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Author Topic: i may lose the kidney  (Read 9170 times)
karen547
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« on: September 23, 2010, 03:07:57 AM »
I went into clinic monday and everything was fine until we looked at labs my creatnine went to 8 and they can't figure why. They did a biopsy and ultrasound which shows some damage but they know its not cellular rejection or a urine leak so I'm just waiting for them to figure out what type of rejection if any this is
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monrein
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Might as well smile
« Reply #1 on: September 23, 2010, 04:39:55 AM »
So sorry to read this Karen.  I'm keeping everything crossed that they will be able to figure out what might be going on and reverse the rejection.   :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
carol1987
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« Reply #2 on: September 23, 2010, 04:44:03 AM »
Praying that they can help.... :cuddle;
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Diagnosed with  PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was  "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
RichardMEL
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« Reply #3 on: September 23, 2010, 05:07:18 AM »
whoa!!!

Nasty surprise!!!!! :(

Try and stay positive - it could just be a more mild case of rejection, or even something else... did they re-do the test?? Hang in there... none of us will let up wishing the very best for you and your new gift!!!!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Dianejt
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« Reply #4 on: September 23, 2010, 05:14:54 AM »
 :pray;
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caregiver to husband Frank

bladder cancer 1994
renal failure April 2009 due to blocked right ureter. Left kidney 20% function
November 18 2009 surgery to remove right ureter.
April 3, 2010 removal bladder, prostrate, left kidney.
June 11, 2010 started Hemo @ hospital
July 2, 2010 Embolized right Kidney due to hemoraging of tumor
September 11, 2010 RIP my love
billybags
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« Reply #5 on: September 23, 2010, 06:07:55 AM »
Karen, don't panic, they will do their best to keep it working. Good luck
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #6 on: September 23, 2010, 06:36:57 AM »
 :cuddle; I hope they can rescue the kidney - best wishes Karen.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
jbeany
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Cattitude
« Reply #7 on: September 23, 2010, 08:39:33 AM »
 :grouphug;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
lou
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« Reply #8 on: September 23, 2010, 01:59:36 PM »
 :cuddle;
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galvo
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« Reply #9 on: September 23, 2010, 02:11:18 PM »
 :grouphug;
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Galvo
natnnnat
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« Reply #10 on: September 23, 2010, 04:10:52 PM »
Gregory's kidney took quite a while to settle in for the long haul.  Hoping your kidney will settle down soon.   :grouphug;
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
lola
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I can fly!!!
« Reply #11 on: September 23, 2010, 04:22:26 PM »
oh noooooo hang in there, maybe it's taking a little nap??? :cuddle; :cuddle;
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www.caringbridge.org/visit/ottomachado
cloud393
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« Reply #12 on: September 23, 2010, 06:04:51 PM »
So sorry for this setback.  I'll have you in my prayers. :pray;
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May you live as long as you want and never want as long as you live.
rookiegirl
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« Reply #13 on: September 23, 2010, 06:43:55 PM »
Praying for you!
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
Sluff
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« Reply #14 on: September 23, 2010, 06:45:13 PM »
Oh damn I hope it is not going to be bad news. Hang in there things aren't always what they appear to be. I'm praying for you.  :grouphug;
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kellyt
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« Reply #15 on: September 23, 2010, 07:01:48 PM »
I'm so sorry to hear this.  You're in my thoughts and prayers.   :pray;    I hope they can reverse this quickly.   :cuddle;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
st789
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« Reply #16 on: September 23, 2010, 07:43:07 PM »
 :grouphug; :pray;
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Jean
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« Reply #17 on: September 24, 2010, 12:04:26 AM »
Oh, KAren, I so hope not. Praying for you.
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One day at a time, thats all I can do.
Poppylicious
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« Reply #18 on: September 24, 2010, 09:06:59 AM »
Oh blimey.  I have everything crossed for you. *hugs*
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
Rerun
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Going through life tied to a chair!
« Reply #19 on: September 24, 2010, 09:26:33 AM »
Karen how do you feel?  Other than scared and depressed.  Do you feel sick?  I hope and pray everything is OKAY. 

          :pray;
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Sunny
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Sunny
« Reply #20 on: September 24, 2010, 12:59:10 PM »
I hope they find an answer quickly.Don't want you to lose that kidney.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
Lisa
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« Reply #21 on: September 24, 2010, 04:36:24 PM »
 :grouphug;
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Lisa
born 1966 with PKD
ESRD 1987
PD started 1987
1st hemo 1989 (permacaths, grafts and fistulas)
1st Transplant 1990
Transplant failed 1994
Hemo 1994 (permacaths, grafts and fistulas)
2nd Transplant 1995
Hemo 2010 (permacath hopefully merging into PD)
PD training 3/16/10
CAPD...the CCPD until present
...waiting to go on "the list"
natnnnat
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« Reply #22 on: September 24, 2010, 05:50:28 PM »
I logged in this morning expressly to see how you are going Karen.  Any news?   :pray;
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
Desert Dancer
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« Reply #23 on: September 24, 2010, 06:21:05 PM »
Fingers crossed for you! Hang in there.
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
ChickenLittle56
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Chickenlittle and Maria
« Reply #24 on: September 24, 2010, 08:49:52 PM »
Praying that you and your kidney are ok, 
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As I was coming out the Nephrologist office, I thought the sky was falling.
Knew I was going on dialysis since November 1999.
Had a fistula put in January 2000.
Been on 4-1/2 hour dialysis since August 28, 2001. (They took out 35Kg that single week)

Maria hasbeen on hemodualysis since January, 2005
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