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Author Topic: Sunny had her transplant!  (Read 7302 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: October 07, 2010, 10:34:06 AM »
I just got a call from Sunny's hubby Carl. He said Sunny had her surgery yesterday and she is doing great. The doctor said the kidney started making urine immediately the minute it was hooked up to the artery!

Her sister is groggy but fine and if all goes well she will be released from the hospital in a couple of days.
 :bandance; :yahoo; :clap;

(If you're not familiar with Sunny's story you can read some here http://ihatedialysis.com/forum/index.php?topic=20357.0 )
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
jbeany
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« Reply #1 on: October 07, 2010, 10:34:47 AM »
 :bandance; :bandance; :bandance;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
thegrammalady
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« Reply #2 on: October 07, 2010, 10:38:12 AM »
 :yahoo; :yahoo; :yahoo;  i just love good news.
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Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

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« Reply #3 on: October 07, 2010, 10:49:31 AM »
That is wonderful, I love it when things like this happen.
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paris
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« Reply #4 on: October 07, 2010, 11:06:37 AM »
Thank you Karol.  I have been so worried.  There has been a couple of bumps along the way, and I was worried that something else would postpone surgery.   We have shared a similar story and I can't believe we ended up with transplants so close together.  I am thrilled she is doing ok and can't wait to hear more from her. 

Love you Sunny!!
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MooseMom
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« Reply #5 on: October 07, 2010, 11:33:49 AM »
I can't believe that such good things can happen to people! :clap;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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« Reply #6 on: October 07, 2010, 12:41:17 PM »
Yeah Sister & Sonny!

God Bless...........    :pray;             :thumbup;
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Sluff
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« Reply #7 on: October 07, 2010, 01:34:32 PM »
Yay!   :thumbup;  Congratulations Sunny
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Bajanne
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« Reply #8 on: October 07, 2010, 04:31:28 PM »
 :bandance; :bandance; :bandance; :bandance;
Excellent News!
 :bandance; :bandance; :bandance; :bandance;
My caring thoughts are with you that all continues to do well  :cuddle;
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
kellyt
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« Reply #9 on: October 07, 2010, 05:38:31 PM »
 :yahoo;  Congratulations!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
chook
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« Reply #10 on: October 07, 2010, 05:52:47 PM »
 :bandance;  :bandance;  :bandance; All the best Sunny!
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Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
BASSMAN
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« Reply #11 on: October 07, 2010, 06:41:55 PM »
Wonderful news!!!!!!!!!!!!!!!!! :yahoo;
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Membranous Glomerulonephritis confirmed by biopsy in  April 1989
currently Stage IV CRF
GFR 18
Creatinine 3.9
AV fistula (radiocephalic) placed September 24, 2009
Began transplant evaluation November 11, 2009
Completed transplant eval and approved for transplant February 10, 2010
Received confirmation letter I am on the UNOS list February 18, 2010
Wife began donor testing March 1, 2010
Received living donor preemptive transplant from spouse July 22, 2010

http://www.caringbridge.org/visit/phillipjohnsen
paris
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« Reply #12 on: October 08, 2010, 12:56:39 PM »
How are you doing, Sunny?   There is a lot to get use to all at one time.   Take each day as it comes and rest, drink, drink, drink!!   

Love you   :cuddle;
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« Reply #13 on: October 09, 2010, 09:26:55 PM »
Congrats to Sunny
Get well to her sister.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
okarol
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« Reply #14 on: October 09, 2010, 10:57:34 PM »
Quote from: paris on October 08, 2010, 12:56:39 PM
   Take each day as it comes and rest, drink, drink, drink!!   

Yeah, and have some water too.  :rofl;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Lisa
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« Reply #15 on: October 10, 2010, 02:25:19 PM »
Congrats to you!!
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Lisa
born 1966 with PKD
ESRD 1987
PD started 1987
1st hemo 1989 (permacaths, grafts and fistulas)
1st Transplant 1990
Transplant failed 1994
Hemo 1994 (permacaths, grafts and fistulas)
2nd Transplant 1995
Hemo 2010 (permacath hopefully merging into PD)
PD training 3/16/10
CAPD...the CCPD until present
...waiting to go on "the list"
paris
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« Reply #16 on: October 10, 2010, 03:48:43 PM »
Quote from: okarol on October 09, 2010, 10:57:34 PM
Quote from: paris on October 08, 2010, 12:56:39 PM
   Take each day as it comes and rest, drink, drink, drink!!   

Yeah, and have some water too.  :rofl;

Water?  That is what they want us to drink?  Opps, I got the wrong message!   :rofl;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Chris
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« Reply #17 on: October 11, 2010, 12:54:49 AM »
Quote from: paris on October 10, 2010, 03:48:43 PM
Quote from: okarol on October 09, 2010, 10:57:34 PM
Quote from: paris on October 08, 2010, 12:56:39 PM
   Take each day as it comes and rest, drink, drink, drink!!   

Yeah, and have some water too.  :rofl;

Water?  That is what they want us to drink?  Opps, I got the wrong message!   :rofl;

Me too! But maybe that's why I have lasted this long so far. :-[
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Jean
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« Reply #18 on: October 11, 2010, 01:41:36 AM »
 :bandance;  :bandance;  :bandance;  YAY Sunny!!!!
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One day at a time, thats all I can do.
paris
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« Reply #19 on: October 12, 2010, 10:58:09 AM »
Thinking about you everyday, Sunny.   I am hoping things are going smoothly.  It takes a lot of energy to recover from this surgery.  And a lot of emotions to deal with.  Take your time, enjoy your naps, try to get some protein in every day.   Sorry --- I sound like a mother hen!!!  Know that I am concerned and wishing you well.     :cuddle;    :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #20 on: October 13, 2010, 03:49:33 PM »
I just got off the phone with Sunny's hubby Carl. He said she was out of the hospital in a couple of days but started having very serious nausea and could not keep food down. The bigger problem was throwing up the immunosuppressants that she needs for her new kidney. So on Sunday they readmitted her to the hospital and she is still there, on IV fluids and not eating much. They took away the Cellcept, thinking this might me the problem. They are going to try another immuno, perhaps Myfortic, tonight, and see how she tolerates it. The good news is her creatinine is a fabulous .9 and the kidney is doing fine! Hopefully they can get her feeling better and back home again soon. Carl has the laptop at the hospital so hopefully he can read Sunny and messages left here.

 :waving; Hi Sunny!!  We love you - sending lots of hugs and best wishes your way!!  :cuddle; :cuddle; :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
natnnnat
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« Reply #21 on: October 13, 2010, 05:05:32 PM »
Ooo, I hope your system settles down soon Sunny, puking is so not fun and we want you home and happy soon.   :grouphug; Gently does it. 
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
Chris
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« Reply #22 on: October 13, 2010, 05:24:40 PM »
Did I read that right? She was realeased after 2 days? That's really quick and stupid to me if that is the case especially since she is back in.
 
I hope she starts feeling better wit the switch.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Marina
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God Bless my donor family!! :)
« Reply #23 on: October 14, 2010, 10:53:17 AM »
I hope  you're  feeling  better  by now  sunny   :flower;

Sending   lots of   :pray;  and  healing  vibes  for both  you  and your  sis!!!!


and  like they  told you   :beer1; :beer1; :beer1;   (drink  drink  drink   lots of  water,  LOL)

take  good  care   :cuddle;
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"Anything is possible, if  you  BELIEVE....."  ~~~Joel  Osteen

"Yesterday is history, Tomorrow is a mystery, Today is a gift..... That is why it is called the present"

*************************************************
 Nov 1979 ~ Diabetes 
Apr. 2004- Nov 2010 ~ CAPD
Nov 9, 2010 ~  Received the  THE  GIFT OF LIFE at 
California Pacific  Medical  center  (CPMC)  in San  Francisco,  CA
Sunny
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Sunny
« Reply #24 on: October 14, 2010, 12:42:54 PM »
Thank you so much for all your well wishes. It  means a lot to me.
     They have gotten my immunos under control and I don't have the terrible vomiting or diaheria anymore.It was pretty difficult for a while there, but throughout it all, my kidney performed like a trooper with creatinine still about .9 ( from 3.6 whoop whoop!). They changed my Cellcept to Myfortic because Myfortic is coated and breaks down in the intestines instead of the stomache, which seemed to help. They are also cutting back on Prograff because my goal is 10 but my latest levels were 18. I'm titrating down the Prednisone too. I guess my little body just doesn't need as much, but they don't know that until they try standard procedures.I should be released from the hosptial by Friday.
     I saw my sister donor today after she came for clinic. She sure looks good and seems to be handling everything very well. For all those potential living donors out there, she admitted she feels no different whatsoever with one kidney. Her body can't tell the difference, which was one concern she had. Living donors rock, and have no need to fear.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
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