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Author Topic: Frank refused to go to dialysis today  (Read 7743 times)
Dianejt
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« on: September 06, 2010, 07:58:34 AM »
He is very weak now & sleeping all the time. Today we got dressed , in the wheelchair & out to the ramp to go & he refused to go, saying bring me home. I tried getting him to go at least 1 more time before he stops because I'm afraid that with 3 nights of TPN (3 liters) he will have problems breathing, he still refused. I'm so scared that it will be hard on him, the center said they would take him tomorrow if he decides to go. Please keep him in your prayers that his death will be easy as he has suffered so very much already.
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caregiver to husband Frank

bladder cancer 1994
renal failure April 2009 due to blocked right ureter. Left kidney 20% function
November 18 2009 surgery to remove right ureter.
April 3, 2010 removal bladder, prostrate, left kidney.
June 11, 2010 started Hemo @ hospital
July 2, 2010 Embolized right Kidney due to hemoraging of tumor
September 11, 2010 RIP my love
billybags
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« Reply #1 on: September 06, 2010, 08:04:10 AM »
Diane, my heart goes out to you. You will both be in my prayers.
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Darthvadar
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« Reply #2 on: September 06, 2010, 08:30:08 AM »
I am so sorry to hear this, Diane...

I know that Frank is your entire heart and soul....

I'll be thinking of, and praying for you both...

May God bless and protect you both....

Love and hugs...

Darth....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
glitter
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« Reply #3 on: September 06, 2010, 09:37:20 AM »
I will be thinking of you both- I'm so sorry you have to go through this, I hope its gentle, and peaceful.
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
Poppylicious
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« Reply #4 on: September 06, 2010, 10:46:48 AM »
Many, many *huggles*.  Thinking of you both.
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
lola
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I can fly!!!
« Reply #5 on: September 06, 2010, 11:19:14 AM »
I am so sorry, and am keeping you both in my prayers and sending you bunches of  :grouphug; :grouphug;
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www.caringbridge.org/visit/ottomachado
kellyt
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« Reply #6 on: September 06, 2010, 11:40:05 AM »
I'm sorry you are having to go through this.  I'm sorry Frank is having to go through this.  Both of you will be in my thoughts.  Keep us informed.   :cuddle;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Meinuk
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« Reply #7 on: September 06, 2010, 12:09:55 PM »
I am so sorry for what you are both going through right now.  You are in my thoughts and prayers. I hope that you both find strength and peace with this.

 :grouphug;
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Research Dialysis Units:  http://projects.propublica.org/dialysis/

52 with PKD
deceased donor transplant 11/2/08
nxstage 10/07 - 11/08;  30LS/S; 20LT/W/R  @450
temp. permcath:  inserted 5/07 - removed 7/19/07
in-center hemo:  m/w/f 1/12/07
list: 6/05
a/v fistula: 5/05
NxStage training diary post (10/07):  http://ihatedialysis.com/forum/index.php?topic=5229.0
Newspaper article: Me dialyzing alone:  http://ihatedialysis.com/forum/index.php?topic=7332.0
Transplant post 11/08):  http://ihatedialysis.com/forum/index.php?topic=10893.msg187492#msg187492
Fistula removal post (7/10): http://ihatedialysis.com/forum/index.php?topic=18735.msg324217#msg324217
Post Transplant Skin Cancer (2/14): http://ihatedialysis.com/forum/index.php?topic=30659.msg476547#msg476547

“To doubt everything or to believe everything are two equally convenient solutions; both dispense with the necessity of thought.” - Henri Poincare
monrein
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Might as well smile
« Reply #8 on: September 06, 2010, 12:26:46 PM »
Thinking of you both and your family too.   :grouphug; :cuddle; :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
okarol
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« Reply #9 on: September 06, 2010, 01:28:44 PM »

I don't want him to suffer any more. I know you will take the very best care of him. Sending you love and best wishes.  :grouphug; :grouphug; :grouphug;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
cariad
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« Reply #10 on: September 06, 2010, 03:53:15 PM »
Oh, Diane. My heart breaks for you. You both are in my thoughts.  :grouphug; :grouphug; :grouphug;
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
jbeany
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Cattitude
« Reply #11 on: September 06, 2010, 06:30:42 PM »
 :grouphug;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
mikey07840
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Her royal highness Queen Ruth on her throne, RIP
« Reply #12 on: September 06, 2010, 06:59:46 PM »
 :grouphug;
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
Marina
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God Bless my donor family!! :)
« Reply #13 on: September 06, 2010, 07:43:30 PM »
((((((((((((((((((Diane))))))))))))))))))))))))))  :grouphug;
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"Anything is possible, if  you  BELIEVE....."  ~~~Joel  Osteen

"Yesterday is history, Tomorrow is a mystery, Today is a gift..... That is why it is called the present"

*************************************************
 Nov 1979 ~ Diabetes 
Apr. 2004- Nov 2010 ~ CAPD
Nov 9, 2010 ~  Received the  THE  GIFT OF LIFE at 
California Pacific  Medical  center  (CPMC)  in San  Francisco,  CA
boswife
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us and fam easter 2013
« Reply #14 on: September 06, 2010, 07:55:15 PM »
I hurt for you Dianne.  My prayers are for comfort and a kind passing..  May God comfort you both and hold you in His arms..  with love, jill
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
glitter
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« Reply #15 on: September 06, 2010, 08:58:09 PM »
you have been in my thoughts all day and will continue to be- my heart is breaking for you both- I wish you peace and dignity, I wish I could comfort you both, but I know words don't mean much right now. Peace to you both. :grouphug; :grouphug; :grouphug;
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
galvo
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« Reply #16 on: September 06, 2010, 09:56:47 PM »
You are both in my thoughts.
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Galvo
silverhead
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« Reply #17 on: September 06, 2010, 10:39:29 PM »
Dianne, we send our love.......
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Do not argue with an idiot. He will drag you down to his level and beat you with experience.
RichardMEL
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« Reply #18 on: September 07, 2010, 01:25:38 AM »
Such a difficult time. I really have no words, but many thoughts of support.
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
MooseMom
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« Reply #19 on: September 07, 2010, 01:26:09 AM »
All of this pointless suffering for two people who deserve so much better.  It makes me so very very angry that I could just spit.  I wish I had something more gracefully soothing to say, but I am angry at God and the world for making you two go through so much for no reason whatsoever.    I am sorry...I wish I had kinder words.  I wish I could say that I would pray for you, but I'm not speaking to God right now...
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
del
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del and willowtreewren meet
« Reply #20 on: September 07, 2010, 04:48:17 AM »
 :grouphug;
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Don't take your organs to heaven.  Heaven knows we need them here.
carol1987
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« Reply #21 on: September 07, 2010, 07:16:32 AM »
I am so sorry... praying for strength, peace and comfort for you  and your husband..... :grouphug;
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Diagnosed with  PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was  "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
Mizar
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« Reply #22 on: September 07, 2010, 08:27:10 AM »

 Dear Diane, Frank, Yourself and Your entire Family Unit, are in My Prayers and Thoughts.  What a difficult, Road, you are Walking Today.
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #23 on: September 07, 2010, 11:58:05 AM »
 :grouphug; Thinking of you...
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Jean
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« Reply #24 on: September 07, 2010, 01:37:00 PM »
So sorry Diane. I hope everything is peaceful for you and will continue to pray for both of you. God Bless you both.
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One day at a time, thats all I can do.
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