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Author Topic: 2 year transplant celebration a success!  (Read 3287 times)
kellyt
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« on: November 06, 2010, 10:35:45 AM »
What a great time we had.  The weather was cold, but not severely cold.  There was no wind, so we got to have the huge bonfire.  Etta cried when we announced Etta's Gift.  She was truly grateful and super excited.  So is her husband.  Everyone there thought that starting a non-profit in her honor was a great way to say "Thank You".  I can't wait to get moving on this.  Just so all of you know where we are in the process, we have all the paperwork signed and returned to the Atty and now he sends everything in for our "exempt status".  He said this can take anywhere from two months to six, depending on how satisfied the IRS is with the information provided.

We can begin accepting donations, so in anyone is interested please let me know, but we will not have the exempt letter for your tax work until we are approved.  It will be retroactive back to the founding date of Sept 2, 2010, however.    You will be able to file it next year.  Thank you all so much for your warm wishes and suggestions!

Here is a photo of the celebratory bonfire.  The photo does it no justice.  It was huge!  My husband does everything big.   ::)
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
jbeany
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« Reply #1 on: November 06, 2010, 11:53:00 AM »
 :bestwishes;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
carol1987
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« Reply #2 on: November 06, 2010, 12:46:25 PM »
 :flower; :flower;
wonderful!!!
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Diagnosed with  PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was  "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
Riki
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« Reply #3 on: November 06, 2010, 02:40:10 PM »
Very cool!!
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
natnnnat
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« Reply #4 on: November 06, 2010, 04:18:52 PM »
You're not joking about a big bonfire!   :clap;  Is that you, the shadowy figure in the foreground? 
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
paris
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« Reply #5 on: November 06, 2010, 05:19:27 PM »
What a great celebration!!  My heart was there with you.    :cuddle;   I hope someday I can meet Etta.  She seems very special--like you!!
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
kellyt
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« Reply #6 on: November 06, 2010, 06:06:56 PM »
Quote from: natnnnat on November 06, 2010, 04:18:52 PM
You're not joking about a big bonfire!   :clap;  Is that you, the shadowy figure in the foreground?

Yes, that's me.  :)  The bonfire was so big.  Anyone within 2 miles of our place who could see the smoke drove by.  It was funny, it was like a parade of cars on my street.  We called the fire dept and sheriff's dept earlier that afternoon to let them know we were having the bonfire.  I'm sure they got lots of calls.   :rofl;

And Paris, you'll meet her in 2011 when you come to visit!  I hope!!!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #7 on: November 06, 2010, 06:17:50 PM »
 :bandance; Great to see you having a hot time Kelly!

Congrats on your transplant and your non-profit.

Etta ROCKS!!  :bow;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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