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Author Topic: Must-read article series  (Read 1696 times)
LoneHighway
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« on: November 10, 2010, 09:00:23 PM »
The website propublica.org is running a lengthy series of articles about dialysis, it's current state, who's paying, outcome comparisons, and much more.

okarol has copied over the main article in the News section, but I think everyone here would enjoy seeing all the information they have on the website.

Here's a link directly to the main dialysis story, and other associated stories can be found from there.

http://www.propublica.org/topic/diagnosing-dialysis
« Last Edit: November 10, 2010, 09:01:31 PM by LoneHighway » Logged
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: November 10, 2010, 09:07:34 PM »
Does ANYBODY read the News Article Section anyway???  :o
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Bruno
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« Reply #2 on: November 10, 2010, 09:28:17 PM »
If it's International, I do...if it's relative to the USA health system...usually no.
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okarol
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« Reply #3 on: November 10, 2010, 09:31:21 PM »
The ProPublica series is truly groundbreaking reporting and I encourage everyone to follow it.

They also have a link where you can sign up if you want to be notified when ProPublica releases data comparing dialysis facilities. Sign up here for an e-mail alert. http://org2.democracyinaction.org/o/6253/p/salsa/web/common/public/signup?signup_page_KEY=2845
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Stacy Without An E
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« Reply #4 on: November 11, 2010, 12:57:06 PM »
Karol, I want you to know that the News Section is one of my favorite parts of IHD.  I just don't comment very often.  So your diligent work is greatly appreciated.
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Stacy Without An E

1st Kidney Transplant: May 1983
2nd Kidney Transplant: January 1996
3rd Kidney Transplant: Any day now.

The Adventures of Stacy Without An E
stacywithoutane.blogspot.com

Dialysis.  Two needles.  One machine.  No compassion.
Meinuk
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« Reply #5 on: November 11, 2010, 01:01:06 PM »
Karol, I read the News Section   ;)
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Research Dialysis Units:  http://projects.propublica.org/dialysis/

52 with PKD
deceased donor transplant 11/2/08
nxstage 10/07 - 11/08;  30LS/S; 20LT/W/R  @450
temp. permcath:  inserted 5/07 - removed 7/19/07
in-center hemo:  m/w/f 1/12/07
list: 6/05
a/v fistula: 5/05
NxStage training diary post (10/07):  http://ihatedialysis.com/forum/index.php?topic=5229.0
Newspaper article: Me dialyzing alone:  http://ihatedialysis.com/forum/index.php?topic=7332.0
Transplant post 11/08):  http://ihatedialysis.com/forum/index.php?topic=10893.msg187492#msg187492
Fistula removal post (7/10): http://ihatedialysis.com/forum/index.php?topic=18735.msg324217#msg324217
Post Transplant Skin Cancer (2/14): http://ihatedialysis.com/forum/index.php?topic=30659.msg476547#msg476547

“To doubt everything or to believe everything are two equally convenient solutions; both dispense with the necessity of thought.” - Henri Poincare
Desert Dancer
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« Reply #6 on: November 11, 2010, 01:01:18 PM »
I ALWAYS read the news section, okarol.  Particularly this one, since I was interviewed for it!
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
okarol
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« Reply #7 on: November 11, 2010, 01:07:36 PM »
Gee thanks Stacy, Meinuk and Desert Dancer!  :-* :-* :-*

Hey, I just got through reading the 52 comments on the ProPublica news story
"In Dialysis, Life-Saving Care at Great Risk and Cost"
http://www.propublica.org/article/in-dialysis-life-saving-care-at-great-risk-and-cost

The remarks are all over the board from doctors who say patients are non-compliant and that's why it's so bad, while another doc says patients are mistreated, to others saying it's not bad at all and everything is peachy, to providers saying it's the patients own fault for being poor, or obese and ignoring doctors, to patients sharing their stories and so it goes. If you have a few minutes - please read it, and add a comment. The discussion is really eye opening.

There is also a link if you want to "Share Your Story" --
Become a Source
Are you on dialysis or know someone who is?
Help journalists around the country by sharing your stories and experiences.
Go to: http://www.propublica.org/article/dialysis-inform-our-investigations
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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