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Author Topic: 12 Years on Dialysis  (Read 6540 times)
kitkatz
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« on: November 04, 2010, 04:45:57 PM »
Well, I have done it! I have made twelve years on hemodialysis! It was November 2nd this year.   Whoo whee what a ride it has been!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Darthvadar
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« Reply #1 on: November 04, 2010, 04:48:29 PM »
Yikes!...

Well done, Kitz.... Always knew you're a tough old boot!... :rofl; :rofl; :rofl;

Love ya!!!!...

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
KICKSTART
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In da House.
« Reply #2 on: November 04, 2010, 05:03:18 PM »
Doesnt time fly ! Well the bit that's not on dialysis !
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
chook
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« Reply #3 on: November 04, 2010, 05:13:31 PM »
12 years - wow, that is a long time. I've just passed 6 months on PD and that is hardly worth noting. Stay well, Kitkatz!
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Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
Riki
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« Reply #4 on: November 04, 2010, 05:40:38 PM »
I'm nearing 6 and a half years, this time..  I don't wish to be on as long as 12 years...
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
woodsman
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« Reply #5 on: November 04, 2010, 05:41:35 PM »
Good to hear, are you doing well and if so have there been any complications along your journey???. I am not on  "D" yet but it will not mbe long and you being on it for 12 years is really good news to hear.
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okarol
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« Reply #6 on: November 04, 2010, 06:38:29 PM »
 :beer1; You're one tough cookie! Love you Kitkatz!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
RichardMEL
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« Reply #7 on: November 04, 2010, 06:58:05 PM »
next year you'll be a teenager  - imagine the mischief you'll get up to!!!!  :rofl; :rofl; :rofl;

Seriously though this is amazing and gives all of us still on D the understanding that we can keep doing it and live a life and keep going even when sometimes it all seems too hard. You and Zach amongst others are the real cheerleaders for longer term dialysis, and I take my hat off to you!!

 :bow; :bow; :bow; :bow; :bow; :bow; :bow; :bow;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Jean
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« Reply #8 on: November 05, 2010, 12:14:55 AM »
I am not on D yet, but do hope I can make it for 12 years, wow, I would be pretty old by then, LOL. You are one tough cookie Kit, Congratulations, and I hope you have another 12 and then some.
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One day at a time, thats all I can do.
kristina
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« Reply #9 on: November 05, 2010, 02:25:39 AM »

Well done, Kitkatz,
Stay Well !

Best wishes from Kristina  :waving;
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Epofriend
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This is what happens in Vegas!
« Reply #10 on: November 05, 2010, 05:17:19 AM »
Congrats Kitkatz!

I too celebrated my anniversary on the same day - Election Day, 8 years ago.

To life!  :wine;
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Zach
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"Still crazy after all these years."
« Reply #11 on: November 05, 2010, 06:08:34 AM »
It's all in the family!
Congratulations.
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
monrein
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Might as well smile
« Reply #12 on: November 05, 2010, 06:42:14 AM »
Keep it going Kitkatz, one day at a time, one needle at a time.   :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
GraphicBass
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« Reply #13 on: November 05, 2010, 06:50:47 AM »
Congrats, you give me a lot of hope for the future (on dialysis 14 days)...

gary
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del
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del and willowtreewren meet
« Reply #14 on: November 05, 2010, 06:54:40 AM »
Congrats!!  :beer1;  It was 13 years for hubby in August.
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Don't take your organs to heaven.  Heaven knows we need them here.
gothiclovemonkey
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« Reply #15 on: November 05, 2010, 07:31:21 AM »
 :birthday; er... Anniversary? something like that....anywho Congrats! 
  :beer1;
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"Imagine how important death must be to have a prerequisite such as life" Unknown
HemoDialysis since 2007
TX listed 8/1/11 inactive
LISTED ACTIVE! 11/14/11 !!!
Poppylicious
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« Reply #16 on: November 05, 2010, 10:32:33 AM »
WooHoo!   ;D
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
Bill Peckham
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« Reply #17 on: November 05, 2010, 08:12:07 PM »
Happy ... hmm ... dialystone (instead of milestone?)


celebrate by going out.
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
MooseMom
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« Reply #18 on: November 05, 2010, 10:27:42 PM »
Superb!  You give us all hope!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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« Reply #19 on: November 06, 2010, 04:43:56 AM »
 ;D   :beer1;  You're amazing.
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
Jie
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« Reply #20 on: November 06, 2010, 02:08:58 PM »
Congrats!!  You have outlived more than 70% of dialysis patients!!! Hopefully we can live a long, close to normal life if we do good dialysis... 
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Riki
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« Reply #21 on: November 06, 2010, 02:21:55 PM »
In reading this thread over again, I realized that my post may have seemed a bit insensitive.

Kitkatz, I think it's awesome that you've made it 12 years.  It's rather inspirational to the rest of us.  I just have a hard time with these kinds of anniversaries, because I find them a little depressing.  I hope you didn't think my post was in any way demeaning to your milestone
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
billmoria
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Living life to my max
« Reply #22 on: November 06, 2010, 03:42:45 PM »
Well Done.   :shy;

At 66 and not a good candidate for a transplant I hope to emulate you!
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WMoriarty
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Building a Zen deathray.
« Reply #23 on: November 07, 2010, 12:32:11 AM »
Quote from: chook on November 04, 2010, 05:13:31 PM
12 years - wow, that is a long time. I've just passed 6 months on PD and that is hardly worth noting. Stay well, Kitkatz!

Given that the first two years are the hardest, passing the first six months is definitely worth noting.
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"Tick tock tick tock tick tick."  -   six word story by Neal Stephenson
Sunny
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Sunny
« Reply #24 on: November 08, 2010, 05:02:01 PM »
I am so happy for you. This is quite a milestone. I hope you have many more successful years ahead.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
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