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Author Topic: Etiquette - transplant  (Read 3475 times)
Des
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« on: October 29, 2010, 12:54:48 AM »

I have a possible donor and she is busy with her workup tests.

Now - do I thank her now. Do I buy her a thankyou card?

I am really unsure of how to react... or what to say or do. Words and actions fail me. I feel like a volcano about to burst because this can be a way out of doing dialysis. But I don't want to say or do something wrong .... I am really worried that my action or lack of action might make her change her mind.

I am not showing this excitement that I am feeling because I don't want her to feel guilty should they find anything wrong with the tests but then I think she might see it as me being unappreciative.

Some guidelines please.......

 
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
RichardMEL
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« Reply #1 on: October 29, 2010, 04:05:08 AM »

Wow, that's GREAT NEWS Des!! Fingers crossed for you and your donor!

 :bow; :bow; :bow; :bow;

At this point a thank you card would really just be "thank you for agreeing to be tested and getting those done" - which is VERY significant of course, but I am not certain it is card worthy. Perhaps you could show it in other ways like asking if there's stuff she needs, or perhaps taking her to dinner or something (and flowers of course!) - maybe after one of those horrid tests or something.

If it was me, and perhaps this seems ungreatful, but I don't know that I would go overboard at this point. It's wonderful she's testing, and that definitely needs to be recognised - so perhaps sending her flowers with a little card saying "I know this is an ordeal to go through these  tests and I just wanted to let you know I appreciate that you are" sort of thing might be ideal.

It IS very hard to know what to do or say - I can understand your conundrum. I think if you're just sincere with your feelings whatever you do will be appropriate :)

Again, great news!!!!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Des
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« Reply #2 on: October 29, 2010, 04:11:10 AM »

RM I haven't shouted it from the rooftops yet.... I don't want to chinx it. But I am super excited  :cheer:  :bandance;  just with the possibility.

Sending flowers is a brilliant idea.!!! thanks
« Last Edit: October 29, 2010, 04:13:28 AM by Des » Logged

Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Riki
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« Reply #3 on: October 29, 2010, 08:45:11 AM »

Wow.. I"m not sure what I would do if a potential donor came forward.  It's not something I ever thought about.  I'll have to think about it now, in case I'm ever in that situation.. So much to think about!!  *LOL*

Am keeping my fingers crossed for you!
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
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thegrammalady
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« Reply #4 on: October 29, 2010, 09:15:40 AM »

sooper kool, des.  i think a card or flowers to say thank you for testing would be wonderful.
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« Reply #5 on: October 29, 2010, 09:59:01 AM »

After nine people were tested and denied for Jenna I was reluctant to celebrate too early for fear of being disappointed again. But when we got the call that Patrice was a match I told everyone, I called her, we cried, and we celebrated (we are in Calif. and she in Ohio so it was limited.) The day of the transplant we gave her a little Tiffany silver "bean" necklace that Jenna and I had picked out.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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« Reply #6 on: October 29, 2010, 11:12:03 AM »

I think a "thank you" note would be acceptable.  Just say, "no matter what the results, thank you for trying".

Best of luck!        :cheer:
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MooseMom
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« Reply #7 on: October 29, 2010, 01:36:20 PM »

Oh my goodness...what wonderful news!  I know you shouldn't get too excited yet, so I'll get too excited for you!!!   

I've been thinking about what I would want if the tables were turned and I was the one getting tested to be a possible donor.  I think I would appreciate a thank you card or even just a phone call or anything that basically said, "I appreciate you even considering doing this for me."  Yes, I would definitely like to have my efforts acknowledged.

Oh, this would be so wonderful for you!  I know how much you have hated D.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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« Reply #8 on: October 29, 2010, 02:11:10 PM »

Flowers sound good to me.  I'd put "Hope is the greatest gift you can give.  Thank you."  on the card.
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okarol
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« Reply #9 on: October 29, 2010, 02:17:08 PM »

 :2thumbsup;
Flowers sound good to me.  I'd put "Hope is the greatest gift you can give.  Thank you."  on the card.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Alison McNeilly
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« Reply #10 on: October 29, 2010, 02:48:44 PM »

From a donors point of view, I didn't expect anything from my brother for being tested or giving him the kidney. We both agreed that no gift could really match up to the gift of a kidney. A simple thank you and my brothers health was the greatest gift he gave me.
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monrein
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Might as well smile

« Reply #11 on: October 29, 2010, 02:59:18 PM »

I'm so happy for you Des that this possibility has presented itself.  I really agree with everyone else that it's important not to get too excited about the end result but absolutely acknowledge the generosity of the offer, no matter what happens...even if she changes her mind.  These are exactly the situations in which I pull out my handy "hope for the best but expect nothing" mantra.  After all, it's not in our control and so much has to align but despite all that the offer is indeed hopeful, generous and moving.  All the best to you both.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Alison McNeilly
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« Reply #12 on: October 29, 2010, 03:01:27 PM »

My brother ha just given me his point of view as a recipient: The best thankyou you can give is when you get the kidney to look after it and to keep yourself in good health!
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Riki
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« Reply #13 on: October 30, 2010, 06:44:06 PM »

Flowers sound good to me.  I'd put "Hope is the greatest gift you can give.  Thank you."  on the card.

I teared up when I read that... that's a line I'm going to remember...
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
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HD - Dec 2008-present
Des
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« Reply #14 on: October 31, 2010, 11:01:24 PM »

I like this one too.... Thanks a mill.

She is a match - she is busy with the general health tests... if she is deamed healthy, everything should be fine.... "should" :pray;
« Last Edit: October 31, 2010, 11:03:27 PM by Des » Logged

Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
MooseMom
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« Reply #15 on: November 01, 2010, 10:43:49 AM »

So, there's hope!!  Oh, this just makes me so very happy.  I am really keeping my fingers crossed for you!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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