Jenna's hoping to get wait listed

[okarol]

Jenna has started the ball rolling to get listed again. Her local nephrologist recommended she start the process and begin to accrue time, even if she is inactive. It's a lot to do, but she's made contact with the coordinator and has a long list of things to achieve (pap test, dental check up, any imaging from her urologist, records from her transplant hospital, meds list, recent lab report, etc, etc.)

[MooseMom]

I apologize if I've missed some crucial info along the way.  I always keep my eyes open for new news about Jenna, but I could have missed something, anyway.  Does Jenna's neph anticipate that she will lose her new kidney eventually, and that's why he is recommending she be waitlisted (and I am not sure I know what exactly that means), or has her condition seriously deteriorated?

[YLGuy]

Is she listing at Scripps?

[Riki]

I don't remember having to do much to get on the list, but I think it's kind of an automatic thing, unless there's a reason for you to not be on it.  I think here, they put you on it automatically, then do the testing, and if something comes up where you shouldn't be on it, they take you off.  I got my last kidney after being on dialysis for only a month. I don't remember if I'd gone through any testing besides blood at that point.

[okarol]

Her GFR is below 20%, the threshold for being listed. It's actually 18% now, and has been steady since January. She can accrue time and hopefully eventually find a living donor and get a pre-emptive transplant. Otherwise the wait time here in Los Angeles is 6 to 8 years for deceased donor, and she's got a high PRA so it could be even longer. Her neph feels she should get listed and she can remain inactive but accrue time. He said barring an infection or dehydration she might last years at this level, but you never know.  If it's anything like the first time, it took months to get through everything, and they have over 500 patients waiting for a kidney, so nothing is going to happen overnight. YLGuy, she is not listed at Scripps, but can dual list as soon as she completes the evaluation here.

[Jean]

Wish the very best for Jenna.

[monrein]

I'm sending Jenna my best wishes as she navigates the maze of testing and listing.  And of course I'm sending you my love to continue supporting her as she does.   

[Darthvadar]

Best of luck to Jenna.....

Probably very wise to get the ball rolling now...

Hope it all works out....

Love...

Darth...

[paris]

Jenna is always in my thoughts.  It makes sense to get listed and start the clock ticking.  When the time comes, do you think you will look for a living donor?  I know you will do everything in your power to get that second kidney for her.  We all need someone like you on our side.   

Jenna can get through the evaluations      She has done this all before and knows what to expect.  I am praying the kidney stays at the current level for a long time.  And in the meantime, she will be marking time on the list.   

[jbeany]

 

Better to be over-prepared, certainly.  I hope she doesn't need one any time soon, but best to get going.  There's a lot of hoops to jump through!

[cariad]

Yes, queue up as soon as possible, I say.

Best of luck to you, Jenna. Perhaps the next one will be a preemptive, and ages away at that!

[galvo]

Best wishes to you the pair of you.

[Bajanne]

My caring thoughts are with Jenna (and you) at this time   Hope everything goes well, and that she doesn't even need a new kidney for a long long long long time!

[boswife]

you guys are soooo on top of things.  I surely hope she wont need it for ever actually, but im so glad your prepared...   

[kellyt]

    I wish her nothing but the best.  And I hope she can find another living donor before ever having to start dialysis again.  I want to meet Jenna.  Yet ANOTHER reason for Paris and I to come to L.A.!!!!

[Sunny]

I'm happy to hear she's getting listed. The wait can be so long that she should definitely shoot for that goal as soon as she can.
I hope her kidney continues to do well for her, but in the mean time, the list is the way to go for now. Good luck.

[Wattle]

  

You never know what is in our future so I think it is a great move to get relisted now. She can accumulate wait time while her little kidney still chugs along happily at 18%.   All the hoop jumping is a pain in the butt, so while she is feeling good get it over and done with. Jenna can pass all those tests, she has amazing courage and inner strength. Like Paris she is never far from my thoughts.

Maybe that magic little gift is out there just waiting for the right time for Jenna.   

[Ken Shelmerdine]

 Karol and Jenna. Thinking of you both. 

[natnnnat]

It must be hard to face all this again.  I know the prospect of losing his kidney hit Gregory very hard when he had to consider the idea recently.  Hopefully when the time comes, there will be a clear and straightforward path to a new kidney.

[okarol]

After 2 months of waiting (Jenna completed the transplant questionaire, sent in her meds list, 6 months of medical history, her recent lab results and has gotten her dental and gynecological check ups done) she finally got a call to come in for a transplant evaluation. She has an appointment next week, all day, and will see the transplant coordinator, neph, social worker, financial, surgeon and give labs. Hopefully it goes well. It's been almost a year since she was treated for rejection, and had lost most of her transplanted kidney's function. She's still around 17 %.

[kellyt]

Good Luck to her!  I hope she can hold on to 17% for a while longer!   

[okarol]

Wouldn't ya know it... I mention evaluation date and they call and postpone it. Luckily its only a week, Jan 4th, so Jenna can relax. She is taking a much bigger role and interest in the whole process, which is great. 

[MooseMom]

Good for her!  It must not be fun for her to have to think about all of this.  It's not fair that anyone should have to go through ESRD, especially if you are young like Jenna.  I'm really glad she is doing what she needs to do to take care of herself.  It's an attitude she will need to survive and to be healthy.

[Joe Paul]

I am praying for Jenna and you too Karol   

[looneytunes]

I'll keep her (and you) in my prayers.  She is so young to have to go through all of this again.