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KICKSTART
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In da House.

« on: September 22, 2010, 03:23:29 PM »

Well we have had loads of rain over here lately and i must confess ive got a secret ! I love to listen to the rain on a glass or tin roof, but seeing i dont have either ive taken to standing outside in the garden with my new umberella . I have bought one of those dome shaped clear ones , that comes right down over your head and shoulders and now after a hellish day i stand out under it , maybe only for 10 mins , but the fresh air and the sound of the rain is so soothing ! I also like to snuggle under my duvet and listen to the rain through an open window , like tonight !  Weird or what?  Anyone else find something unusual soothing ?
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
thegrammalady
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« Reply #1 on: September 22, 2010, 03:50:29 PM »

no, not weird at all. i love the sound of rain, so much better than snow. i especially like the smel of rain and wet cement.
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

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For You Are Crunchy And Taste Good With Ketchup
cloud393
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« Reply #2 on: September 22, 2010, 04:12:04 PM »

Wehave a camper set up for the season and I love going to sleep listening to a heavy rain on the roof.  like you said...soooothing.
I hate the winter though.  Can't stand the cold!  My dream is to some day move to a Caribbean island.  I just love the sound of the ocean.
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May you live as long as you want and never want as long as you live.
MooseMom
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« Reply #3 on: September 22, 2010, 05:02:26 PM »

Ricky G, all my years living in the UK taught me to love the colour grey.  I grew to love the English drizzle; it's soothing and it makes the air smell so nice.  Our bedroom is painted grey, and it's remarkably relaxing.  I know the Brits love to complain about the weather, but I learned to love that soft rain.  Here in Chicago, when it rains, it RAINS...everything is so extreme.  And LOUD!

I always slept with the windows open no matter the weather.  Now, I have to keep the windows closed for some of the time because of the heat or bugs.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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« Reply #4 on: September 22, 2010, 10:19:25 PM »

Anyone else find something unusual soothing ?

 ;D
Well, one day when I was hot headed and young (now I'm just hot headed), I did that thing where you say to the boss, "you know what you can do with this job?"  And then I marched out in grand dudgeon.   While it was fabulous and I was fabulous at the time, I was deflated a  long time after the high wore off, and then I was unemployed a little while after that.  I don't recommend this course of action which I give a rating of one star.

The point is that the afternoon after my grand exit, I felt particularly low and grubby.  Now like some others on these boards, I looooove chickens.  I had a little flock of about 5 old chooks, and two chicks which someone had donated.  I went down into the garden to check on the chooks, and I ended up sitting on a crate in the chook pen, with the chicks climbing on me.  They climbed on my shoulders and onto my head, and pooped in my hair.  It was strangely comforting to commune with the chickens.
And that is the end of my story of strange comforts.
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
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Cattitude

« Reply #5 on: September 23, 2010, 08:46:15 AM »

I want more than just rain - there's nothing more relaxing than watching thunderheads and lightening rolling in over the lake.  Better yet if you have a covered porch you can watch from so you can be outside without getting drenched while you watch.  Ahhhhhh.
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Hazmat35
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« Reply #6 on: September 23, 2010, 09:50:19 AM »

I'm originally from the north (Detroit, U.S.A), and love the changing leaves and colors of the fall. 

Can't say that I love the winters with all the blowing cold snow, but now I live in FLORIDA and love the winter months.  It will finally get DOWN to the mid 70's instead of this blasted 90 degree plus days we've been having. 

Can't beat Florida in the winter time! 
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Brother Passed away - 1990 - Liver Disease
Diagnosed w/ Polycystic Kidney Disease - 1998
Mother passed away - Feb. 1999 - PKD
Sister passed away - Feb. 2006 - PKD
AV Fistula / Upper Left Arm - September 2009
Father passed away - September 2009
In-Center Hemo Dialysis - April 2010
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Diagnosed w/ A-Fib October 2017
Surgery to repair Hiatal Hernia 2018
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Hating Dialysis since Day 1 and everyday since then!!!!  :)
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« Reply #7 on: September 24, 2010, 09:21:06 AM »

Kickie love, where did you buy your umbrella?  I've been wanting one, but have only found small ones made for children.  I had one when I was little and LOVED it. 

As for the rain, I think I'm the only person I know who will happily turn down a lift when it's raining.  I enjoy walking in the rain; it clears my head.  And on the plus side, when I turn up at work looking like a drowned rat (like today) I get oodles of sympathy.

 ;D

Blokey loves listening to the rain at night, particularly when the rain is accompanied by thunder storms. 
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- wife of kidney recepient (10/2011) -
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Everything was beautiful, and nothing hurt.
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« Reply #8 on: September 24, 2010, 04:58:53 PM »

Nah! Winter is finished. We are now into spring, 27 degree heat, smell of fresh lawn and cricket. Tee hee. :lol;
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« Reply #9 on: September 24, 2010, 07:52:28 PM »

I can't wait until it starts raining again, so I can put on a warm sweater, take my laptop out, and sit on my (covered) balcony and listen to the rain. I love the smell of the air when it rains too.
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- Matt - wasabiflux.org
- Dialysis Calculators

3/2007Kidney failure diagnosed5/2010In-center hemodialysis
8/2008Peritoneal catheter placed1/2012Upper arm fistula created
9/2008Peritoneal catheter replaced3/2012Started using fistula
9/2008Began CAPD4/2012Buttonholes created
3/2009Switched to CCPD w/ Newton IQ cycler            4/2012HD catheter removed
7/2009Switched to Liberty cycler            4/2018Transplanted at UCLA!
Riki
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« Reply #10 on: September 29, 2010, 03:01:21 AM »

I hate winter, mostly because it means I'm housebound.  It's not like I"m not housebound now, but there is no snow and ice, so my homebodyness is my choice.  In winter, it's not a choice.

I do love rain, though, and listening to it hitting the roof of the house is soothing.  I also love big thunderstorms with big flashes of lighting, especially at night when it's easier to see the flashes.

I'd say my weird comforting thing is the smell of exhaust, gasoline and burnt rubber.  When I was little, we had a garage in the basement, and Dad kept a drag car there. I don't know if he ever raced it, but he kept it in our basement.  Every once in a while, he'd go downstairs and start it up, and rev the crap out of it.  The whole house would shake, and the exhaust fumes would just roll through the house.  We were always around race tracks when we were kids too, so those smells were everywhere.  When my bro and I moved into an apartment together a few years ago, we lived next door to a gas station.  We both used to go outside or open a window the day the gasoline truck arrived with it's weekly delivery, just so we could take in the smell of the gasoline in the air.  He says that we're probably the only two people in the world who get warm fuzzies when stuck behind a bus in traffic.. *L*
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
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ChickenLittle56
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Chickenlittle and Maria

« Reply #11 on: September 30, 2010, 07:03:09 PM »

In a way I hate summer because it is to hot to be outside. For about 4-5  months I am stuck inside cooling off. I do much miss the summer up north with all the tall green trees. I don't even mind the snow. That reminds me, about 1/4 inch of snow fell on the ground and people just south of us came to see and pick it up. That was a rarity in our neck of the woods(cactus). A little ice on the ground can and did shut the whole town down. People were just to afraid to drive. pansies  :rofl; :rofl; :rofl;
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As I was coming out the Nephrologist office, I thought the sky was falling.
Knew I was going on dialysis since November 1999.
Had a fistula put in January 2000.
Been on 4-1/2 hour dialysis since August 28, 2001. (They took out 35Kg that single week)

Maria hasbeen on hemodualysis since January, 2005
gregory
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« Reply #12 on: November 18, 2010, 04:00:56 PM »

I live in the mountains so I sometime get stranded in the city if it snows during my treatment, The highway patrol closes the freeway. So I get a motel room and room service and watch movies
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Been on dialysis 3 years. Had a transplant that lasted 22 years. Didn't have any problems with medications. Antibodoes built up and rejected it, they have new meds, for that now. Back on the list. Living day to day.
kitkatz
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« Reply #13 on: November 20, 2010, 11:58:40 PM »

Snow in Southern Ca this weekend in the Mountains. Rain in our town!
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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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« Reply #14 on: November 21, 2010, 03:20:53 PM »

snowed here yesterday too.  This is what my side yard, looking out the back door, looked like as it was falling yesterday..

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dialysis - April 2001-May 2001
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cloud393
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« Reply #15 on: November 21, 2010, 04:47:22 PM »

Oh Riki, yuck!!!!  I'm not ready for that stuff.  Brrrrr...... :'(
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galvo
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« Reply #16 on: November 21, 2010, 06:43:09 PM »

I looked at your photo, Riki, and started shivering!
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Galvo
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« Reply #17 on: November 22, 2010, 10:28:11 AM »

I looked at your photo, Riki, and started shivering!
Ha. Me too! 

Riki, that's about as much snow as we get over here in the UK for the whole of winter! (Although, last year we had a tad more.)

 ;D
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
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Everything was beautiful, and nothing hurt.
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« Reply #18 on: November 22, 2010, 01:29:38 PM »

But the picture looked so pretty. Was 39 Celsius on Sunday and it's only November. I have seen snow but never lived with it.
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Going through life tied to a chair!

« Reply #19 on: November 23, 2010, 02:19:55 PM »

It is about 3 outside.  Going to get down to -15 tonight.  The neighbor kids are getting RICH from shoveling my driveway.  BRATS!  Whatever happened to helping old ladys out?   >:D

Please stop snowing!       >:(
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galvo
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« Reply #20 on: November 23, 2010, 10:38:25 PM »

Sitting here in my undies at 28c.
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Galvo
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« Reply #21 on: November 24, 2010, 05:19:28 AM »

Oh, I DO miss winter - it's so beautiful! I used to love when we would get ice storms in Jersey; every last twig and blade of grass completely encased in ice. The moon would light up everything and made the whole world look like it was made out of sparkly glass. The snow muffled everything so it was completely silent, except for the wind rustling and hissing through the pines and cedars.  Brrr! Now I remember: the cold!  I can't stand the cold!

I wouldn't mind winter if I didn't ever have to drive in it. I'd LOVE winter if I could just stare at it through a bay window with a book and a cup of hot chocolate. Until that day, I'm stuck in Arizona. (January in Arizona is utterly sublime, but you earn every last bit of it through the summer.)
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

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« Reply #22 on: November 24, 2010, 06:16:54 AM »

A beautiful picture - much like a postcard - but I wouldn't want to be out in it.

Right now here though as summer approaches it's about 20C (closing in on 70F), raining and 95% humidity - yes it's very sticky - and I should be sleeping.. but it's too icky to sleep. Bonus is all this sweat means my fluid weight will be down for D tomorrow... I might have an iced water :)

I just hope this horrid humidity breaks soon....
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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Wishin' I was Fishin'

« Reply #23 on: November 24, 2010, 07:18:40 AM »

We are getting freezing rain and "wintery mix" today and tomorrow...brrrr, walking the dogs in this will be "brisk". 
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« Reply #24 on: November 25, 2010, 10:13:52 AM »

Currently the temperature over here is about five degrees below the average for this time of year.  It also appears to be snowing throughout the UK, but not here in the FlatLands. 

*happy sigh*
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
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