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Author Topic: Hello from Portland, Oregon  (Read 1946 times)
Babolat
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« on: October 21, 2010, 04:27:33 PM »

Hello everyone.  First off let me say what a great, supportive site you guys have here! I have really learned a lot by reading your stories.   

I'm 42 and I discovered my kidney problem when I was hospitalized in 2006 during an episode of extremely high blood pressure. The ER doc said it was the highest he had ever seen -- I guess I'm lucky I didn't have a stroke, lol.  Since then, my GFR has been steadily declining, to 13% where it is now.  I'm not on dialysis yet, and (if I keep the BP under control) I still feel pretty well aside from being generally tired and cold most of the time.  Still I wonder how much longer that will last.  My wife and brother-in-law were both tested as potential living donors but they were not a match, so last month I was placed on the donor list.  This whole thing is kind of worrisome, especially being the breadwinner with 2 school-age kids, but overall I'm keeping positive.  Anyway, I'm glad I found this site.
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sophiesmommy
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« Reply #1 on: October 21, 2010, 05:29:20 PM »

You sound very positive! Keep up the good attitude.
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thegrammalady
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« Reply #2 on: October 21, 2010, 06:25:51 PM »

 :welcomesign;  this is a good place to land. glad you joined us.
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If you can smile when things go wrong, you have someone in mind to blame.

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vcarmody
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« Reply #3 on: October 21, 2010, 06:33:44 PM »

 :welcomesign; This is a great site, if you have questions ask them here, everyone is always open and honest. I know they have helped me a lot to understand ESRD. 
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galvo
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« Reply #4 on: October 21, 2010, 07:30:03 PM »

G'day Babolat and  :welcomesign;.
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Galvo
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« Reply #5 on: October 21, 2010, 08:40:41 PM »

Welcome to our community!  We are glad that you found us too.  This is just the place for information, support and encouragement.  There is a lot of help from people who have experienced and are experiencing exactly what you are going through.  I found this place just before I went on dialysis, and was so prepared when my time came.  This is much more than a website - it has become a genuine family :grouphug; and you are going to experience this.  Just keep reading and, above all, keep posting so we can know how you are doing.




Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
okarol
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« Reply #6 on: October 21, 2010, 10:41:00 PM »

 :welcomesign;
Hello!
You don't say where you live, but if it's in the US and you have a willing donor, you can check into doing a swap. Check out www.kidneyregistry.org to see if it will help you.
Welcome - thanks for joining the family!

okarol/admin
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
MooseMom
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« Reply #7 on: October 21, 2010, 10:46:46 PM »

Oh, I think I know how you might be feeling.  My gfr is 15 and I am not on dialysis yet, so I share your worries and concerns.  It would be great if your bp could hold steady and so your renal function, too.  We have a new pre-dialysis forum where we all share our fears about what's gonna happen next and what will our next labs tell us; there are plenty of people who are facing the same issues as yourself.  You'll get lots of support here.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Jean
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« Reply #8 on: October 22, 2010, 12:19:50 AM »

We are also glad you found us. I am in the same ( well almost ) state you are in as to being pre-dialysis. Have been in stage 4 for 3 years now. Hope it stays another 20, for me, and for you.   :welcomesign; to IHD.
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One day at a time, thats all I can do.
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