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Author Topic: it's my time !!!!!!!!!!!!!  (Read 5121 times)
takamore
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« on: November 01, 2010, 05:46:40 PM »
on november 26th i will be getting my first transplant (from my sister) at TGH... the match is perfect.. i am 60 and she is 56.. the first day i found out the date, i couldnt stop crying... so much emotion pent up for so many years.. even now, i  get a little wet in the eyes.. i'm getting my life back and a second chance... how do you say thank you for such an amazing gift?  (even tho its been almost 6 long years since i was diagnosed, it seems like an eternity)

your posts and stories have been a wonderful resource and stabilizer for me..

paul
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Riki
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« Reply #1 on: November 01, 2010, 06:28:34 PM »
That's AWESOME!! I hope you're getting your sister a really good Christmas present, after the awesome early Christmas present she's giving you.. *G*
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
chook
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« Reply #2 on: November 01, 2010, 06:30:49 PM »
Great news, Paul.  :yahoo; All the best for the 26th and onwards
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Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
kellyt
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« Reply #3 on: November 01, 2010, 06:58:31 PM »
Fabulous news!!!  Congratulations! :yahoo;     WE LOVE LIVING DONORS!!!    :-*     WE LOVE ALL DONORS!!!!!     :-*

Spend the next few weeks prepairing your home and educating your family and friends.  Clean!  Clean!  Clean!  I can't wait to here all about it when it's over and done with.  What a great end to the year!   I'm celebrating 2 YEARS this Friday!   :beer1;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
monrein
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« Reply #4 on: November 02, 2010, 05:05:37 AM »
TGH as in Toronto General Hospital???  That's where I had my transplant and it's a great hospital.  I still go for blood work monthly so I'll start "looking" for you down in the lab in December.  Congratulations and I'll be thinking of you.  Living donors do indeed ROCK.   You'll be up on the 7th floor and I hope you get a nice view...I looked out over the Parliament buildings on Queen's Park which was lovely but most importantly I wish you smooth surgery and a long lasting transplant.

PS.  Dr Robinette was my surgeon and Dr. Cole is my neph.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
takamore
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« Reply #5 on: November 02, 2010, 05:54:02 AM »
thats funny.. the doctors are reversed for me.. dr. cole is the surgeon and robinette is the nephrologist
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monrein
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« Reply #6 on: November 02, 2010, 04:04:34 PM »
Quote from: takamore on November 02, 2010, 05:54:02 AM
thats funny.. the doctors are reversed for me.. dr. cole is the surgeon and robinette is the nephrologist

This is most unlikely takamore...I've known Ed Cole since 1985 and he's never been a surgeon.  Michael Robinette. is a brilliant surgeon and if you have him you really have one of the best.  Dr. Cole is the director of the Kidney Transplant department at TGH and he's been my main man for kidneys since my first transplant back in 1985.  Dr. Robinette did both my transplant and the removal of my first failed trx, two months after that. 

http://livekidneydonation.blogspot.com/2010/05/my-surgeon-dr-michael-robinette-md.html

It's easy to get mixed up when we're seeing docs by the dozens.  Once again, all the best, you're in very,very good hands from my perspective.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Sunny
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Sunny
« Reply #7 on: November 02, 2010, 05:02:10 PM »
I am so happy for you. I know it's probably been a long road for you and this is such a wonderful gift. Good luck.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
takamore
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« Reply #8 on: November 04, 2010, 06:12:24 AM »
monrein, i get everything mixed up... it will take a big effort for me to remember to ask them to put in the right organ
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carol1987
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« Reply #9 on: November 04, 2010, 06:50:41 AM »
 :flower; WONDERFUl!!!!!! :clap; :clap; :clap;
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Diagnosed with  PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was  "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
Brightsky69
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« Reply #10 on: November 04, 2010, 03:45:37 PM »
That is great news!!!!!! :yahoo; :2thumbsup;
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Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
takamore
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« Reply #11 on: December 15, 2010, 06:20:47 AM »
Well m'friends, i'm finally home!! seems like a lifetime.. another lifetime even.
the kidney transplant happened on nov.26th. my sister patti gifted me with a 100% compatible match... while i was waiting to go into surgery, dr. robinette came over to me and said "your sister is giving you a beautiful kidney, and it's sitting right over there on ice waiting".. and thus the journey began.. hours later with morphine pumping thru me and in acu, my new kidny was working like an insatiable drunk on cheap booze!!  pumping like crazy!! at the same time they were flushing lots of fluid thru me.. actually so much so that i ended up with 9 kg too much fluid.. that led to a few yucchy days.. there was no problems with the incision, and recovery was well underway.. of course it helped i was in the penthouse of acu wards and the day/night nurses i had were just too much fun for any sane man (which i wasnt).
  down from ACU to the wards.. testing testing monitoring and lots of wonderful care!! Patti (helped of course by my other sister Peggy, surrogate donor if you will)was recovering marvelously and in fact was released 5 days after the operation.. her follow up was some testing and the only real trouble she had was getting used to the initial fatigue.. she's an angel i shall thank every minute of every day>>
  soon came the biopsy.. and first bump in the road.. the vascillitis from the old kidney sort of awoke from its dormancy and found the new kidney... But, not to worry, nothing a regime of Prednisone couldnt handle.. my memories of the prednisone from when i first was diagnosed are not pleasant.. thankfully the dosage im on is fairly light and i'm managing it quite well.. and it wont be long before the dosage is down more and ill hardly notice it.. i mentioned bumps, i know.. well there are a few but they are being dealt with.. one is the recurring tendency for the potassium to creep up, and the other is to keep the creatin down.. these are being managed, and im very confident with some time and more healing i will be chomping at the bit..
  as much as id like to jump in the car and visit all of you i cant. hopefully i'll be driving again in a month or so, but that depends on the medications really and the consent of the transplant team..i'll be off work most likely closer to 3 months... but i also hope to have some time to work on puzzles and play my games and remind myself how much each and every one of you mean to me..
 
for now my fulltime job is to rest and recover, to get used to and embrace this new life i've been gifted, complete with all the anti-rejection/immune/infection habits and precautions i have to make automatic for the rest of my life.
 
and to recognize the blessing ive been given... and a special thanks to patti, peggy, and Lee who have shown me so much love in my recovery
 
here's to a fresh start!!!!!

dec 14th update... doing well and (happy dance) prednisone is now down to 20 mg ... die vascillitis die :):)
 
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boswife
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us and fam easter 2013
« Reply #12 on: December 15, 2010, 12:34:01 PM »
What wonderful beautiful exciting news you've shared.  It couldnt be more welcome and with shared excitement!!   :bandance;  :yahoo;    Pleas do share more and more as your life goes on as we all love to hear..  THANKS so much for comming back to let us know... Blessings
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
thegrammalady
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« Reply #13 on: December 15, 2010, 12:50:07 PM »
glad to hear everything has gone so well and recovery is well on it's way. congrats   :2thumbsup;
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
monrein
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« Reply #14 on: December 15, 2010, 01:29:11 PM »
Great to read your update takamore!!!!  Look forward to more and hopefully always positive ones.   :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
MooseMom
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« Reply #15 on: December 15, 2010, 02:38:59 PM »
Merry merry merry merry merry merry merry Christmas!!! :clap;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
natnnnat
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« Reply #16 on: December 15, 2010, 04:31:04 PM »
Quote from: MooseMom on December 15, 2010, 02:38:59 PM
Merry merry merry merry merry merry merry Christmas!!! :clap;
Hear hear!  and Here's to a long lasting merry old kidney!  :beer1;
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
galvo
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« Reply #17 on: December 15, 2010, 04:57:57 PM »
Wonderful.
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Galvo
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #18 on: December 15, 2010, 05:07:16 PM »
Congratulations to you, your sister and your new kidney! I hope things continue to go well!
LIVING DONORS ROCK!!  :bow;
You have been added to the list http://ihatedialysis.com/forum/index.php?topic=4927.0  :)
« Last Edit: December 15, 2010, 07:08:06 PM by okarol » Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #19 on: December 15, 2010, 06:08:02 PM »
awesome!! long live your kidney & you!!  congrats!

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
RichardMEL
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« Reply #20 on: December 15, 2010, 10:36:40 PM »
Such wonderful news!!! I started on 20mg preds so I'm glad you've come down to my level and it's all going so well!!! WOO HOO!!!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
takamore
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« Reply #21 on: December 16, 2010, 06:40:36 AM »
one day apart for our transplants!!!!!   thats tooo weird :) best of luck on yours!!!
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phyl1215
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« Reply #22 on: December 16, 2010, 07:00:06 AM »
What great news for you and for Mel......keep us updated please.  Take good care.
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PD 3 yrs.
TX list 4 yrs.
Deceased donor PERFECT MATCH Kidney transplant July 8, 2012


Learning To Dance In The Rain
looneytunes
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Wishin' I was Fishin'
« Reply #23 on: December 16, 2010, 07:59:42 AM »
Great news Takeamore!  Here's to the merriest of Christmases to you!   :beer1;
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"The key to being patient is having something to do in the meantime" AU
chook
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Born to be a Granma!
« Reply #24 on: December 21, 2010, 08:38:14 PM »
Great to read that the transplant all went so well.
 :bow; to your donor sister!
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Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
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