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Author Topic: Your claim to fame!  (Read 16002 times)
MooseMom
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« on: October 11, 2010, 06:47:00 PM »
Come blow your horn and strut your stuff.  What awards have you won?  Ever win a prize?  Ever have anything published?  Ever have a story written about you?  Ever get special recognition for simply being absolutely fabulous?  Describe your claim to fame!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Rerun
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Going through life tied to a chair!
« Reply #1 on: October 11, 2010, 07:43:16 PM »
I was in a small plane crash once that made the news.

http://ihatedialysis.com/forum/index.php?topic=475.msg3045#msg3045
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Zach
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"Still crazy after all these years."
« Reply #2 on: October 11, 2010, 07:47:58 PM »
I earned the Eagle Scout Award (and Vigil Honor) when I was a teenager.

8)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
MooseMom
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« Reply #3 on: October 11, 2010, 07:52:33 PM »
Yeah, Rerun, I see how that would have made the paper.  My goodness...there's a life story for ya!

So Zach, what marvellous things did you do to earn such high honors?  Were you just too cute for words?
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
carol1987
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« Reply #4 on: October 11, 2010, 07:57:51 PM »
I like this thread...
Rerun....yikes!!!

Zach..... nice!!!
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Diagnosed with  PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was  "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
MooseMom
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« Reply #5 on: October 11, 2010, 08:09:23 PM »
I graduated Phi Beta Kappa and got a certificate and a really cool gold key that I can put on a chain and wear as a necklace. 
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
YLGuy
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« Reply #6 on: October 11, 2010, 08:33:06 PM »
My father and I are on a United States postage stamp.  The stamp was issued May 1968.
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okarol
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« Reply #7 on: October 11, 2010, 08:56:57 PM »
I was part of the LA Times story here http://ihatedialysis.com/forum/index.php?topic=2167.0

My photography won an iPad, theater tickets and was featured on some websites.

http://www.greenwala.com/greenwala_contests/all/17-Beautiful-Earth-Contest/entries/mine/801

http://www.experiencela.com/newsletter/newsletter2010_0819.htm

http://bit.ly/9UdEBd
« Last Edit: October 11, 2010, 08:58:42 PM by okarol » Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Riki
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« Reply #8 on: October 11, 2010, 10:46:30 PM »
Let me think..

I was first published when I was 11, with about 10 other extremely talented kids.  We all had our stories and poems put into a book that was sold to raise money for the writing program that we were a part of.

Did that again twice for the same type of book that raised money for the IWK Children's Hospital.  Those books were full of stories and poems and drawings by kids in the hospital.

I was the first kid to go home on dialysis on PEI.  I know there were a few after me, so I was a bit of a pioneer. *G*

I was on TV a few times, mostly having to do with Organ Donor Awareness

and, not one of my favorites, I was a character witness at the murder trial of John Raynor, the man who was convicted of killing my best friend, Chrystal Beairsto.  It's kinda sad that they need character witnesses for the victim.
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
okarol
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« Reply #9 on: October 11, 2010, 10:55:40 PM »
Riki, I read about Chrystal Beairsto. Whatever happened to her children? Sad story, she was so young.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
galvo
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« Reply #10 on: October 11, 2010, 11:01:12 PM »
Riki, I see that Raynor has finally abandoned his appeal.
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Galvo
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« Reply #11 on: October 11, 2010, 11:14:18 PM »
Okarol, her kids were both adopted before she died.  Chrystal was really happy about that.  She gave up the oldest because she didn't think that she'd be able to give the girl a good home, and when she had the second, they just took him.  The girl was adopted by a really nice family who had just begun to allow Chrystal to see her when she died, and the boy was adopted by his paternal grandmother.  They lived in the same building, so she saw him every day.  The boy is 10 now, and he knows he's adopted and he knows who his parents are.  I haven't seen the girl since she was a year old, but from what I hear, the family takes good care of her.

Yes, Galvo. That was a huge relief.  I was afraid we'd have to go through the trial again, and I know I didn't want to do it. I"m sure I'm not the only one.  The whole family was called to the stand pretty much as character witnesses
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
natnnnat
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« Reply #12 on: October 12, 2010, 03:57:09 AM »
Quote from: YLGuy on October 11, 2010, 08:33:06 PM
My father and I are on a United States postage stamp.  The stamp was issued May 1968.

omigod omigod!  That rocks, YLGuy!
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
Poppylicious
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« Reply #13 on: October 12, 2010, 08:09:23 AM »
I have no horn to blow and no stuff to strut.  Wow.  This thread makes me feel very small; I've never received an award, won a prize, been published, had a story written about me or received special recognition for being absolutely fabulous ...

*sighs and wanders over to the Worthless Corner to sit on my lonesome whilst contemplating my wasted life*

 ;D
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
carol1987
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« Reply #14 on: October 12, 2010, 08:13:53 AM »
Quote from: Poppylicious on October 12, 2010, 08:09:23 AM
I have no horn to blow and no stuff to strut.  Wow.  This thread makes me feel very small; I've never received an award, won a prize, been published, had a story written about me or received special recognition for being absolutely fabulous ...

*sighs and wanders over to the Worthless Corner to sit on my lonesome whilst contemplating my wasted life*

 ;D

Don't feel bad poppy...  you are not alone....  i have to think if I have anything... LOL ;D
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Diagnosed with  PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was  "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
Poppylicious
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« Reply #15 on: October 12, 2010, 08:27:40 AM »
Quote from: carol1987 on October 12, 2010, 08:13:53 AM
Don't feel bad poppy...  you are not alone....  i have to think if I have anything... LOL ;D
*chuckles* ... Here, I've squidged over so you can join me in the Worthless Corner (unless you think of something and then I'm squidging back across so you can't sit down).

 ;D
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
carol1987
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« Reply #16 on: October 12, 2010, 08:52:47 AM »
Quote from: Poppylicious on October 12, 2010, 08:27:40 AM
Quote from: carol1987 on October 12, 2010, 08:13:53 AM
Don't feel bad poppy...  you are not alone....  i have to think if I have anything... LOL ;D
*chuckles* ... Here, I've squidged over so you can join me in the Worthless Corner (unless you think of something and then I'm squidging back across so you can't sit down).

 ;D
:rofl;  :beer1;
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Diagnosed with  PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was  "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
jbeany
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« Reply #17 on: October 12, 2010, 10:59:04 AM »
Usually, I try to stay out of the paper, as the first thing everyone reads where I grew up is either the police report or the obits. ;D  Heck, I didn't even put engagement and wedding announcements in.  I figured my friends already knew and I didn't care if anyone else did or not.

I was valedictorian in high school, but I find that a questionable accomplishment in a class of only 18 kids!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
MooseMom
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« Reply #18 on: October 12, 2010, 02:47:19 PM »
LOL@ The Worthless Corner. :rofl;

I think that deserves some recognition!   :flower;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
YLGuy
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« Reply #19 on: October 12, 2010, 03:12:45 PM »
I agree!  :thumbup;  :yahoo;  :2thumbsup;  :cheer:  :)  :bandance;
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MooseMom
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« Reply #20 on: October 12, 2010, 03:20:33 PM »
YLGuy, quite right, too!  That's just brilliant!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
okarol
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« Reply #21 on: October 12, 2010, 05:05:34 PM »
Quote

squidged


Funny word.  ;D
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
murf
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« Reply #22 on: October 12, 2010, 05:20:20 PM »
Compared to you guys, my stories are so mundane. I have not had a postage stamp printed in my honor or been a witness at a murder trial. I was selected by Rotary to go on a Group Study Exchange to visit Japan. I have coached my state in school boy field hockey. The Queen once spoke to me (about 30 secs). Other than that, I'm just an average Jo Blo.
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Started Hemodialysis Anzac Day 2005
Patiently waiting for a transplant
Started PD New Year 2010
Taken off transpalnt list, Jan 211
kitkatz
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« Reply #23 on: October 12, 2010, 08:38:41 PM »
I have a degree in Anthroplogy form Cal State San Bernardino
3 teaching credentials- California Clear, teaching severely handicapped, resource specialist.
I have had a poem published in a an anthology by Poetry.com.

I have been married to the same man for almost twenty five years!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Jean
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« Reply #24 on: October 12, 2010, 11:49:36 PM »
I am going to go and squidge in the corner with Poppy!!
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One day at a time, thats all I can do.
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