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I Hate Dialysis Message Board
Dialysis Discussion
Dialysis: Spouses and Caregivers
Sharon has made the BIG decision
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Topic: Sharon has made the BIG decision (Read 13800 times)
gothiclovemonkey
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Re: Sharon has made the BIG decision
«
Reply #50 on:
September 26, 2010, 06:09:53 AM »
I didnt know you, but im very sorry for your loss.. I know first hand those words really are no comfort, but still nice to hear, i think.
I cant imagine how hard it has been for you, but its wonderful that ur outlook on it, is somewhat positive. she is no longer sufffering so i think that makes it easier. (thats how i felt when my mom died)
Thank you, also, for sharing this with us...
Something i wrote, seems relevant here
Hiding pains and smiling face,
stronger now, winning the race,
holding out for all that love,
wondering now whats up above,
praying now that i can fake,
feeling good, for my families sake.
smiles, and grins, show no pain,
happy memories to fill the lane,
Happy friends and loving son,
not regretting what ive done,
making sure its all alright,
even when days arent that bright,
living now day to day
holding out until they say... Its ok...
Logged
"Imagine how important death must be to have a prerequisite such as life" Unknown
HemoDialysis since 2007
TX listed 8/1/11 inactive
LISTED ACTIVE! 11/14/11 !!!
Meinuk
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Re: Sharon has made the BIG decision
«
Reply #51 on:
September 26, 2010, 08:21:46 AM »
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Research Dialysis Units:
http://projects.propublica.org/dialysis/
52 with PKD
deceased donor transplant 11/2/08
nxstage 10/07 - 11/08; 30LS/S; 20LT/W/R @450
temp. permcath: inserted 5/07 - removed 7/19/07
in-center hemo: m/w/f 1/12/07
list: 6/05
a/v fistula: 5/05
NxStage training diary post (10/07):
http://ihatedialysis.com/forum/index.php?topic=5229.0
Newspaper article: Me dialyzing alone:
http://ihatedialysis.com/forum/index.php?topic=7332.0
Transplant post 11/08):
http://ihatedialysis.com/forum/index.php?topic=10893.msg187492#msg187492
Fistula removal post (7/10):
http://ihatedialysis.com/forum/index.php?topic=18735.msg324217#msg324217
Post Transplant Skin Cancer (2/14):
http://ihatedialysis.com/forum/index.php?topic=30659.msg476547#msg476547
“To doubt everything or to believe everything are two equally convenient solutions; both dispense with the necessity of thought.” - Henri Poincare
okarol
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Photo is Jenna - after Disneyland - 1988
Re: Sharon has made the BIG decision
«
Reply #52 on:
September 26, 2010, 09:33:47 AM »
Godspeed Sharon.
Sending warm hugs and love to you Tom, and your family.
Thank you for all you did for her. You're a wonderful husband.
Logged
Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story --->
https://www.facebook.com/WantedKidneyDonor
Please watch her video:
http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock!
http://www.livingdonorsonline.org
-
News video:
http://www.youtube.com/watch?v=J-7KvgQDWpU
vcarmody
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Re: Sharon has made the BIG decision
«
Reply #53 on:
September 26, 2010, 10:09:32 AM »
I'm so sorry to hear about your loss. Your were a great husband. May Sharon RIP and hopefully she knows how much she has touched may of our lives even though we didn't know her personally.
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Caregiver to husband Chris, NxStage 11-2009
Darthvadar
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Re: Sharon has made the BIG decision
«
Reply #54 on:
September 26, 2010, 12:07:30 PM »
Tom, I'm very sorry to hear of Sharon's death... May she rest in peace.....
Thinking of and praying for you and your family.... May God bless and protect you all....
Love...
Darth....
God saw that you were getting tired
And the cure was not to be,
So He put His arms around you
And whispered, "Come with Me."
With tearful eyes we watched you suffer
And saw you fade away.
Although we loved you dearly,
We could not make you stay.
A golden heart stopped beating,
Busy hands to rest.
God broke our hearts to prove to us,
He only takes the best.
It's lonesome here without you
We miss you so each day,
Our lives aren't the same
Since you went away.
When days are sad and lonely,
And everything goes wrong,
We seem to hear you whisper,
"Cheer up and carry on."
Each time we see your picture,
You seem to smile and say,
"Don't cry, I'm in God's keeping,
We'll meet again someday."
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
monrein
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Might as well smile
Re: Sharon has made the BIG decision
«
Reply #55 on:
September 26, 2010, 01:38:13 PM »
So very sorry for your loss Tom. May Sharon rest in peace and may you and your family find comfort in knowing how many of us grieve with you.
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
cariad
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What's past is prologue
Re: Sharon has made the BIG decision
«
Reply #56 on:
September 26, 2010, 01:56:41 PM »
My condolences, Tom.
Rest in peace, Sharon.
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria
People have hope in me. - John Bul Dau, Sudanese Lost Boy
looneytunes
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Wishin' I was Fishin'
Re: Sharon has made the BIG decision
«
Reply #57 on:
September 26, 2010, 03:15:48 PM »
Tom, my heart goes out to you and your family during this time.
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"The key to being patient is having something to do in the meantime" AU
silverhead
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Re: Sharon has made the BIG decision
«
Reply #58 on:
September 26, 2010, 04:16:39 PM »
My friends, I again thank you for your sentiments, I just got off the phone with my daughter, who was with me throughout the experience, she was pointing out all the little odd things that occurred all through the day that were almost serendipity like, the fact that the weather which had been typical Seattle fall cool and rainy all week turned to a gorgeous mid seventies, clear skies day that really brightened her room, I had to take a break and retrieve something from the car and as i exited the elevator I met a lady that was walking next to me in the long hallway, a conversation ensued and she mentioned she just talked to her daughter who had moved to Wisconsin, I asked where she lived (Sharon and I were from there originally) she said Janesville and I said "my God, I was born and raised there" and after we were outside she told me her husband had some problems, amongst them was he was facing Dialysis and she was trying to learn more about it and I pointed her to this wonderful sight to get all the facts she needs.
Returning to the room, the family sat around and talked of our lives and how Mom was such an influence on all of us, and I'm sure Sharon could her us, but could not respond, Daughter Sherri said it's time to get something to eat besides the typical cafeteria food, She said there was a first class burger joint down the street and she made a burger run for us, now earlier that day I had run home quickly to shower and change cloth's and on my return scored a rarely open street space close to her room, when Sherri returned her run the space in front of my car was open for her to park in, I can tell you this just does not happen around that Hospital. We sat and ate our Burger and Chocolate malts and I really believe Sharon knew that we were happily fed on one of our our favorite meals and before I quite finished my malt she just slipped away.....
Tom
«
Last Edit: September 26, 2010, 04:19:46 PM by silverhead
»
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Do not argue with an idiot. He will drag you down to his level and beat you with experience.
cloud393
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Re: Sharon has made the BIG decision
«
Reply #59 on:
September 26, 2010, 04:42:31 PM »
Tom, my heart breaks for you and your family. I'm soo sorry for your loss.
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May you live as long as you want and never want as long as you live.
okarol
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Photo is Jenna - after Disneyland - 1988
Re: Sharon has made the BIG decision
«
Reply #60 on:
September 26, 2010, 05:21:02 PM »
I know it had to make Sharon feel better that she had family around, and as painful as it was to know she was dying, the serenity of having you all close, and in her room as she was slipping away, seems the best way to go, in my opinion. I appreciate you sharing your thoughts and feelings through this Tom.
Logged
Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story --->
https://www.facebook.com/WantedKidneyDonor
Please watch her video:
http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock!
http://www.livingdonorsonline.org
-
News video:
http://www.youtube.com/watch?v=J-7KvgQDWpU
paris
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Re: Sharon has made the BIG decision
«
Reply #61 on:
September 26, 2010, 06:27:33 PM »
Dear Tom, thank you for sharing this heartbreaking part of your story. You have been such an amazing husband and caregiver to Sharon. We all want happy endings. I think Sharon got the happy ending -- free of pain forever. My God hold you in His loving hands as you go through this incredibly hard time.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
boswife
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us and fam easter 2013
Re: Sharon has made the BIG decision
«
Reply #62 on:
September 26, 2010, 08:24:41 PM »
ya know Tom, as much as her passing hurts even me, there is an odd blessing i feel when you speak of her, and her passing. It was her time and she got to choose it. How amazing is that. I just lost my mom on the tenth of this month, and so it too is very fresh but i believe she too got to choose her time. My biggest sadness is that i didnt know she was going to slip away, (though only a month before she said she thinks this is her last year) and only have the day befores loving conversation with her before she sliped away in her sleep. I think it was intentional on her part though. She always protected me from what she percieved as someting to much for me to handle bless her heart. I thank you for sharing your experience with us. Very much so..
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
RichardMEL
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Re: Sharon has made the BIG decision
«
Reply #63 on:
September 27, 2010, 12:56:38 AM »
My best wishes to you Tom, your family and of course Sabrina the cat who will miss her mom as much as you all miss her. What can one really say at a time like this except that Sharon's struggle is over. She's in a happier, pain free place now and she went knowing how much you all loved her, and made the efforts to be there and spend that time.
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!!
BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
carol1987
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Re: Sharon has made the BIG decision
«
Reply #64 on:
September 27, 2010, 05:03:54 AM »
I am so sorry.....
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Diagnosed with PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
Rerun
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Going through life tied to a chair!
Re: Sharon has made the BIG decision
«
Reply #65 on:
September 27, 2010, 02:09:31 PM »
I trust she is in a better place. May she rest in peace. Tom, I'm so sorry for your loss. Come here anytime to talk with friends.
God Bless you and your family.
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Mimi
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For any who do not like me I use - prayer.
Re: Sharon has made the BIG decision
«
Reply #66 on:
September 27, 2010, 10:26:51 PM »
Tom, Sharon, you and your family have been on my mind since you wrote us that Sharon had made her big decision. I know the reason
she has been on my mind so, for my family had a A Sharon, too,
except her name was Robin. When she was 13 they discovered a
malignant tumor on her brain stem. They tried to get it all but it was just impossible. Her body was ruined and she spoke with a slur, and
also could not walk. She lived the rest of her life in that condition. Then 26 years later her kidneys gave out They rushed her to the hospital and the Drs told my cousin and her husband that dyalisis was the only choice. Robin said no, emphaticaly NO. She said she had suffered enough through the years with people staring when she went out in her wheelchair and the constant running to the hospital with every little pain. She cried and told them she was sorry but she could not face anymore of the life she had with D to top it alll. They took her home . Ten days later her friends and family gathered in her room to bid her farewell. Her Mother leaned down to her ear for she had stopped responding and said "Robin you have been the dearest thing to my heart. It has been my privaledge to have you with me these 26 years. Go cheerfully to your home with Jesus Chirst and I will join you in a short while. She lifted her head and tears were running down Robin's cheeks. A sign that tho she coldn't respond she could cry. About 10 minutes later the nurse told everyone she was gone. She was 28 years old.
So you see Tom how reading your posts about Sharon brought forth the memories and the triumph of Robin. Off times it is better to let go of life and go home to our Fathers house.
My heart is breaking for you and your family and I know Sharon is happy and out of pain.
Mimi
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
billybags
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Re: Sharon has made the BIG decision
«
Reply #67 on:
September 28, 2010, 01:43:21 AM »
Tom, you and your family are in my thoughts, the pain is now over for Sharon, yours is just beginning, try to stay strong, remember the good times you had together.You have been a wonderful husband and carer for your lovely wife. You now need a little care your self.
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten
Re: Sharon has made the BIG decision
«
Reply #68 on:
September 28, 2010, 03:48:09 AM »
I am writing this through the tears. Goodbyes are always difficult. But I am glad that yours was made a bit easier. What a blessing to pass with your family around you. And those serendipitous things. May the Lord continue to grant you peace.
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"
I LOVE my IHD family!
casper2636
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Re: Sharon has made the BIG decision
«
Reply #69 on:
September 28, 2010, 10:09:58 AM »
I'm a newbie... but my best wishes are with you. God bless
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glitter
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Re: Sharon has made the BIG decision
«
Reply #70 on:
September 28, 2010, 03:45:14 PM »
Tom- I am so sorry for your loss, I did not see this until today. My heart goes out to you, I'm glad it was peaceful, but I know it still sucks. I have no words of consolation, I wish I could say something to help your aching heart, I wish I could help you, I am so sorry.
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER
caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
Jelena
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Re: Sharon has made the BIG decision
«
Reply #71 on:
September 28, 2010, 04:43:25 PM »
I am so sorry for your loss and admire you for your strength. My heart goes out to you. Hang in there.
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Jelena
kristina
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Re: Sharon has made the BIG decision
«
Reply #72 on:
September 29, 2010, 03:25:28 AM »
I am so sorry to read about your tragic loss!
I know it is very hard because you were so very close.
Kristina.
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
He was completion and fulfillment in itself, like a meteor which follows its own path.
- Robert Schumann -
... Oportet Vivere ...
lola
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I can fly!!!
Re: Sharon has made the BIG decision
«
Reply #73 on:
September 29, 2010, 08:16:43 AM »
Tom so sorry
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paul.karen
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Re: Sharon has made the BIG decision
«
Reply #74 on:
September 29, 2010, 12:51:38 PM »
Heaven has a new angel.
You family has a new guardian above.
Godbless to your whole family.
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Curiosity killed the cat
Satisfaction brought it back
Operation for PD placement 7-14-09
Training for cycler 7-28-09
Started home dialysis using Baxter homechoice
8-7-09
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