Sunny had her transplant!

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Sunny had her transplant!

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Topic: Sunny had her transplant! (Read 7304 times)

okarol

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Photo is Jenna - after Disneyland - 1988

Re: Sunny had her transplant!

« Reply #25 on: October 14, 2010, 12:59:09 PM »

Yay Sunny!! Good to "see" you!
I am happy they are able to work out the difficulties to get you back home soon!
Yes, your sister definitely ROCKS!!


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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU

BASSMAN

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Re: Sunny had her transplant!

« Reply #26 on: October 14, 2010, 06:50:32 PM »

Excellent news!!!!

I am so happy your function is so good. I am hanging around 1.4 now.

Whoa that Prograf level is awful high. No wonder you were having troubles. My T-team told me I was toxic at 13 and cut me back.


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Membranous Glomerulonephritis confirmed by biopsy in April 1989
currently Stage IV CRF
GFR 18
Creatinine 3.9
AV fistula (radiocephalic) placed September 24, 2009
Began transplant evaluation November 11, 2009
Completed transplant eval and approved for transplant February 10, 2010
Received confirmation letter I am on the UNOS list February 18, 2010
Wife began donor testing March 1, 2010
Received living donor preemptive transplant from spouse July 22, 2010

http://www.caringbridge.org/visit/phillipjohnsen

Chris

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Re: Sunny had her transplant!

« Reply #27 on: October 15, 2010, 11:15:54 PM »

Hope you got released Sunny and are feeling much better being out.


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Diabetes - age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
   -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
   - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures - Priceless

No two day's are the same, are they?

chook

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Born to be a Granma!

Re: Sunny had her transplant!

« Reply #28 on: October 16, 2010, 12:09:04 AM »

Checked in to see how you were going and glad to hear things are on the improve, Sunny.

Three cheers for your sister and great to hear she is gong well, too.


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Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"

Sunny

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Sunny

Re: Sunny had her transplant!

« Reply #29 on: October 21, 2010, 04:54:10 PM »

Just got back from Stanford clinic for follow up appointment (I've been three times since released from the hospital).
Everything is looking really good. Creatinine 1.2; prograf level 7 (too low,will increase dosage); Hemo level 11.0; still on myfortic 360 ml and prednisone 12.5 mil. No nausea and no need for blood pressure medicine! I feel pretty darn good. The #1 most important difference that I noticed immediately after my transplant, Oct 6th, was "clarity of thought" as I've come to call it. I can think crystal clearly again. It's the most amazing feeling and one I never expected. I need to drink more water to help the creatinine go back down again. I'd like to hand it to IHD since because of you, I am far more educated in all this than your average bear.


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Sunny, 49 year old female
pre-dialysis with GoodPastures

okarol

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Photo is Jenna - after Disneyland - 1988

Re: Sunny had her transplant!

« Reply #30 on: October 21, 2010, 04:59:56 PM »

Yay Sunny! Having clear thoughts must be great!
How's your sister doing?


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cariad

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What's past is prologue

Re: Sunny had her transplant!

« Reply #31 on: October 21, 2010, 05:04:33 PM »

Superb news, Sunny!

I was one of those unlucky sorts that felt no better, and actually a whole lot worse, after transplant. It has only been the last month or two that I can truly say that I am glad that I went through with it.

You sound like you are doing and feeling great! Long may it continue!


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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy

MooseMom

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Re: Sunny had her transplant!

« Reply #32 on: October 21, 2010, 05:20:23 PM »

Ooooh, "clarity of thought"! Novel concept! I'd like to think cristle cleer!


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"Eggs are so inadequate, don't you think? I mean, they ought to be able to become anything, but instead you always get a chicken. Or a duck. Or whatever they're programmed to be. You never get anything interesting, like regret, or the middle of last week."

RichardMEL

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Re: Sunny had her transplant!

« Reply #33 on: October 21, 2010, 06:02:38 PM »

great news!! love the "clarity of thought" comment too....

HOORAY!!


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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions

27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!!

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!

paris

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Re: Sunny had her transplant!

« Reply #34 on: October 21, 2010, 06:39:56 PM »

Good to see you, Sunny.

That first week or two is all about experimenting with the meds. Just when I think they have things right, they change something or add something! LOL I am thrilled you feel clear headed. That was one of the major things I noticed. Or maybe I finally cared enough to think and listen to people! Keep drinking! Some days it is hard to get that much fluid in. I guess that is our job right now. You are constantly in my thoughts. I am so glad this has happened. Take care!


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It's not what you gather, but what you scatter that tells what kind of life you have lived.

Des

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Re: Sunny had her transplant!

« Reply #35 on: October 22, 2010, 02:46:31 AM »

Congrats - happy to here that you are doing well.


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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)

billybags

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Re: Sunny had her transplant!

« Reply #36 on: October 22, 2010, 06:47:18 AM »

Thats absolutely brilliant.You take care.


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chook

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Born to be a Granma!

Re: Sunny had her transplant!

« Reply #37 on: October 31, 2010, 06:22:57 PM »

Yeah, Sunny - great to read that you are feeling so much better!


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Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"

Sunny

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Sunny

Re: Sunny had her transplant!

« Reply #38 on: November 02, 2010, 04:59:25 PM »

Still doing really well.
My body is quickly improving too. My calcium levels are normal,I'm no longer anemic,cholesterol is lowering,glucose levels are lowering,parathyroid improving,and so many more improvements going on with my body that kidneys play so much a part of. The implications are far reaching. My sister is doing extremely well and recovering quickly.She still has incision pain, but is getting out and doing normal things. My prograff is 4 mill twice a day with a goal of 8, Myfortic is 360 mill twice a day,prednisone 5 mill per day. I am a little moody from the prednisone, but that's getting better since my dose has lowered. I have the Prograff tremors, but am told that will get better as they figure out my correct dosage. My doctor keeps reminding me to look at the longterm goal about 3 to 6 months out for feeling normal again.