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Author Topic: Im back in the hospital again  (Read 5594 times)
gothiclovemonkey
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« on: November 19, 2010, 11:00:54 AM »
I tried to put it off, i at least made it thru my bday!, I was admitted yesterday, Ive had some tests done, so far we arent sure whats up, They said they think it could be Blood Clots in my lungs, or Emphysema, they did some more tests today. Maybe ill find out something. I was told I am not going home tonight either.
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MooseMom
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« Reply #1 on: November 19, 2010, 11:34:13 AM »
Oh no!  Really?  I sure hate to hear this.  When do you think you will know something?  Please keep us posted, OK?  I hope you can get out of there soon!  I'm so sorry that you are not well. :cuddle;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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« Reply #2 on: November 19, 2010, 11:41:56 AM »
Oh gosh. 

Many *huggles* ... get well soon!

And also, consider yourself *scolded* for putting it off!
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
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sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
gothiclovemonkey
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« Reply #3 on: November 19, 2010, 12:43:53 PM »
I didnt want to spend my bday in the hospital :P

A doctor just came in and said something about the test being 80% neg, 20% possitive, for clots... what???????
So then he says we ae going to try to do this test, that they told me last night I shouldnt have because of the kidney failure.... because the dye cant be peed out.... oooook....
they confuse me.
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MooseMom
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« Reply #4 on: November 19, 2010, 12:46:05 PM »
Quote from: gothiclovemonkey on November 19, 2010, 12:43:53 PM
they confuse me.

That's their job... ::)
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
boswife
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us and fam easter 2013
« Reply #5 on: November 19, 2010, 01:29:45 PM »
Darn it!!  I hate to hear this but i am glad they're recognizing that dyes are bad for the kidneys.  Hubbys didnt seem to think about that when they shot dye through him a few years back while his kidneys were still holding out and unfortunatly, i hadnt known that at the time so failed him on that one  :'(  Anyway, im so sorry your there and precious son is at home missing you..  Im sure that's the hardest part of all of this.  I hope and pray your outcome is favorable, and you'll be out soon and feeling better..................  And,  :birthday;  Hope you enjoyed it and it was special for you..
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
natnnnat
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« Reply #6 on: November 19, 2010, 05:26:37 PM »
 :birthday;
Hope you get diagnosed soon and they can start you on the road to recovery.
Get well soon Gothic.
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
rsudock
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« Reply #7 on: November 19, 2010, 05:35:32 PM »
Hope the doctors get it together and figure out how to treat what's ailing you! hope you are on the mend soon!

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
carol1987
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« Reply #8 on: November 19, 2010, 05:38:43 PM »
sending good wishes  to you!!!
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Diagnosed with  PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was  "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
gothiclovemonkey
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« Reply #9 on: November 19, 2010, 06:23:29 PM »
thank you fo the get wells and happy bdays :)
The worst part is missing my son, and i hear he was quite the little brat tonight, in my absence. I feel so terrible about it.
I wish I could breathe, and know why i cant breathe! They did that scan with the dye, havent got the results yet.
I did however get told they want to take my parathyroid gland out after thanksgiving.
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kellyt
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« Reply #10 on: November 19, 2010, 07:04:55 PM »
Sorry to hear this news.  I hope you get better reall soon so you can go home.  Keep your spirits up.   :cuddle;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
statesidela
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« Reply #11 on: November 19, 2010, 07:38:49 PM »
Hay there goth I have not spoken with you before but I am very sad to hear your are back in the old abattoir don't let em get you down I know everything will work out so you can back to your lil one

Big (((((((((((((HUGS))))))))))))

Bren
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Jean
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« Reply #12 on: November 20, 2010, 12:06:58 AM »
Sorry to hear you are sick gothic, hope you feel better soon and the Drs. get this sorted out quickly.
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One day at a time, thats all I can do.
billybags
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« Reply #13 on: November 20, 2010, 02:31:55 AM »
Thinking about you. Get well soon.
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galvo
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« Reply #14 on: November 20, 2010, 04:26:12 AM »
Yeah, gothy,  :birthday;. Get better real soon and back with your boy.
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Galvo
RichardMEL
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« Reply #15 on: November 20, 2010, 05:15:08 AM »
it sucks to be away from your family and home on your birthday - but worse to be stuck in the hospital undergoing tests and not being able to breathe properly. yikes. Hope they can sort you out really soon!!

 :grouphug; :grouphug; :grouphug; :grouphug; :grouphug;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
kitkatz
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« Reply #16 on: November 20, 2010, 12:43:53 PM »
Get out of that hospital quickly! I hope things go well and the tests are gentle.
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Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
gothiclovemonkey
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« Reply #17 on: November 20, 2010, 01:04:00 PM »
I just love when a dr wakes u up, talks really fast and walks away before u can even think....
I barely remember what he said... something like i have to get better control on my BP, and i have fluid on my heart, something about it not beating like it should....
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boswife
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us and fam easter 2013
« Reply #18 on: November 20, 2010, 01:20:52 PM »
Gosh that makes me mad!!  Thats why i nearly always stay with hubby when he goes in so as between the two of us, we MAY catch what the Dr woke us up to tell us...  So unreasonable..  I will say though, that the dr does stay around to put in his reports so if you can send a nurse, they usually can get the Dr to come back for an explanation...  geesh!!
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
looneytunes
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« Reply #19 on: November 20, 2010, 01:23:27 PM »
Aw Goth...that sucks.  Ask the nurse to tell you what the dr. wrote in your chart.  I'm wishing you a speedy recovery! 
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« Reply #20 on: November 27, 2010, 02:59:05 AM »
So GLM, what's the go?  You back home or what's the story?  Safe and well?  Have to have your legs chopped off?
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
gothiclovemonkey
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« Reply #21 on: November 27, 2010, 04:53:09 PM »
yikes I didnt realize i hadnt said whats up! (i could swear i did, maybe i didnt hit post????!!!??)

I am home now, i had pneumonia. He said when I first got to the hospital the xray didnt look as though i had it, but then they did a second one and it looks like i do... (what???????????????) and he said my heart is wearing out? I said What does this mean? He said its tired, its working too hard, because of the dialysis. I asked is there anything that can help this? He said ya, a transplant.... (crickets...... wtf?)

So ya, im a bit confused, one second i dont have pneumonia, then i do, and i have a sleepy heart, only cure is transplant? OOOOoooook?????????????
And I am having a parathyroidectomy at some point (i call monday to schedule)

Sorry that i fell off the planet with this post... not sure what happened....
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LISTED ACTIVE! 11/14/11 !!!
natnnnat
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« Reply #22 on: November 27, 2010, 05:06:51 PM »
This is what happened to Gregory: Pneumonia, then -ectomy.  But they were sniffing around his thyroid, not parathyroid.   And instead of tired heart, his kidney transplant was "a grotty old kidney".  He was a bit miffed about that so I told him to imagine an old second hand car, could run another 10 years but no mechanic would tell you that.

But but but:  why are you having a parathyroidectomy?  Would the pneomonia be affecting the rest of your system and they should deal with that first?  G's pneumonia affected his calcium and his kidney function, from what I could work out. 

And the most important part,  :cuddle;
I know you know this sucks.  It does, suck a lot.
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
gothiclovemonkey
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« Reply #23 on: November 27, 2010, 06:34:42 PM »
They are silly, i have told them countless times that I want Sensipar, and he prescribed it, and i guess my insurance wants him to contact him before they approve, ive told him this many many times, and he never does it, so now he tells me i need the parathyroidectomy.... i didnt want it at first, but now that ive been reading on here how great it worked out for all these folks, im wanting it! If it even alleviated an 1/8th of my pain, im in!
Ya, I asked why they didnt just do it whilest i was in the hospital, save me the trip, and finding childcare, but they said i had to be well, no pnuemonia etc...
 :cuddle; Thank you i needed that!
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"Imagine how important death must be to have a prerequisite such as life" Unknown
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LISTED ACTIVE! 11/14/11 !!!
billybags
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« Reply #24 on: November 28, 2010, 03:49:43 AM »
Goth, so they would rather do an operation instead of trying tablets, which do work.  :Kit n Stik; :Kit n Stik; :Kit n Stik; :Kit n Stik;
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