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Author Topic: Keep your fingers crossed please...  (Read 17280 times)
galvo
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« Reply #50 on: May 21, 2011, 12:02:29 AM »
They're crossed!
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Galvo
aharris2
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Volcan Pacaya, Guatemala
« Reply #51 on: May 21, 2011, 06:51:33 AM »
Quote from: rsudock on May 19, 2011, 08:03:17 PM
HI everybody my living donor has lost all the weight!!! so tomorrow he goes for final testing and to meet another neph. Let us hope that this is the final thing and everything works out!!!

Give that living donor a pat on the back! That directive to lose weight so frequently seems to be an insurmountable brick wall, but your friend did it for you.

Best of luck rsudock, I hope everything goes your way!
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #52 on: May 21, 2011, 04:05:10 PM »
A text message from my living donor's wife.....

"Nothing but good news today!!! :)  Weigth super, blood pressure normal. Will get blood test results for sugar back early next week. He has to wear a blood pressure monitor for 24 hours starting tomorrow. That will be last step of evaluation. She said we will know results early next week and will  hopefully start to schedule surgery if test results and blood pressure results are ok. Which they said should be with that much weight loss. We love u! :) We put in a word 4 early summer surgery date. would that work for you? Though it depends on surgeon's availability."

My reply - "Any time is good for me. My schedule is all CLEAR!!!
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #53 on: June 02, 2011, 12:11:39 PM »
Surgery date is June 21st!!! Until I am on the table I won't believe it! Preadmission testing on June 14th.

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
willowtreewren
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My two beautifull granddaughters

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« Reply #54 on: June 02, 2011, 12:56:10 PM »
OH, good news!!!!

 :cheer: :cheer: :cheer:

And happy dance!

 :bandance; :bandance; :bandance;

The time will fly by!

Congratulations!

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
CHeatherS
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« Reply #55 on: June 02, 2011, 01:53:44 PM »
Holy Cow!!!!!!!!!!!!!!!!!!!  This is very very very awesome!!!!!!  I will be a month behind you, have a date (all the way down in Seattle, I am in Alaska) for Aug 22nd!  I am praying for you, be healthy, breathe, take care of yourself.  You are leading the way, I am right behind you!!!!!!  HUGS!
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #56 on: June 02, 2011, 03:32:48 PM »
Quote from: rsudock on June 02, 2011, 12:11:39 PM
Surgery date is June 21st!!! Until I am on the table I won't believe it! Preadmission testing on June 14th.

xo,
R

Wow!  :yahoo;
I hope everything moves forward! Best of luck!  :cheer:
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
YLGuy
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« Reply #57 on: June 02, 2011, 03:44:03 PM »
Wow! Such great news.  :2thumbsup;
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natnnnat
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« Reply #58 on: June 02, 2011, 05:58:54 PM »
 :clap;  :grouphug;  :flower; Such a nerve wracking time.
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
AguynamedKim
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« Reply #59 on: June 02, 2011, 08:29:59 PM »
What a fantastic development.  Sending you my best wishes!
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Pre-dialysis - Intro: http://ihatedialysis.com/forum/index.php?topic=20344.0
galvo
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« Reply #60 on: June 02, 2011, 09:40:22 PM »
Great news!
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Galvo
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #61 on: June 04, 2011, 05:05:24 PM »
Thanks for the love and support! You all mean so much to me!

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Des
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« Reply #62 on: June 08, 2011, 01:35:14 AM »
 :yahoo; AWSOME news!!!!
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Sax-O-Trix
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« Reply #63 on: June 08, 2011, 03:27:23 AM »
GREAT NEWS :clap; :yahoo; :2thumbsup; :bandance;
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Preemptive transplant recipient, living donor (brother)- March 2011
Marina
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God Bless my donor family!! :)
« Reply #64 on: June 08, 2011, 09:17:53 AM »
  :bandance;  I'M  SO  HAPPY  FOR YOU!!!!!!!!!!!!!

I  wish you  the  best  of  luck   and  a  speedy  recovery  for you  both!!    :pray; :pray; :pray; :pray;   
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"Anything is possible, if  you  BELIEVE....."  ~~~Joel  Osteen

"Yesterday is history, Tomorrow is a mystery, Today is a gift..... That is why it is called the present"

*************************************************
 Nov 1979 ~ Diabetes 
Apr. 2004- Nov 2010 ~ CAPD
Nov 9, 2010 ~  Received the  THE  GIFT OF LIFE at 
California Pacific  Medical  center  (CPMC)  in San  Francisco,  CA
MooseMom
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« Reply #65 on: June 08, 2011, 01:08:04 PM »
Oh, that is just the best news!!  I am thrilled for you and can't wait to hear you tell us that surgery went well!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
woodsman
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« Reply #66 on: June 08, 2011, 04:23:00 PM »
awesome wishing you al;l the best!!!!! :bandance;
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rsudock
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will of the healthy makes up the fate of the sick.
« Reply #67 on: June 11, 2011, 11:39:09 AM »
4 more dialysis sessions!!!! Tuesday is preadmission testing let's hope this final hurdle is conquered!! Aaron told me today, "You know if for some reason the transplant doesn't work out, dialysis isn't the end of your life." 

He knows me too well.....

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Cordelia
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« Reply #68 on: June 11, 2011, 12:06:55 PM »
Good luck! :grouphug;  :clap;  :bandance;  I'm so excited for you!!!   :bandance;  I hope everything goes really well!  :2thumbsup;   Please keep us updated!   :grouphug;





Edited: fixed smiley error - paris, Moderator
« Last Edit: June 11, 2011, 06:04:01 PM by paris » Logged
Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #69 on: July 05, 2011, 12:13:52 AM »
Wow after reading this 2 weeks after transplant I realize how lucky I am...first I had the most amazing support from my IHD family. Thank you to everyone who followed my story and encouraged me to keep moving forward!
Another thing I have realized is that getting a transplant requires vigilance and determination. You would think finding the donor would be the hardest part but transplant hospitals have a ton of hoops to jump through. I am so grateful to Jeff and his wife Abby for their unwavering courage and commitment through this process. I remember talking to them and saying "the transplant program will try and let you fall through the cracks. They won't call and ask you about how u are doing with weight loss and follow up with the dates of tests. You will constantly have to stay on top of them...and thankfully they did. UH never called me or kept me in the loop. I had to call and leave messages and days later, maybe someone would call me back. It was frustrating to say the least...

Even my friends Des and Riki had some bumps in their transplant journeys as well b/c it is hard to get a transplant. Hospitals are just another hurdle to overcome...why does it have to be this way?

Whether or not I have 2 months, 2 years, or 2 decades of good health...I made it. I fought and won this time, for the time being...

Love to you all,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Riki
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« Reply #70 on: July 05, 2011, 11:42:01 AM »
I don't know why it has to be so hard... my first 2 transplants were so simple.. *L*

Mom had her appointment with the dietitian the other day, and she was told that what she was doing was what she should be doing.  We're both going to be doing more swimming, now that it's getting warmer.  Hopefully in another week or so, the water will be warm enough.  You go in now, and your toes turn blue. *L*

We also looked into a pool membership at one of the hotels in town.  Since we both love to swim, it's the perfect way for us to both lose a few pounds
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
Brightsky69
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« Reply #71 on: July 06, 2011, 06:27:06 AM »
rsudock - I am so happy for you!!!  :laugh: :2thumbsup; :clap;
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Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
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