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brianlara92
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« on: November 17, 2010, 10:45:12 AM »
hi, my name is timon, march of next year will make it two years i am on dialysis .its goin pretty fine for now,my main problem is gaining weight though.im from the west indies,trinidad to be exact
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Desert Dancer
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« Reply #1 on: November 17, 2010, 10:50:16 AM »
Hi, Timon and  :welcomesign; What kind of dialysis do you do?
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
Rerun
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Going through life tied to a chair!
« Reply #2 on: November 17, 2010, 04:19:22 PM »
Hi Timon and welcome to IHD.  I'm so glad you found us.   :clap;

Trinidad?  Interesting.  Tell us a little bit about your area and I'll go look it up.

I hope you enjoy this site.

Rerun, Moderator           :welcomesign;
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galvo
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« Reply #3 on: November 17, 2010, 08:32:05 PM »
G'day Timon and  :welcomesign;.
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Galvo
peleroja
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I have 16 hats, all the same style!
« Reply #4 on: November 18, 2010, 08:39:41 AM »
Hi, Timon, and welcome to the group.  If you're gaining weight, sounds like you may be on PD.  I found that you have to exercise every day to keep the weight down.  On hemo I can lose weight, but I hate hemo!
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brianlara92
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« Reply #5 on: November 18, 2010, 10:36:08 AM »
Quote from: Desert Dancer on November 17, 2010, 10:50:16 AM
Hi, Timon and  :welcomesign; What kind of dialysis do you do?
I am currently doing hemo, it seems like u now strarted as well
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brianlara92
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« Reply #6 on: November 18, 2010, 10:41:47 AM »
thanks 4 the warm welcome,i am currently doing hemo,seems u are new 2 this as well dessert dancer;hope its going fine with you.Iam not gaining weight at all ,i would love to,do you all have any tips on this.Trinidad is an island in the west indies,its a wonerful tourist destination u all could visit one day
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monrein
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Might as well smile
« Reply #7 on: November 18, 2010, 10:49:16 AM »
 :welcomesign; to IHD.  I'm from Jamaica but I live in Canada and have only ever done dialysis here.  I hope you'll ask any questions you have and we can learn from you too.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #8 on: November 19, 2010, 05:56:18 PM »
Welcome to our community, Timon!!  And a BIG welcome from a Bajan (living in the British Virgin Islands)!!  I have been waiting forever for people from the Caribbean to post!  I expect to hear much more from you.  You have found a great place for information, support and encouragement.  This is more than just a site - you are going to find that it is a real family  :grouphug;  Let us know how you are doing.  In the General Discussion section, I would like you to tell us what dialysis is like in Trinidad.  Looking forward to hearing from you.
[I see you are a Brian Lara fan!]




Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #9 on: November 19, 2010, 05:57:40 PM »
Welcome Timon!!
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
RichardMEL
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« Reply #10 on: November 20, 2010, 04:59:32 AM »
Brian Lara - love it - what a great cricketer!!!!

 :yahoo; :yahoo; :yahoo; :yahoo; :yahoo; :yahoo;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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