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Author Topic: Hello  (Read 3490 times)
AJW73
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« on: November 17, 2010, 11:49:17 AM »
My name is Alan. I'm 36 going on 37 in 10 days, And I've been on dialysis since September 13, 2002. I'm happy that I found this site since there are times that I just want to scream.   :stressed;

[EDIT] OOPS. I just realized that I posted in the wrong forum. Could someone move this to the proper forums? I feel like such a newb. :Kit n Stik;



Edited: Moved to proper section - okarol/admin
« Last Edit: November 17, 2010, 05:32:08 PM by okarol » Logged
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: November 17, 2010, 05:33:08 PM »
No worries! Welcome to the forum. 

 :welcomesign;

okarol/admin
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
galvo
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« Reply #2 on: November 17, 2010, 08:31:01 PM »
G'day Alan and  :welcomesign;.
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Galvo
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Going through life tied to a chair!
« Reply #3 on: November 18, 2010, 04:41:03 AM »
Hi Alan and welcome to IHD.  Where do you live?  Yes, come here to vent.  You will learn lots here too.

Rerun, Moderator          :welcomesign;
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Desert Dancer
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« Reply #4 on: November 18, 2010, 05:06:36 AM »
Hi, Alan!   :welcomesign; What kind of dialysis do you do?
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
Hazmat35
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« Reply #5 on: November 18, 2010, 05:27:16 AM »
Quote from: AJW73 on November 17, 2010, 11:49:17 AM
My name is Alan. I'm 36 going on 37 in 10 days, And I've been on dialysis since September 13, 2002. I'm happy that I found this site since there are times that I just want to scream.   :stressed;


Why on earth would you want to SCREAM!  Dialysis is such a great thing!   :sarcasm;

Welcome to IHD.   :cheer:



EDITED: Quote error fixed - Bajanne, Moderator
« Last Edit: November 19, 2010, 05:39:38 PM by Bajanne » Logged
Brother Passed away - 1990 - Liver Disease
Diagnosed w/ Polycystic Kidney Disease - 1998
Mother passed away - Feb. 1999 - PKD
Sister passed away - Feb. 2006 - PKD
AV Fistula / Upper Left Arm - September 2009
Father passed away - September 2009
In-Center Hemo Dialysis - April 2010
Broken Knee Cap - January 2015
Diagnosed w/ A-Fib October 2017
Surgery to repair Hiatal Hernia 2018
Multiple Fistula Grams / Angioplasty's since then!


Hating Dialysis since Day 1 and everyday since then!!!!  :)
peleroja
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I have 16 hats, all the same style!
« Reply #6 on: November 18, 2010, 08:35:21 AM »
Hi, Alan, and welcome to the group.  Also pre Happy Birthday!  Yeah, this is a great place to find information and friends.  Glad you joined!
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AJW73
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« Reply #7 on: November 18, 2010, 06:09:02 PM »


Quote from: Rerun on November 18, 2010, 04:41:03 AM
Where do you live?
Rerun, Moderator          :welcomesign;

I don't really like to give out my location, but I'll just say somewhere in New York state

Quote from: Desert Dancer on November 18, 2010, 05:06:36 AM
Hi, Alan!   :welcomesign; What kind of dialysis do you do?

Renal

Quote from: Hazmat35 on November 18, 2010, 05:27:16 AM
Why on earth would you want to SCREAM!  Dialysis is such a great thing!   :sarcasm;

Welcome to IHD.   :cheer:

 :rofl;

Thank you all for the warm welcome. I will post here as often as I can. :thx;
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Jean
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« Reply #8 on: November 19, 2010, 01:29:12 AM »
Hi and   :welcomesign;  to IHD.
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One day at a time, thats all I can do.
looneytunes
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Wishin' I was Fishin'
« Reply #9 on: November 19, 2010, 10:41:51 AM »
Hi Alan and welcome to the best place to scream on the web!   :rofl;
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"The key to being patient is having something to do in the meantime" AU
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #10 on: November 19, 2010, 05:42:25 PM »
Welcome to our community!  Glad you found this place - just the place for information, support and encouragement.  I look forward to hearing more from you.  When Rerun asked where you were from, just the state is what she wanted.  We like to know where our family members are located, because that is what we are- a family :grouphug; caring and sharing.




Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #11 on: November 19, 2010, 05:47:48 PM »
Hello friend!

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
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