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mick wallace
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new member
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on:
November 04, 2010, 06:01:38 AM »
hi all
new to this forum stuff so sorry for any mistakes made
my name mick,i'm 50 years young,live in essex in the uk,i've been on dialysis for a year after having a blood disorder that killed the kidneys, i tryed pd but that was no good for me,so back to the hospital for hemo,just got the button hole's working ok and have started sticking myself
i found this site when researching the nxstage machine which i hope to start after Christmas,well that's it in a nutshell
cheers all
mick
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Rerun
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Going through life tied to a chair!
Re: new member
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Reply #1 on:
November 04, 2010, 06:54:36 AM »
Hi Mick and welcome to IHD. I'll be 50 next July. My kidneys failed when I was 24, so I've either been doing dialysis or transplant since then. I live in the US. It sounds like you have it under control with sticking yourself. I'd die waiting with the needle in my hand. No way!
Hope you like it here and come and post often.
Rerun, Moderator
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peleroja
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I have 16 hats, all the same style!
Re: new member
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Reply #2 on:
November 04, 2010, 08:57:09 AM »
Welcome to the group, Mick. Lots of good information and friends here. Glad you joined!
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YLGuy
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Re: new member
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Reply #3 on:
November 04, 2010, 10:18:12 AM »
I read your name wrong at first and thought we had Mike Wallace from 60 Minutes.
Welcome Mick. Glad you found us. There is a lot of good information here.
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MooseMom
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Re: new member
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Reply #4 on:
November 04, 2010, 01:49:33 PM »
Oh wait...NxStage is now available in the UK? I knew that Gordon Brown had spoken about it when he was still PM, but I didn't realize that it's already available! That's great!
I used to live in the UK...South Croydon.
Welcome to our forum!
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"Eggs are so inadequate, don't you think? I mean, they ought to be able to become anything, but instead you always get a chicken. Or a duck. Or whatever they're programmed to be. You never get anything interesting, like regret, or the middle of last week."
Jean
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Re: new member
«
Reply #5 on:
November 05, 2010, 12:33:02 AM »
Hi Mick and
to IHD. Glad to have you here.
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One day at a time, thats all I can do.
mick wallace
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newbi
«
Reply #6 on:
November 05, 2010, 07:58:51 AM »
hi all
thanks for the welcome hope to speek to you all in time,it's nice to speek to people who have the same troubles as myself
wishing you all well
mick
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Zach
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"Still crazy after all these years."
Re: new member
«
Reply #7 on:
November 05, 2010, 09:38:36 AM »
Good to have you join our community!
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant. Not yet, anyway. Only decided to be listed on 11/9/06. Inactive at the moment.
I make films.
Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat 5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600; Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -): 2,450 Calories, 84 grams Protein/day.
"Living a life, not an apology."
Poppylicious
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Re: new member
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Reply #8 on:
November 05, 2010, 10:29:39 AM »
Mick! You're vaguely in my neck of the woods, but it's my Blokey (husband) who's on dialysis.
Quote from: MooseMom on November 04, 2010, 01:49:33 PM
NxStage is now available in the UK?
I don't think it's available everywhere over here yet, MM (although I'm happy to be wrong). I have a vague recollection of Blokey saying that his neph had mentioned that there was at least one other portable machine that the NHS may also be considering, but that was a few months ago.
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- wife of kidney recepient (10/2011) -
venting myself online since 2003
(personal blog)
grumbles of a dialysis wife-y
(kidney blog)
sometimes i take pictures
(me, on flickr)
Everything was beautiful, and nothing hurt.
boswife
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us and fam easter 2013
Re: new member
«
Reply #9 on:
November 05, 2010, 07:51:24 PM »
my hubbys been on D for just a bit over a year as well and we're going to start NxStage in the next few weeks as well. (possibly after Christmas like you though) Im JUST getting over the needle phobia, so will be doing his cannulation. Hope you hang around and share your stories.. We'll sort of be in it at the same time so great support.. Great place here. LIVE saver for us..
And YLGuy, i thought the same as you..lol
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten
Re: new member
«
Reply #10 on:
November 09, 2010, 06:54:21 PM »
Welcome to our community! And a special welcome from a member of the Commonwealth (born in Barbados, living in the British Virgin Islands) The founder of IHD, Epoman, had started NxStage and really loved it. You will see that we have a whole section for NxStage users. You have found a great place for information, support and encouragement. In fact you have found a genuine family
, so just keep reading and keep posting. Let us know how things are going with you (in the appropriate sections, of course!)
Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"
I LOVE my IHD family!
galvo
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Re: new member
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Reply #11 on:
November 10, 2010, 03:05:23 AM »
G'day, Mick and
.
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Galvo
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Re: new member
«
Reply #12 on:
November 11, 2010, 11:22:34 AM »
I'm a little late here, but
Mick!
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10: Began dialysis through central venous catheter
8.25.10: AV fistula created
9.28.10: Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!
Good health is just the slowest possible rate at which you can die.
The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.
The early bird may get the worm but the second mouse gets the cheese.
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