I Hate Dialysis Message Board
Welcome, Guest. Please login or register.
October 11, 2024, 01:28:57 PM

Login with username, password and session length
Search:     Advanced search
532606 Posts in 33561 Topics by 12678 Members
Latest Member: astrobridge
* Home Help Search Login Register
+  I Hate Dialysis Message Board
|-+  Dialysis Discussion
| |-+  Dialysis: General Discussion
| | |-+  what the heck
0 Members and 2 Guests are viewing this topic. « previous next »
Pages: [1] Go Down Print
Author Topic: what the heck  (Read 3035 times)
needlephobic
Full Member
***
Offline Offline

Gender: Male
Posts: 254


« on: November 20, 2010, 08:55:34 PM »

What the heck received a letter from the D center today here what it says.

This letter is to inform you  that your services with the social worker  are being modified. This social worker will no longer be able to meet with you on a weekly or bi-weekly basis for therapy/ counseling. Her job  description has been changed to financial counselor and now handles insurance issues.

Ok I am not the smartest person in the world but looks to me they don't care about the people they care for anymore specially if they have issues and trying to work them out they are in it for the money so now i got to go look else where for a counselor grrrrrrrrrrr they are pushing me out the door and fast
Logged
RichardMEL
Member for Life
******
Offline Offline

Gender: Male
Posts: 6154


« Reply #1 on: November 20, 2010, 09:04:09 PM »

wow! that seems pretty harsh. I think they owe you that if her role is changed for some reason that they (or she) needs to refer you to someone to continue the sessions you were having. i hope that letter isn't the only thing that happens. That's pretty bad I reckon. wow.

Sorry to read this.
Logged



3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
needlephobic
Full Member
***
Offline Offline

Gender: Male
Posts: 254


« Reply #2 on: November 20, 2010, 09:37:39 PM »

Yes it is Richard but  Should I have travel arrangements that need to be made or an insurance issue she will be more than happy to assist me but if I have issues like trust or needle phobic go somewhere else we just want your money we don't care about your mental well being what crap is next
Logged
Riki
Elite Member
*****
Offline Offline

Gender: Female
Posts: 3408


WWW
« Reply #3 on: November 20, 2010, 09:47:04 PM »

it seems to be the way things work in the States.. screw your health and well being, just give us your money..

I cried last night, watching an interview on Countdown of 2 people in Arizona who were denied their transplants because they were denied funding.  One of them was prepped for surgery when he was told.  One was waiting for a liver, and the other was waiting for a heart.  The one waiting for a heart is now inactive on the list because he doesn't have the funds to pay for the surgery.  From what I understand, and I don't understand a whole lot when it comes to the US and health care, there is a govt program that picks up the slack when people who have to pay for their own transplants, because they don't have insurance, weren't able to raise all of the money they needed.  Some govt think tank told the Arizona govt that liver, heart, and bone marrow transplants don't work, so people waiting for those transplants have to pay the whole ticket. They said it saved them almost $5Million, but it probably condemned 98 people to death.
Logged

Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
greg10
Full Member
***
Offline Offline

Gender: Male
Posts: 469


« Reply #4 on: November 21, 2010, 08:55:41 AM »

.interview on Countdown of 2 people in Arizona who were denied their transplants because they were denied funding. .. They said it saved them almost $5Million, but it probably condemned 98 people to death.
http://www.kpho.com/news/25811486/detail.html
Quote
Francisco Felix, the Hepatitis C patient who was denied the transplant, and other low-income patients in Arizona have been refused such necessary procedures after lawmakers cut funding for the agency, known as the Arizona Health Care Cost Containment System, or AHCCCS, CBS News affiliate KPHO-TV in Phoenix reports.

Starting Oct. 1, the agency began reversing its approval of organ transplants for 98 low-income patients, according to NPR. The abrupt change came from a series of budget-cutting measures taken by the Republican-controlled state legislature and signed into law by Gov. Jan Brewer.

Without funding from the state, Felix needed to raise $200,000 to pay for the liver transplant. The liver was directly donated to Felix from a family friend who died suddenly Monday. But because Felix's family could not raise enough to cover the cost of the operation, the liver went to another patient.

http://www.cbsnews.com/8301-504763_162-20023102-10391704.html
Logged

Newbie caretaker, so I may not know what I am talking about :)
Caretaker for my elderly father who has his first and current graft in March, 2010.
Previously in-center hemodialysis in national chain, now doing NxStage home dialysis training.
End of September 2010: after twelve days of training, we were asked to start dialyzing on our own at home, reluctantly, we agreed.
If you are on HD, did you know that Rapid fluid removal (UF = ultrafiltration) during dialysis is associated with cardiovascular morbidity?  http://ihatedialysis.com/forum/index.php?topic=20596
We follow a modified version: UF limit = (weight in kg)  *  10 ml/kg/hr * (130 - age)/100

How do you know you are getting sufficient hemodialysis?  Know your HDP!  Scribner, B. H. and D. G. Oreopoulos (2002). "The Hemodialysis Product (HDP): A Better Index of Dialysis Adequacy than Kt/V." Dialysis & Transplantation 31(1).   http://www.therenalnetwork.org/qi/resources/HDP.pdf
Riki
Elite Member
*****
Offline Offline

Gender: Female
Posts: 3408


WWW
« Reply #5 on: November 21, 2010, 01:58:12 PM »

yeah, Greg.. he was one of the people interviewed on Countdown the other night
Logged

Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
Slywalker
Sr. Member
****
Offline Offline

Gender: Female
Posts: 748


« Reply #6 on: November 21, 2010, 02:10:24 PM »

   I don't understand a whole lot when it comes to the US and health care,

No one understands a whole lot when it comes to US health care - unless you have good private insurance you are pretty much screwed from what I can tell.  For instance, Medicare may pay for a transplant - but they only pay for transplant medications for three years.  Now how stupid is that? 
US health care is one of my pet peeves.

Logged
Riki
Elite Member
*****
Offline Offline

Gender: Female
Posts: 3408


WWW
« Reply #7 on: November 21, 2010, 02:14:56 PM »

I wanted to move to the NYC area to be closer to my best friend and to try and kick start my career, but I"m not going until I know that my health needs will be met, and from the looks of things, it's not going to happen any time soon
Logged

Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
boswife
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2644


us and fam easter 2013

« Reply #8 on: November 21, 2010, 03:22:58 PM »

Thats terrably scarry to me.  I get scarred when they come up with 'cutback' type things because the workers can only do as their told if they want to keep their jobs.  Im sorry they're hitting you with something like that!! I tell ya, im more afraid of whats to come, that what it's been.  I have felt very safe in our insurance here in the US until this past year.
« Last Edit: November 21, 2010, 03:24:47 PM by boswife » Logged

im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Riki
Elite Member
*****
Offline Offline

Gender: Female
Posts: 3408


WWW
« Reply #9 on: November 21, 2010, 03:26:36 PM »

I love my universal health system. *L*  I doubt I'd get the same there as I do here, but I don't want to go if I"m not going to get insurance at all because of a preexisting condition
Logged

Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
Pages: [1] Go Up Print 
« previous next »
 

Powered by MySQL Powered by PHP SMF 2.0.17 | SMF © 2019, Simple Machines | Terms and Policies Valid XHTML 1.0! Valid CSS!