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Author Topic: With love and gratitude  (Read 23488 times)
paris
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« on: September 07, 2010, 10:30:15 AM »

My dearest friends,  I have so much to say.  This post will be short, but you know I will have lots to say!!  I feel amazing! Labs are good, little pain, and I am still in a little shock.  We all knew this wasn't going to happen.  A week ago today, when my co-ordinator called at 7:45am, I didn't even get excited.  I was number 4 out of 4 hard to match listees to be called in for 1 kidney.  The kidney was a great one with absolutely no markers against any antibodies. The team was amazed at this kidney.  Even during the day, I kept thinking that this was a good practice run and at least I could say I have been called once.  I told the team that it was great just knowing that someone was going home with a new kidney and I kept focusing on the donor's family all day.   So many things kept running through my mind ---- why me?  Why not the 27 yr old who was also called?   In the end, I was the absolutely hardest to match and my blood liked the kidney.  My co-ordinator was stunned and near tears when she told me that it was my kidney.   Everyone around me was in tears-- I was speechless (no comments please!)      Surgery was a breeze -- little problem with blood pressure, but they sorted it out.   Being home is great.  Not much discomfort at all.  I get my labs done about 2 miles from here and then go to Clinic on Thursday.  No time to rest -- too much to do!!!   My family has been overwhelmed and amazed at all the support from IHD.  They read me posts and facebook everyday. Your words made me know how fortunate I am. I was well prepared, informed and knew just what to expect.  Thank you all for your words, your love and your prayers.   What a week it has been.    Nap time!  More later.   Love you all more than you will ever know.    :grouphug;     :grouphug;       :grouphug;      :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Dianejt
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« Reply #1 on: September 07, 2010, 11:15:35 AM »

 :flower; So happy to hear from you Paris. Nite/nite
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caregiver to husband Frank

bladder cancer 1994
renal failure April 2009 due to blocked right ureter. Left kidney 20% function
November 18 2009 surgery to remove right ureter.
April 3, 2010 removal bladder, prostrate, left kidney.
June 11, 2010 started Hemo @ hospital
July 2, 2010 Embolized right Kidney due to hemoraging of tumor
September 11, 2010 RIP my love
Darthvadar
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« Reply #2 on: September 07, 2010, 11:23:05 AM »

Great to see you back, Paris......

Onward and upward!!!!....

God bless...

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
okarol
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« Reply #3 on: September 07, 2010, 11:38:37 AM »

 :clap; It's great to "see" you!
It does seem surreal that last week you were pre-dialysis, and now you're a transplant patient.
Like Meinuk said, no doubt Goofynina had something to do with it, she was always in on everything!
I look forward to your updates, lab numbers and medication list (I love that stuff!)
Take care!  :cheer:
« Last Edit: September 07, 2010, 11:57:08 AM by okarol » Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
del
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del and willowtreewren meet

« Reply #4 on: September 07, 2010, 11:50:47 AM »

So good to see you back and know you are doing well. Miracles do happen!!  Take care of yourself and that little kidney!!
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Don't take your organs to heaven.  Heaven knows we need them here.
monrein
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Might as well smile

« Reply #5 on: September 07, 2010, 11:57:02 AM »

So wonderful to see a thread started by you Paris.  It always was but this one is different and we all know what I mean.  Sending you all my best thoughts.  :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Sluff
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« Reply #6 on: September 07, 2010, 12:05:07 PM »

Ok enough of the mushy stuff... when you coming back to work?....... >:D......  you know Im kidding.
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Jean
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« Reply #7 on: September 07, 2010, 01:33:55 PM »

So happy for you Paris. What a wonderful gift you have received. When you realize what happened, you are really gonna be happy. How great to never make it to dialysis is that!!!!  :cuddle;
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One day at a time, thats all I can do.
Sunny
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Sunny

« Reply #8 on: September 08, 2010, 01:30:32 PM »

Congratulations Paris.
You're our little miracle. High PRA's, failed IVIG treamtment, Hard to match kidney,yet a pre-emptive transplant. You got the miracle match.May you future continue to be as lucky.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
boswife
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us and fam easter 2013

« Reply #9 on: September 08, 2010, 01:58:12 PM »

increadable!!   It was ment to be  :clap;   Im so happy, it surly happened to the right person...  Bless ya :-)
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
MooseMom
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« Reply #10 on: September 08, 2010, 03:18:31 PM »

Paris, I know you are still recovering from the surgery itself, but do you feel like you have a new kidney?  I've heard people say that as soon as the new organ is in place, they feel better almost immediately and come to realize that they never knew just how awful they had been feeling.  Do you feel a noticeable improvement?  Do you physically feel that you have a new lease on life?  I so curious and eager to know!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
lola
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I can fly!!!

« Reply #11 on: September 08, 2010, 03:49:51 PM »

Paris do you know how much HOPE this has given me, I am soooooooo HAPPY for you. I love you 2 pieces!!!! :grouphug; :grouphug; :grouphug;
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Mizar
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« Reply #12 on: September 08, 2010, 04:33:40 PM »

 
 Truly Amazing News!
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paris
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« Reply #13 on: September 08, 2010, 04:50:03 PM »

Lola,  I now know that Otto will get his kidney.  I was pretty much at the end of the "hope road" and I think God wanted to remind me that all things are possible.   I don't know why this happened, but I am grateful. 

Moosemom,  I do feel so much better.  I was throwing up several times a week, not sleeping more than a couple of hours at a time (even with meds) and pretty much just wanted to stay in my house all the time.  Now,I am sleeping like a baby!  I get up to pee a couple of times a night (that is a really good thing!) and go right back to sleep. No tossing and turning.  And I wake up around 7:30 alert. How novel is that!    I think we get so use to feeling crummy we forget what good is suppose to be.  I am still tired, but can easily walk the halls to get my labs done and walk around the house with little discomfort.   I am looking forward to cooler days and walking in my neighborhood.  Haven't done that in years.  The mind fog is fading.  I didn't know what to expect, so I am surprised and excited to feel better. 

And did I already tell you?---- I got to see my kidney!!  Right before they put me under, they asked if I wanted to see my new kidney.  YES!! There it was in a stainless steel bowl with ice.  Just sitting there ready to go to work in me.  How cool is that???   

I have so much to share -- more later!!
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
pelagia
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« Reply #14 on: September 08, 2010, 05:07:46 PM »

Paris, Had to log on to give you a real hug and heartfelt congratulations, IHD style!   :cuddle;  :guitar:  :flower;  :cheer:  :yahoo;  :clap;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Jelena
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« Reply #15 on: September 08, 2010, 05:36:02 PM »

Wow, Paris, that is just beyond wonderful! So glad you are back home and feeling so good!!! Congratulations, so happy for you! :yahoo;
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Jelena
okarol
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« Reply #16 on: September 08, 2010, 06:03:54 PM »

I love reading this good news.  :2thumbsup;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Sluff
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« Reply #17 on: September 08, 2010, 07:08:49 PM »

So glad you are feeling so wonderful.  So when are you going to Paris?   :rofl;
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Bill Peckham
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« Reply #18 on: September 08, 2010, 09:34:53 PM »

Wow - meeting your new kidney. Have I missed it? Is there a name?
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
galvo
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« Reply #19 on: September 08, 2010, 09:37:34 PM »

Onya, Paris :bandance;
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Galvo
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« Reply #20 on: September 08, 2010, 09:37:47 PM »

Glad to hear things are going well for you. I can imagine the shock when you were told it's yours.  How awesome.
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May you live as long as you want and never want as long as you live.
Mimi
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For any who do not like me I use - prayer.

« Reply #21 on: September 09, 2010, 12:02:38 AM »

Liz you are our miracle lady.  It makes my heart and brain so happy
to know you have a working kidney.  I went to my neph today and my kidney numbers went up again from 27 to 30, I almost feel like a miracle myself.  Enjoy yourself giirl you have every right to celebrate.
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
Meinuk
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« Reply #22 on: September 09, 2010, 04:18:10 AM »

Paris, I hope every day is better and better. I'm just incredibly happy whenever I think about you.

I hope that the healing keeps up this pace, and that you have all the energy that you need to plan and have an AMAZING Thanksgiving this year. By then you should be back to the exhausting pace (housekeeping, cooking etc) that you had when you were first diagnosed.  :)

xxx

Anna
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Research Dialysis Units:  http://projects.propublica.org/dialysis/

52 with PKD
deceased donor transplant 11/2/08
nxstage 10/07 - 11/08;  30LS/S; 20LT/W/R  @450
temp. permcath:  inserted 5/07 - removed 7/19/07
in-center hemo:  m/w/f 1/12/07
list: 6/05
a/v fistula: 5/05
NxStage training diary post (10/07):  http://ihatedialysis.com/forum/index.php?topic=5229.0
Newspaper article: Me dialyzing alone:  http://ihatedialysis.com/forum/index.php?topic=7332.0
Transplant post 11/08):  http://ihatedialysis.com/forum/index.php?topic=10893.msg187492#msg187492
Fistula removal post (7/10): http://ihatedialysis.com/forum/index.php?topic=18735.msg324217#msg324217
Post Transplant Skin Cancer (2/14): http://ihatedialysis.com/forum/index.php?topic=30659.msg476547#msg476547

“To doubt everything or to believe everything are two equally convenient solutions; both dispense with the necessity of thought.” - Henri Poincare
Rerun
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Going through life tied to a chair!

« Reply #23 on: September 10, 2010, 08:59:48 AM »

So happy for your Paris.  I would not have needed any anastheisa, I would have fainted seeing my kidney.

No spell check anymore.... sorry!

Rerun
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thegrammalady
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« Reply #24 on: September 10, 2010, 09:07:14 AM »

super kool. glad you're home and everything is going well. still so excited for you i can hardly stand it.  :clap;
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
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