kremizin
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« on: September 23, 2010, 04:06:43 AM » |
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hello guys, actually it's not me but my mom who is the candidate for D. Right now she's taking kremizin as a last resort before actually going into dialysis. . I know that sooner or later, D will be inevitable that is why I am here. This forum is a vast source of knowledge. Good day.
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murphy
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« Reply #1 on: September 23, 2010, 09:08:11 AM » |
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Welcome to you and your mom. Curious what is kremizin? I thought they tried everything on me and haven't heard of that.
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Rerun
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« Reply #2 on: September 23, 2010, 12:30:06 PM » |
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Hello kremizin and welcome to IHD. I hope your Mom can stay off dialysis for a while longer. Arey your the son or daughter? I hope you enjoy the side. We now have a pre dialysis section. Rerun, Moderator  |
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galvo
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« Reply #3 on: September 23, 2010, 02:14:24 PM » |
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G'day kremizin and . |
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Galvo
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Bajanne
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« Reply #4 on: September 23, 2010, 08:41:06 PM » |
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Welcome to our community! (What does Mabuhay mean?) Glad your concern for your mom brought you to us. Please continue to let us know how she is doing. You are now part of the IHD family.  Bajanne, Moderator |
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« Last Edit: September 23, 2010, 08:44:13 PM by Bajanne »
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"  I LOVE my IHD family! |
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kremizin
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« Reply #5 on: September 26, 2010, 07:02:20 AM » |
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Mabuhay has a lot of meaning...hello is what i meant. Filipinos will greet you mabuhay to say hello with intense feeling.  @murphy...kremizin is what my mom is taking right now to delay dialysis, hopefully. according to the doctor...it came from japan and it's action is to lessen the absorbability of protein from the foods you are taking. @rerun...son. thank you for your warm welcome. |
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Bajanne
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« Reply #6 on: September 26, 2010, 10:28:54 AM » |
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Thanks! I will be able to add that to my Tagalog greetings. I can say Magadang Umaga/Hapon/Gabe: Como staca. Mabute. Salamat. Pahalam. I will surprise my Filipino friends with MABUHAY!!
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith" I LOVE my IHD family! |
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kremizin
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« Reply #7 on: September 26, 2010, 10:51:23 AM » |
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Thanks! I will be able to add that to my Tagalog greetings. I can say Magadang Umaga/Hapon/Gabe: Como staca. Mabute. Salamat. Pahalam. I will surprise my Filipino friends with MABUHAY!!
 you have a lot of tagalog words in your bag! yes, you can greet them "mabuhay!" |
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ChickenLittle56
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Chickenlittle and Maria
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« Reply #8 on: September 26, 2010, 05:39:41 PM » |
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Welcome kremizin to IHD. I am going to try Mabuhay on our charge nurse, who is a filipiino, tomorrow morning. |
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As I was coming out the Nephrologist office, I thought the sky was falling.
Knew I was going on dialysis since November 1999.
Had a fistula put in January 2000.
Been on 4-1/2 hour dialysis since August 28, 2001. (They took out 35Kg that single week)
Maria hasbeen on hemodualysis since January, 2005
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kremizin
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« Reply #9 on: September 27, 2010, 03:31:55 PM » |
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Welcome kremizin to IHD. I am going to try Mabuhay on our charge nurse, who is a filipiino, tomorrow morning.
your charge nurse will be surprised.  |
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ChickenLittle56
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Chickenlittle and Maria
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« Reply #10 on: September 27, 2010, 09:33:47 PM » |
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Kremizin I greeted the filipino charge nurse this morning with mabuhay and her eyes opened up and said mabuhay back in the correct pronunciation. Thank you for giving us another word to greet filipinoes.
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As I was coming out the Nephrologist office, I thought the sky was falling.
Knew I was going on dialysis since November 1999.
Had a fistula put in January 2000.
Been on 4-1/2 hour dialysis since August 28, 2001. (They took out 35Kg that single week)
Maria hasbeen on hemodualysis since January, 2005
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kremizin
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« Reply #11 on: September 28, 2010, 08:33:22 AM » |
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Kremizin I greeted the filipino charge nurse this morning with mabuhay and her eyes opened up and said mabuhay back in the correct pronunciation. Thank you for giving us another word to greet filipinoes.
hehehe....you usually pronounce it as ma-bu-HEY!  it should be ma-bu-HIGH! |
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ChickenLittle56
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Chickenlittle and Maria
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« Reply #12 on: September 28, 2010, 09:30:02 AM » |
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I'm glad you corrected me.  Do you have any other greetings or good-byes? |
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As I was coming out the Nephrologist office, I thought the sky was falling.
Knew I was going on dialysis since November 1999.
Had a fistula put in January 2000.
Been on 4-1/2 hour dialysis since August 28, 2001. (They took out 35Kg that single week)
Maria hasbeen on hemodualysis since January, 2005
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kremizin
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« Reply #13 on: September 29, 2010, 08:56:41 AM » |
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kamusta ka? how are you? ka-MOOSE-ta ka? |
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AguynamedKim
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« Reply #14 on: September 29, 2010, 02:59:27 PM » |
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Welcome Kremizin - although that feels weird because I believe you posted your introduction before me. I have been very intrigued about the drug that inspired your username, Kremezin (AST-120) which appears to be a form adsorptive carbon. It appears to absorb uremic toxins secreted in the digestive tract or produced in the intestinal tract and excretes then with faeces. http://www.mt-pharma.co.jp/e/release/nr/mpc/2006/pdf/e061108.pdf Sounds like it's similar to a phosphate binder. Like you said, it originated in Japan. It has been researched over the past 15-20 years. My question to you is where are you located - or at least what country? The only info I've been able to find are clinical trials and results in Japan and Korea. I'm wondering specifically if it's available, even as a trial, in the US. |
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kremizin
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« Reply #15 on: September 29, 2010, 03:50:45 PM » |
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@kim...i'am from the Philippines. although it is not yet approved to be marketed here, some doctors are the ones dispensing it. yes, that's what we've been told...it acts as a binder for uremic toxins which will somewhat delay the need for dialysis.
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« Last Edit: September 30, 2010, 09:12:23 AM by kremizin »
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AguynamedKim
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« Reply #16 on: September 29, 2010, 04:07:15 PM » |
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Mabuhay and thank you for the information. You would have thought I might have clued in that you were in the Phillipines but I don't like assuming anything.  I did find that they are conducting trails in the US http://clinicaltrials.gov/show/NCT00501046 but will post about that elsewhere. Welcome again - I hope the kremizin works well for your mother and she's able to enjoy a long delay to treatment. |
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« Last Edit: September 29, 2010, 04:45:42 PM by AguynamedKim »
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kremizin
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« Reply #17 on: September 30, 2010, 08:47:06 AM » |
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thanks kim. just like what the doctor told us...when you're in this kind of situation, you'll try everything and anything! you're back is against the wall.  |
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kremizin
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« Reply #18 on: July 23, 2011, 03:41:03 PM » |
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ma-boo-high u-lit sa in-yo!  wow...it's been a long time since i last visited the forum. |
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willowtreewren
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« Reply #19 on: July 23, 2011, 05:18:57 PM » |
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And how is your mom doing these days?
Aleta
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Wife to Carl, who has PKD. Mother to Meagan, who has PKD. Partner for NxStage HD August 2008 - February 2011. Carl transplanted with cadaveric kidney, February 3, 2011. |
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Ang
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« Reply #20 on: July 23, 2011, 09:21:49 PM » |
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live life to the full and you won't die wondering
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kremizin
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« Reply #21 on: July 24, 2011, 08:43:28 AM » |
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And how is your mom doing these days?
Aleta
well...she's doing fine except for the arthritis that's bothering her once in a while. we were lucky that she's not into D yet. it was almost a year since her neph ecourages us to have the fistula. BTW..it's her birthday today. |
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willowtreewren
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« Reply #22 on: July 24, 2011, 08:57:59 AM » |
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 to your mom! I'm glad she has avoided the big D. Aleta
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Wife to Carl, who has PKD. Mother to Meagan, who has PKD. Partner for NxStage HD August 2008 - February 2011. Carl transplanted with cadaveric kidney, February 3, 2011. |
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kremizin
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« Reply #23 on: July 24, 2011, 09:11:09 AM » |
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to your mom!
I'm glad she has avoided the big D.
Aleta
thanks ma'am aleta. she's been using kremizin for almost a year now...i guess it helped her avoid the big D. anyone here heard or used KIBOW? |
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AguynamedKim
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« Reply #24 on: July 26, 2011, 09:47:30 PM » |
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Mubuhay Kremizin! Great to hear back from you and so happy that the Kremizin seems to be helping. Any postponement of dialysis is going to be good thing if your mom is feeling well. And Happy Birthday to her!
I just looked at the Kibow product and it looks very interesting. The principle seems sound but I don't have any experience with it. I hope your mom continues to be as healthy as possible. Let us know if you try the Kibow and if that helps.
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