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Author Topic: Hi my name is Nicole  (Read 3303 times)
Nicolefish18
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« on: December 05, 2010, 07:24:18 PM »
Hi my name is Nicole. I am 23 almost 24! I live in Milwaukee, WI.  I was diagnosed with SLE Lupus when I was 19.  My kidneys failed May 11th, 2009.  I am currently doing home hemo which my boyfriend does for me.  I have a 6 year old son, Anthony, who is my life.  I work fulltime with a company I have been with for the last 4 years.  I found this website by accident but am really glad I found it.  I really do hate dialysis.  It has been a struggle for me, I have no one who can relate to me.  My transplant program sends meeting schedules, but its just so hard to make time for them between dialysis, work and my son.  So I am glad there is something like this website where I can go on when I have time to talk to people who know what I am going through. 

Nicole
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Nicole

God only gives you things you can handle.
boswife
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us and fam easter 2013
« Reply #1 on: December 05, 2010, 07:42:40 PM »
A big welcome :welcomesign; to you Nicole ..  We are geting quite a group here of young D people as well as our older D people of course.  Im so very glad you found your way here.  This is a nice active board and so much support and understanding..  Im caregiver to my hubby, so i give a big thumbs up  :2thumbsup; to your bf who is helping you out with it all.  We're just tomorrow going to begin my training to canulate him so we can then begin our NxStage training...  all the best
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Nicolefish18
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« Reply #2 on: December 05, 2010, 08:04:07 PM »
Well thank you.  Good luck with training.  I am very lucky to have him in my life.  He says he doesnt mind even though I feel like its a lot of stress added to him. 
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Nicole

God only gives you things you can handle.
boswife
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us and fam easter 2013
« Reply #3 on: December 05, 2010, 08:17:25 PM »
aww Nicole, what a beautiful picture.. I sure hope a transplant is in your near future.  You will sure have a great following here wishing you well with it.  We have some wonderful people here for support and can make this D crap a lot less awful.. 
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
galvo
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« Reply #4 on: December 05, 2010, 10:19:09 PM »
G'day Nicole and  :welcomesign;.
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Galvo
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« Reply #5 on: December 05, 2010, 11:39:44 PM »
hi nicole lovely to meet you  :welcomesign;
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Bruno
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« Reply #6 on: December 06, 2010, 03:58:53 AM »
Hello Nicole, nice to have you on board and hope we can help you.
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Poppylicious
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« Reply #7 on: December 06, 2010, 06:51:05 AM »
 :welcomesign; Nicole!  This is a fabulous place; there's oodles of support here ...

 ;D
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
monrein
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« Reply #8 on: December 06, 2010, 11:44:18 AM »
 :welcomesign; to IHD.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
MooseMom
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« Reply #9 on: December 06, 2010, 02:55:58 PM »
I'm 53, almost 54, so I'm young just like you, right?  Right? ;)  You have a lovely bf, a wonderful son and a job that you seem to like, so you have a lot of wonderful things in your life.  All of that makes D worth it, perhaps?  There are plenty of people here who have all sorts of experiences with dialysis/transplantation, and I'm sure everyone would be happy to hear from you!  Thanks for joining, and welcome!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Sax-O-Trix
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« Reply #10 on: December 06, 2010, 03:04:38 PM »
 :welcomesign; 
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Preemptive transplant recipient, living donor (brother)- March 2011
Rerun
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« Reply #11 on: December 06, 2010, 09:26:26 PM »
Hi Nicole and welcome to IHD.  I'm glad you found us by accident.  At least you found us and that is what counts.  Your boyfriend sounds like a keeper.  I hope you get your transplant soon.  That is really the way to go.  It is just another form of renal replacement therapy, but a pretty darn good one.

I hope you post here often.  Lots of people your age.  I've been doing renal replacement therapy for 25 years.  So I was 24 when I started.  Scary hua!  I'm alive and very active.

Hope you find what you are looking for here.

Rerun, Moderator          :welcomesign;
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looneytunes
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« Reply #12 on: December 08, 2010, 06:46:29 AM »
Hi Nicole and  :welcomesign;
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"The key to being patient is having something to do in the meantime" AU
Desert Dancer
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« Reply #13 on: December 11, 2010, 05:18:18 PM »
Hi, Nicole and  :welcomesign;
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #14 on: December 12, 2010, 12:33:26 AM »
Hello! Another young person new to dialysis!! So glad to meet you! I am 26 and have an awesome boyfriend too! I know from another post you are going to be getting engaged soon!!! Congrats that is awesome! Me and my boy have been dating for 4 years and have been looking at rings as well. I have been thinking about doing homedialysis but I am not sure if that would be too much for my boy he passes out at the sight of blood. :/ It is nice to know that their are men out their that can look past the illness and love the girl that's there.

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Nicolefish18
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« Reply #15 on: December 12, 2010, 08:39:12 AM »
Well that's awesome Rsudock!  I guess as much shit as we give men we are lucky to have the ones we do in our life.  I thought it would be weird doing hemo, but when its going on for some reason I don't think of it as my blood.  It's weird!  :lol; I didn't want a fistula so I still have a catheter.  I think if I had a fistula it would be harder for my BF to do my D.  My doctors keep pushing for a fistula but I am not budging. My catheter works great and my blood work is perfect, so as long as that keeps up, I get to keep it.  :clap;
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Nicole

God only gives you things you can handle.
rsudock
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« Reply #16 on: December 12, 2010, 09:06:05 AM »
Hey Nicole have you looked into the positive and negatives for having a catheter? I have heard that your blood gets cleansed better with a fistula, but I am not 100% sure. I have a fistula and I was really worried at first because I didn't want my arm to be all bumpy and lumpy, but I did button holes and my arm still looks pretty good. Me and my vanity!!  ::)

take care
xo
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Nicolefish18
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« Reply #17 on: December 12, 2010, 12:30:47 PM »
Yes I have looked into the pros and cons.  They told me that I would get better D if I had a fistula but my blood work is so good that my doctor said as long as it stays the way it is he won't push the issue anymore.  I still have make urine...so much I swear at times my kidneys work!  :) I know it sounds selfish but I just don't want to take the risk of having a huge lump in my arm at 23.  I guess I sort of feel like that is one thing I have control of.  Its silly, mom yells at me all the time and I know my BF wouldn't care but I care.  I told my doctor if I don't have a transplant when the 2 year mark hits that I would consider it.  I will definitely ask my doctor about button holes!
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Nicole

God only gives you things you can handle.
M3Riddler
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« Reply #18 on: December 12, 2010, 03:04:51 PM »
Quote from: Nicolefish18 on December 12, 2010, 12:30:47 PM
Yes I have looked into the pros and cons.  They told me that I would get better D if I had a fistula but my blood work is so good that my doctor said as long as it stays the way it is he won't push the issue anymore.  I still have make urine...so much I swear at times my kidneys work!  :) I know it sounds selfish but I just don't want to take the risk of having a huge lump in my arm at 23.  I guess I sort of feel like that is one thing I have control of.  Its silly, mom yells at me all the time and I know my BF wouldn't care but I care.  I told my doctor if I don't have a transplant when the 2 year mark hits that I would consider it.  I will definitely ask my doctor about button holes!

Hi Nicole...When you have  a fistula created, your not always going to get the "big bump" you are referring to. There are a few factors cause the to happen. Sometimes, when you have the fistula created, you cannot control how large the veins get as they mature. However, this does not always happen.
Sometimes aneurysms form from a couple of reasons including running too high of a blood flow. Longer slower dialysis is much better and you are less likely to develop the huge bumps when you run at a slower blood flow.
Also, now with the use of buttonholes using dull needles instead of using sharps all along your fistula will also help out.
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Peritoneal - 13 years
NxStage Since 4/06
3 Transplants
Admin of Dialysis Discussion Uncensored on Facebook  
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