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Author Topic: Gee, does this mean I get an award or something?  (Read 5248 times)
Desert Dancer
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« on: December 09, 2010, 01:20:31 PM »

Apparently I have tough skin.  No, I mean REALLY tough skin. As a bonus - go figure - I'm also apparently the world's fastest healer. (See the big 'H' on my chest?)  :waving;

I started creating my buttonholes while I was training, and training consisted of short daily hemo, five days a week. I think they sharp stuck my arterial 8 or 9 times - and the venous twelve times - before switching to blunts. While I was in training the blunts worked great, but since coming home it has gotten harder and harder to get them in. Finally - on Tuesday - I had to call off my treatment for the first time due to access problems; I dug around for almost a half-hour in my arterial buttonhole, got flashback and then couldn't advance the needle, not one smidge. All I could do was look at Andy and say, "It's my skin! I can't get it through my skin! What the hell am I supposed to do?"

The next day - Wednesday - I had my in-center doctor's appointment. At this point it had been 24 hours since I cannulated the arterial buttonhole, and 72 hours since I'd cannulated the venous buttonhole. Lo and behold, it wasn't my imagination: the venous buttonhole was GONE. G.O.N.E.   :waiting; It looked like a big pore or a tiny freckle, but either way it was obvious I wasn't getting a 15 gauge blunt in there. That meant I had to sharp stick it, and performing a sharp stick is the only thing I hadn't done to date. I was nervous as hell and certain I was going to screw it up and slice up my buttonhole track or infiltrate myself, but it went GREAT - until I got flashback. Then my skin just sucked up tight around the needle and wouldn't let it advance. One of my nurses took over and was visibly and verbally shocked at how much force she had to use to drive the sharp home. 

So the upshot of this whole episode is now I have to cannulate myself every single day (I dialyze every other day) just to keep my buttonholes from speed-healing and closing up on me, and sharp stick as necessary to open them back up. On the plus side, I am overwhelmingly relieved that I've now done a sharp stick successfully; the anxiety beforehand was - as usual - worse than the actual stick. And I just have to say: 'Just like a pierced ear', my foot.  :banghead;

I don't suppose there's any point to this little diatribe. I just want sympathy.  ;D
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
thegrammalady
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« Reply #1 on: December 09, 2010, 02:16:04 PM »

hugs and smypathy.   :cookie;
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
Desert Dancer
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« Reply #2 on: December 09, 2010, 03:16:00 PM »

Thanks, grammalady!  :'(
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
jbeany
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« Reply #3 on: December 09, 2010, 03:32:16 PM »

Whopping big needles aren't they?  And a sharp point does NOT make them look any prettier. 

How about some congrats for doing it, instead of just sympathy? (Although I do sympathize!) -  :bow; :bandance; :cheer: :2thumbsup; :yahoo; :clap;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

galvo
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« Reply #4 on: December 09, 2010, 03:59:55 PM »

 :cuddle;
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Galvo
chook
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« Reply #5 on: December 09, 2010, 04:59:45 PM »

DD, that all sounds dreadful! And you seemed to have had it all going so well. Good on you for doing the sharp stick so well (I have no real understanding of all this as I'm on PD but it seems to me that it has all become a tad harder for you)  :cuddle;
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Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
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Stoday
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« Reply #6 on: December 09, 2010, 05:11:29 PM »

An interesting post, DD.

A bit traumatic, but you won through in the end.

 :cuddle;
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Diagnosed stage 3 CKD May 2003
AV fistula placed June 2009
Started hemo July 2010
Heart Attacks June 2005; October 2010; July 2011
boswife
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us and fam easter 2013

« Reply #7 on: December 09, 2010, 05:16:41 PM »

Im definatly offering my sympathy as well  :'( and  :cuddle;  Once again, i have to add my experience with this 'sort' of thing. I did my hubbys first 'stick' on wednesday and dang, it seemed awful tough and i fear now that i wont be able to get it into his rolling vein either..  Sooooo, i ad my very heartfelt sympathy with a bit of experience of woe, and i ask for yours as well  ;)  Not really, this is your time to ??shine?? yeah, not quite shine, but your turn for heartfelt hugs.  Hope tomorrow brings a wonderfuly welcoming fistula, and it's easy and smooth!!!  (and for me too....lol, i cant help it! :( :(  )
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
okarol
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« Reply #8 on: December 09, 2010, 10:09:47 PM »


I want you to know that despite my neurotic fear of needles I read your whole post DD.
You have my deepest sympathy.  :cuddle; :cuddle; :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
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Desert Dancer
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« Reply #9 on: December 10, 2010, 06:51:06 AM »


jbeany, thank you! Yes, they are whopping and the sharp point tends to make them even more intimidating! I really am happy and relieved I could do the sharp stick, because I was really dreading it. Thanks for your congrats!

galvo, thanks for the hugs.

chook, I've decided to look at it as another opportunity to prove how badly I want this. I'd be delusional if I thought this would all be peachy from start to finish; I've just been lucky so far.

stoday, I'm not sure how much virtue there is in 'winning through' when it can be chalked up to simple pigheadedness!

boswife, of course you have my sympathy!  :cuddle; And the sharp stick really helped; now the blunts go in on the first try, like they should (for now, anyway).

okarol, I can't tell you how much I admire your sacrifice in the name of moral support. (Absolutely no sarcasm there.) Thank you so much!
« Last Edit: December 10, 2010, 09:32:48 AM by Desert Dancer » Logged

August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
del
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del and willowtreewren meet

« Reply #10 on: December 10, 2010, 10:59:07 AM »

DD, hubby does nocturnal home hemo and there have been several times when there has been no way a blunt needle was going in the vein and I have had to open it up with a sharp. He may go months and blunts work fine and then he may have to stick with sharps for a couple of treatments to get it opened up. 
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Don't take your organs to heaven.  Heaven knows we need them here.
Bruno
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« Reply #11 on: December 10, 2010, 08:49:21 PM »

Oh DD you have scared the living hell out of me! I don't know how you have the guts to sharp needle like that, I'm sure I wouldn't although I know I might have to one day. When I went home they gave me some 15g sharps in case I ran into trouble and I've stuck them at the back of the wardrobe and I pray every day...please God, don't make me use the sharps...and I'm not the slightest bit religious.
And every day, for ....sake! The best think about being at home is that you don't have to do it every day.
I'm so worried about my buttonholes and the fact that they might heal up that when I read your post I thought .....b...me, it's true, the little b.....s can disappear.
One a more enlightened note, I picked up an old Epoman post which suggested 'twirling' the needle while inserting. I found that helpful. I have also found taking the needle out and starting again helpful although I think you have to be careful doing that.
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brandi1leigh
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« Reply #12 on: December 10, 2010, 08:52:01 PM »

DD, hubby does nocturnal home hemo and there have been several times when there has been no way a blunt needle was going in the vein and I have had to open it up with a sharp. He may go months and blunts work fine and then he may have to stick with sharps for a couple of treatments to get it opened up.

I'm in center, but the same thing happens to me. I'll go for a couple of months using blunt needles, and then after a weekend, suddenly have to use sharps. My techs act like it's the most bizarre thing they've ever seen, so I'm glad to know it's not just me that heals fast.
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Desert Dancer
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« Reply #13 on: December 11, 2010, 09:03:36 AM »

del, I'm sorry you have to go through that, too; I'm glad it's only every couple of months.

Oh, bruno, I didn't mean to scare you! I did the same thing with my sharps - I stuck them under the bed and prayed I'd never have to use them. Well, I guess they ordered sharps for a reason. Trust me, it wasn't NEARLY as bad as the anticipation. I just went very, very, VERY slowly and it went in exactly the way it was supposed to go. I kind of grumbled about having to cannulate every day, but if it's a choice between doing it every day (and having the blunts go in on the first attempt, every time) OR doing it every other day (and having to dig around for 30 minutes per hole and resort to a sharp)... then I guess I'll do it every day. Either way, it's better than the alternative! And yes, both 'twirling' and starting over are quite helpful.

brandi1leigh, I'm also glad to know it's not just me! I was starting to feel like a bit of a freak.
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
rsudock
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will of the healthy makes up the fate of the sick.

« Reply #14 on: December 12, 2010, 01:48:05 AM »

DD you gave me hope that maybe I can stick myself someday...I am so scared!

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Desert Dancer
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« Reply #15 on: December 12, 2010, 09:33:35 AM »

rsudock, if I can do it, you can do it! Honestly, what I'm finding is 99% of the time the anticipation is 80 times worse than the actual __________ (fill in the blank). Just don't think about it until it's absolutely necessary or you'll make yourself crazy!  :urcrazy;
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
Bruno
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« Reply #16 on: December 13, 2010, 12:15:08 AM »

You are a true champion, Dancer Dancer and an inspiration as well.
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calypso
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« Reply #17 on: December 14, 2010, 03:41:28 PM »

You used a sharp on the buttonhole that healed up or started a new one?
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-Doctor Who, "Face of Evil"

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"Darkness cannot drive out darkness; only light can do that. Hate cannot drive out hate; only love can do that." -Martin Luther King Jr.
Desert Dancer
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« Reply #18 on: December 14, 2010, 03:47:00 PM »

bruno, I'm just plugging along a day at a time, best as I know how.

calypso, they had me go right into the buttonholes to open them up. That's why I was so nervous about it, because I was convinced I'd slice everything up and ruin it.
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
Bruno
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« Reply #19 on: December 15, 2010, 12:18:30 AM »

DD, I thought I heard you say that every day is better for the button holes? I'm 4 times a week and mostly every second day.
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Desert Dancer
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« Reply #20 on: December 15, 2010, 08:21:13 AM »

bruno, apparently for me cannulating every day is better than every other day. My buttonholes were fine while I was in-center, because I was doing short daily and had to cannulate every day. Once I came home, though, I began cannulating every other day and that appears to give my body enough time to heal these buttonholes. I lasted about one month at home before the venous buttonhole closed up completely, after a 72-hour span.

Andy made a good point, which I'd never taken into account: the fact that I'm younger (though not young) than the average dialysis patient so of course I'm going to heal more quickly. I don't think that's something I ever saw addressed in all my research on buttonholes.

I was supposed to cannulate last night (an off night) but was just too damned tired to wake myself up for it, so we'll see how it goes tonight.
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
thegrammalady
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« Reply #21 on: December 15, 2010, 11:13:55 AM »

i think you are more than brave. needles are the main reason i never became a nurse. i have enough trouble with the nurse at the center doing the needles, there is no way i would or ever could do them myself.
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s
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
Desert Dancer
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« Reply #22 on: December 15, 2010, 01:14:46 PM »

grammalady, I don't think it's so much bravery as the fact that I have always been able to do whatever is in front of me at the time. I have been known to deliberately back myself into corners in order to do things that had to be done.  As I said to stoday, it's just pigheadedness! I don't think I ever really gave the needles any thought, because I put blinders on and was only looking at outcomes. When it came time to cannulate, it was basically, "Oh, heck, needles. Darn, I forgot about that part of it. Oh, well, nothing I can do about it now, the moment is here."  If I had let myself dwell on them overmuch beforehand it might be a different story. 
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
Bruno
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« Reply #23 on: December 18, 2010, 01:09:11 AM »

Grammalady, needles are the worst part of dialysis, I'm terrified of them and have to pluck up my courage every time I pick them up.
What makes me do that is that I'm prepared to do almost any thing (including sticking 2 needles in my arm every other day) that lets me avoid the centre. They are lovely people there but I am determined to have some control over my life and once you are there you are dancing to someone else's tune.
I feel you have a little bit better grab on life's chances if you can make most of the call.
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brandi1leigh
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« Reply #24 on: December 18, 2010, 10:18:59 AM »


Andy made a good point, which I'd never taken into account: the fact that I'm younger (though not young) than the average dialysis patient so of course I'm going to heal more quickly. I don't think that's something I ever saw addressed in all my research on buttonholes.


That's pretty much the reason the center gave me for why my buttonholes seem to heal over weekends. The weird thing is that for me it doesn't happen all the time. I can go two or three months and my buttonholes will work like clockwork, then all of sudden I'll come in on a Monday and they'll be closed.

Good luck!
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