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Author Topic: Holiday Stress Help  (Read 3748 times)
Restorer
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« on: November 15, 2010, 01:11:31 PM »

So, Thanksgiving and Christmas are coming up. I'm going to be seeing a lot of extended family this year, and they're all going to be asking me how I'n doing, what's going on it my life, and things like that. It's hard for me to talk about all that in detail (especially when I get judging looks when they find out I'm not working or going to school), but it's good for them to know what's going on with me.

I was considering asking my neph for something to help get me through the holidays. I've noticed a lot of people here mentioning they're on things like Ativan or Xanax for anxiety. My neph was here at the dialysis unit when I came in, and he did his usual checking with me while I was being put on, but I didn't want to bring it up with 3 people standing around me.

Is it reasonable to ask my neph for a prescription for this when he sees me at the unit? I'd prefer to make an appointment, but there's no way I'd see him in time. He strikes me as kind of old-fashioned and I don't know if he'd be happy to prescribe something like that.
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- Matt - wasabiflux.org
- Dialysis Calculators

3/2007Kidney failure diagnosed5/2010In-center hemodialysis
8/2008Peritoneal catheter placed1/2012Upper arm fistula created
9/2008Peritoneal catheter replaced3/2012Started using fistula
9/2008Began CAPD4/2012Buttonholes created
3/2009Switched to CCPD w/ Newton IQ cycler            4/2012HD catheter removed
7/2009Switched to Liberty cycler            4/2018Transplanted at UCLA!
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« Reply #1 on: November 15, 2010, 03:21:51 PM »

Either that or a large bottle of whiskey ?  :rofl;
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thegrammalady
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« Reply #2 on: November 15, 2010, 03:34:53 PM »

 :rofl;  make mine a bottle of rum.  in 4 years i've never seen my neph outside of dialysis. even though i've switched to nocturnal he still comes to see me at the center in the early evening. if i need anything between visits i've been told to call, anytime day or night. my guess is if i wanted something it would come from my gp.
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rsudock
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« Reply #3 on: November 15, 2010, 04:35:41 PM »

if u need the pills to get you through then take'em.....we have so much heart ache already to deal with. too bad they can't shoot an anti-depressent right into the machine!!!

xo
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
boswife
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us and fam easter 2013

« Reply #4 on: November 15, 2010, 06:01:18 PM »

a good thing with Kiaser is you can do all that on the computer.  I often write to hubbys dr's and request a pill or?? even without going in for a diagnosis. They gave him oxazepam for anxiety for during treatments (helps him sleep too) and there was no face to face asking.  (i hate face to face or on the phone  anything so this is really good for me)  Does your insurance have anything like that??
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
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« Reply #5 on: November 15, 2010, 06:39:54 PM »

If you need help, definitely ask for it!

Also, for the holidays, if you get lots of questions, just be prepared.

Them: SO Restorer, how are you doing?
You: Fine, thanks.
Them: How's that kidney thing going?
You: Just about the same, thanks for asking.
Them: Are you going to school or working?
You: Yes and no. I am always open to new opportunities.
Them: What are you going to do with your life?
You: Hahaha well, if I told you, I'd have to kill you.
Them: So where are you living now?
You: Hey, did I see some pumpkin pie over there? Let's talk later.
 :rofl;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Restorer
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« Reply #6 on: November 16, 2010, 10:41:03 AM »

Either that or a large bottle of whiskey ?  :rofl;
For past family gatherings, I've considered having a couple drinks before or carrying a flask with me.  :rofl; That might actually be a good solution if 1) I could stand the taste of alcohol, 2) the smell of my breath didn't tip me off to everyone else, none of whom would be drinking, 3) alcohol didn't turn my stomach inside-out after a couple hours.  :banghead;

a good thing with Kiaser is you can do all that on the computer.  I often write to hubbys dr's and request a pill or?? even without going in for a diagnosis. They gave him oxazepam for anxiety for during treatments (helps him sleep too) and there was no face to face asking.  (i hate face to face or on the phone  anything so this is really good for me)  Does your insurance have anything like that??
I wish I could do that. That's the big thing that impresses me about Kaiser. I don't know how these things might work out, but if I ever have the choice in the future, I'd be seriously considering Kaiser.

But, my current doctors and insurance don't have anything like that. I can see my nephrologist at the dialysis unit for 90 seconds, or I can make an appointment over the phone. Neither is very appealing to me.

If you need help, definitely ask for it!

Also, for the holidays, if you get lots of questions, just be prepared.

Them: SO Restorer, how are you doing?
You: Fine, thanks.
Them: How's that kidney thing going?
You: Just about the same, thanks for asking.
Them: Are you going to school or working?
You: Yes and no. I am always open to new opportunities.
Them: What are you going to do with your life?
You: Hahaha well, if I told you, I'd have to kill you.
Them: So where are you living now?
You: Hey, did I see some pumpkin pie over there? Let's talk later.
 :rofl;
I understand where you're going with that, but it's really just avoiding the questions. I really want people to know what we go through - how else am I going to get them to volunteer to get tested? ::) - but it's hard to talk about.
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- Matt - wasabiflux.org
- Dialysis Calculators

3/2007Kidney failure diagnosed5/2010In-center hemodialysis
8/2008Peritoneal catheter placed1/2012Upper arm fistula created
9/2008Peritoneal catheter replaced3/2012Started using fistula
9/2008Began CAPD4/2012Buttonholes created
3/2009Switched to CCPD w/ Newton IQ cycler            4/2012HD catheter removed
7/2009Switched to Liberty cycler            4/2018Transplanted at UCLA!
Riki
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« Reply #7 on: November 16, 2010, 02:42:13 PM »

I'd say, go. If they ask, tell them the truth, if they don't, oh well.  My family doesn't bother to ask me about it.  They know, cuz my entire life is on Facebook, and so are they.  I really think that they just don't care.  You're afraid that they'll think you're slacking cuz you're not working or in school. Mine are the opposite.  They don't think I can do anything.  I love my mom, but when I told her I wanted to go to university, she laughed at me.
« Last Edit: November 16, 2010, 02:55:28 PM by Riki » Logged

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transplant - Oct 1, 1992- Apr 2001
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« Reply #8 on: November 16, 2010, 03:01:47 PM »

Vodka ? no smell and hardly any taste !   :2thumbsup;
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
casper2636
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« Reply #9 on: November 16, 2010, 03:08:38 PM »

My family doesn't ask either. I don't think it's that they don't care, I think it's that they are uncomfortable because they can't do anything to help me and my situation. That they are out of control, which drives them nuts and they can't tell me what I "should" do, because everything has been done.
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rsudock
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will of the healthy makes up the fate of the sick.

« Reply #10 on: November 16, 2010, 06:25:16 PM »

Mine are the opposite.  They don't think I can do anything.  I love my mom, but when I told her I wanted to go to university, she laughed at me.

Aw Riki my mom was like that...never supportive about my endeavors...but I have the last laugh b/c in my family even my extended family, I have the highest level of education. not trying to sound like a snob, but I do feel proud that even with kidney disease I busted my a** in school to get my degrees! Proving people wrong is a great motivator. Guess that's why quitting my job is really going to hit my self esteem and pride....
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Riki
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« Reply #11 on: November 16, 2010, 06:32:21 PM »

Mine are the opposite.  They don't think I can do anything.  I love my mom, but when I told her I wanted to go to university, she laughed at me.

Aw Riki my mom was like that...never supportive about my endeavors...but I have the last laugh b/c in my family even my extended family, I have the highest level of education. not trying to sound like a snob, but I do feel proud that even with kidney disease I busted my a** in school to get my degrees! Proving people wrong is a great motivator. Guess that's why quitting my job is really going to hit my self esteem and pride....

I'm not sure if she thought I was serious or not.  I was, but that was before I started HD.  I"m not sure if I can do it now, just because of time constraints.
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MooseMom
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« Reply #12 on: November 16, 2010, 07:09:04 PM »

Restorer, I don't mean to be intrusive, but may I ask what exactly you find hard to talk about and why?  I would have thought that talking about what you are going through may easily explain why you are not now working or going to school.  Are you really sure they are judging you?  Have they ever chastised you?  Is it possible that the more you talk about it, the more they will understand, and the easier these family occasions will become?
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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« Reply #13 on: November 16, 2010, 09:15:35 PM »

I liked Karol's answers.

I also like sitting on the couch and having the meal brought to me on a plate because I did not have to do anything for it. My family is understanding. All I am bringing to the Thanksgiving this year, a store bought dessert and my self and hubby.  Oh the glory of a family who knows I do not cook.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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« Reply #14 on: November 16, 2010, 09:33:32 PM »

Speaking of cooking, Restorer, I love to hear about what you've been cooking lately. And do you bring something special to holiday dinners?
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kitkatz
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« Reply #15 on: November 16, 2010, 09:48:24 PM »

I find running and screaming in circles relieves stress really well, then some chocolate, dark and rich!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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« Reply #16 on: November 17, 2010, 04:31:24 AM »

I'm with KitKatz.. running and screaming in circles IS the way to go...Just give me a big 'ole slab of pumpkin pie, drowning in whipped cream and I'll be just fine!
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MooseMom
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« Reply #17 on: November 17, 2010, 11:46:35 AM »

This will be my first Thanksgiving spent with extended family, and I am curious as to how it's going to go.  In the past, I either spent it with just my parents or not at all (because I was living in a country that didn't celebrate this particular holiday).  Lately, I've spent it with just my husband.  This will also be the first time I've seen lots of my family since I've been on the transplant list, so I will be curious to see if they treat me any differently (I don't think they will, and that's fine.  Most of them are too old to think about donation, but the ones that are closer to my age...well, that should be interesting.  Their own mother was on D, so it's not like they don't know anything about what I'm facing.).

Maybe I should take my Xanax with me!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
RightSide
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« Reply #18 on: November 17, 2010, 04:09:44 PM »

Try vigorous aerobic exercise.  It works for me.  Boosts my mood, gives me a sense of well-being.




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