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theflanintheface
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« on: November 28, 2010, 12:09:34 AM »
Hello everyone, I'm Cynthia, just turned 23 and live in Lima, Peru.

I was diagnosed when I was 15 and started hemodialysis the very next day, which was a shock for me and my family because I have always been a really healthy girl, anyway it was all going great but after a year I started to feel really ill so I started Peritoneal dialysis, and I got a transplant in 2005 from my dad!! I'm blessed with an amazing family that helped me get through this difficult time and thankfully it's all going really well. I am studying to become a photographer and I'm doing my thesis about scars :)

I just wanted to say hello before I start posting, and thank you for this forum, it's great! you all are very supportive and that is really appreciated!
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: November 28, 2010, 01:15:48 AM »

I love your profile photo! Welcome!

 :welcomesign;

okarol/admin
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Poppylicious
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« Reply #2 on: November 28, 2010, 02:55:08 AM »
 :welcomesign; Cynthia!

I love your screen name!

 ;D
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
HSM
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« Reply #3 on: November 28, 2010, 07:14:19 AM »
Hey Cynthia, welcome to these forums.

That's really young to have experienced renal failure. I'm glad you're doing something with your life. I'm 25 and rebuilding my life. If you ever feel down the members on this website are great and are just like family members. Keep your chin up, and if you need a lift, I'm addicted to positivity! Lol
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The only reason I attend dialysis is for the tea and the biscuits!

Dialysis wasn't the end, it was just the beginning!

It's about ability, NOT disability!
theflanintheface
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« Reply #4 on: November 28, 2010, 07:42:55 PM »
Thanks! I took that pic earlier this year as part of a project for school and my screen name is part of a Radiohead song, a band I love! I'm glad I can talk to people that has been through the same as me so we can talk whenever not only if i need a lift! :beer1;
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galvo
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« Reply #5 on: November 28, 2010, 09:48:24 PM »
G'day Cynthia and  :welcomesign;.
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Galvo
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This will be me...... Next spring.... I earned it.
« Reply #6 on: November 28, 2010, 09:53:20 PM »
Welcome.....   you will learn alot here.... I did..... This is a great site....   We love all....
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
monrein
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Might as well smile
« Reply #7 on: November 29, 2010, 04:25:02 AM »
 :welcomesign; Cynthia.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
cariad
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What's past is prologue
« Reply #8 on: November 29, 2010, 04:53:17 AM »
 :welcomesign; Cynthia!

My Spanish tutor was from Peru, as was my son's Spanish immersion teacher last year. Two of the sweetest people you could ever meet.

Your English is perfect - have you lived in Peru all your life?

Love the idea for your thesis and the pic is superb! Well done!
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
Rerun
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Going through life tied to a chair!
« Reply #9 on: November 29, 2010, 01:41:07 PM »
Hi Cynthia and welcome to IHD.  I'm so glad you found us.  You write really good English.  I'm assuming that in Peru the primary language is Spanish?

Best of luck with your transplant.  I hope you post often.

Rerun, Moderator    :welcomesign;
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looneytunes
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Wishin' I was Fishin'
« Reply #10 on: November 29, 2010, 02:32:34 PM »
Hi Cynthia, glad to have you join us.   :welcomesign;
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"The key to being patient is having something to do in the meantime" AU
theflanintheface
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« Reply #11 on: November 30, 2010, 07:20:37 AM »
Yeah, I think it's a great forum, I've been reading a lot of helpful stuff. I don't have enough time to post tho (final exams) but I will next week!

I had the oportunity to study in London for a month but I-ve always lived in Lima. Yes, we speak Spanish, it used to be Quechua maaany years ago but not many people knows it now.  I love studying languages and I've always liked English, luckily my school had a great program so I just practised since I was little and I also got a bit obsessed with British music.

Ohh, so you speak Spanish, that's great! And Peruvians are amazing people  ;D
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cariad
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What's past is prologue
« Reply #12 on: November 30, 2010, 05:55:32 PM »
Quote from: theflanintheface on November 30, 2010, 07:20:37 AM
Yeah, I think it's a great forum, I've been reading a lot of helpful stuff. I don't have enough time to post tho (final exams) but I will next week!

I had the oportunity to study in London for a month but I-ve always lived in Lima. Yes, we speak Spanish, it used to be Quechua maaany years ago but not many people knows it now.  I love studying languages and I've always liked English, luckily my school had a great program so I just practised since I was little and I also got a bit obsessed with British music.

Ohh, so you speak Spanish, that's great! And Peruvians are amazing people  ;D

I do speak a fair amount of Spanish, though I wish I had a way to practice more. My wonderful tutor moved to another state to start her PhD, and I really cannot afford the money or time anymore. I've wanted to move to Spain for ages, but that would not be practical for my husband who does not speak any Spanish.

Ah, yes, Quechua. Famed amongst anthropologists for being "the most difficult language in the world" to learn. I am told that it was chosen for the bar scene in Star Wars (the first film) because so few people know it that it could pass as an alien language. :laugh: It's amazing the trivia you pick up in anthropology.

I agree that every Peruvian I have met has been just lovely. It is a pleasure to meet another here on IHD. :)
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #13 on: December 12, 2010, 01:06:31 AM »
Welcome!

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
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