 2011, 01:10:42 AM »
Best wished and prayers for you all.
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lifenotonthelist.com
Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5
Remember your present situation is not your final destination.
Take it one day, one hour, one minute, one second at a time.
"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Rerun
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Going through life tied to a chair!
Re: AlohaBeth
«
Reply #20 on:
January 06, 2011, 07:04:38 AM »
When will you know anything?
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okarol
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Photo is Jenna - after Disneyland - 1988
Re: AlohaBeth
«
Reply #21 on:
January 06, 2011, 08:39:29 AM »
I am sure paris will post soon but I just spotted an update on Alohabeths facebook and the news looks good!
Logged
Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story --->
https://www.facebook.com/WantedKidneyDonor
Please watch her video:
http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock!
http://www.livingdonorsonline.org
-
News video:
http://www.youtube.com/watch?v=J-7KvgQDWpU
paris
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Posts: 8859
Re: AlohaBeth
«
Reply #22 on:
January 06, 2011, 04:01:27 PM »
Thanks everyone. I think our family is getting more than their share of good news lately. She filled out the regular forms and at the top in red was "Call Dr with results -STAT". That did not calm her nerves. The tech was very good, and when she was done she called the radiologist in. He looked at everything then said, I want the doctor to look at this. Beth was near tears by then. Calling in a doctor is never a good thing!! But, he assured her it looked good and he didn't see anything that looked like cancer. She does have to go back to her doctor next week to figure out what is wrong. They threw the word "mrsa" around and then it was my turn to panic!! We both feel very confident that all is well. We aren't worrying about a thing.
After that, we picked up Melissa, kidnapped her for the day. Went out to lunch, went shopping, picked up Zeke and Paxton after school, went to meet Beth's new kitty, Elvis. Melissa and kids went home. Beth and I went to my house and played Rummikub and watched tv for 3 hours. It turned out to be a perfect day. I am grateful for all your good thoughts and prayers.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
thegrammalady
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Re: AlohaBeth
«
Reply #23 on:
January 06, 2011, 04:25:29 PM »
glad to hear everything seems to be looking good. now if they can just find out what's going on.
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s
......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.
Lead me not into temptation, I can find it myself.
Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.
Some mistakes are too much fun to only make once.
Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
del
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Posts: 2683
del and willowtreewren meet
Re: AlohaBeth
«
Reply #24 on:
January 06, 2011, 07:01:13 PM »
Logged
Don't take your organs to heaven. Heaven knows we need them here.
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