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Author Topic: HI to all at I Hate Dialysis.com  (Read 5264 times)
ScottieX
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« on: December 10, 2006, 01:43:37 PM »
Hi there, and good morning from my part of the world.

I am a 34 year old male who has been on dialysis, and waiting for a kidney transplant for 7 years. I live in Canberra, the capital city of Australia.  The love of my life is a small dog named Maxxie, and I have 7 fish - guppies, as yet unnamed.

My kidney's failed as a reslut of IgA Nephropathy, which I discovered I had at the age of 13. Then, right about this time in 1999, my kidney's failed. Before then I had a fantastic and busy life, and a great job which I enjoyed a lot. Little did I know what was ahead of me!

I spent the first 12 months of dialysis on PD.  That' how long it took my medical advisers to realise it was not working - that my membrane was not up to the task.  They were dark days, and of course meant that I had to give up work, and suffer all the financial indignities which go with that.

I changed to haemodialysis, on which I am now relaitvely stable after 6 years.  Although there were many up's and down's!

I now dialyse three times a week at a 'satellite' haemodialysis clinic. I am hoping in the New Year though to move house, and to arrange to have a machine at home. I am back at work (full-time).  I am a policy officer for a health consumer organisation, the peak health consumer organisation in Australia.  Ironically, health policy was my area of expertise even before my kidney's failed.  It was a revelation in many respects to go from policy person to patient, but I now feel it has added an element to the professional me which many of my colleagues will never have.

This is a great idea, and I look forward to posting and to reading others' posts.

Cheers,
ScottieX
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Yours in hating dialysis,
ScottieX
goofynina
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He is the love of my life......
« Reply #1 on: December 10, 2006, 02:02:40 PM »
Hi Scotty and Welcome to our awesome website/support group. Awesome introduction my friend.  You have come to the right place.  Here you have a great group of friends all willing and ready to answer any questions you may have and to listen to anything you have to say, whether it be a rant or a joke or just anything you want to share.  If there is something in particular you need to know and cant seem to find, just ask, we are always willing to help you and if you have any questions, comments or concerns of your own, please dont hesitate to post them.  Look forward to hearing more from you... :2thumbsup;

Goofynina/Admin
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
sandman
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« Reply #2 on: December 10, 2006, 02:18:23 PM »
 :welcomesign; to IHD Scottie.
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charee
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« Reply #3 on: December 10, 2006, 03:27:30 PM »
:welcomesign; from another Aussie , you have found a great site.
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
jbeany
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Cattitude
« Reply #4 on: December 10, 2006, 04:35:45 PM »
Welcome to board!
 :welcomesign;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
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« Reply #5 on: December 10, 2006, 05:34:20 PM »
Welcome to IHD Scotty it's good to have you here.
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gizmar
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« Reply #6 on: December 10, 2006, 09:03:50 PM »
Welcome Scotty - now look at all the new friends you've made. 
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angieskidney
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« Reply #7 on: December 11, 2006, 06:15:29 AM »
Quote from: ScottieX on December 10, 2006, 01:43:37 PM
I now dialyse three times a week at a 'satellite' haemodialysis clinic.

So do I! My taxi cab drivers don't realize that it has nothing to do with Satelite dishes lol

Welcome to IHD! :welcomesign;
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FREE Donor List for all Kidney Patients!

diagnosed ESRD 1982
PD 2/90 - 4/90, 5/02 - 6/05
Transplant 4/11/90
Hemo 7/05-present (Inclinic Fres. 2008k 3x/wk MWF)
nextnoel
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« Reply #8 on: December 11, 2006, 06:22:00 AM »
 :welcomesign; Welcome to IHD - I look forward to hearing more from you; very interesting first post.
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I can't reach the hill like I used to, but I'm not at a standstill yet!
Joe Paul
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« Reply #9 on: December 11, 2006, 01:59:32 PM »
Welcome Scottie, good to have you aboard.
« Last Edit: December 16, 2006, 04:41:00 AM by Joe Paul » Logged
"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Zach
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"Still crazy after all these years."
« Reply #10 on: December 11, 2006, 08:44:52 PM »
Welcome to the community.  Looking forward to your posts!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #11 on: December 12, 2006, 03:28:27 AM »
Welcome to our community.  This is just the place for you.  We have lots to offer here, and I see you have much to offer us too.  So, let's hear some more from you.  We are soon going to have to have an Aussie section - we have a goodly group here.  Well, one thing is that I share a Queen with you - I am from Barbados and live in the British Virgin Islands.
Welcome again.
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
angieskidney
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« Reply #12 on: December 12, 2006, 04:39:08 AM »
Quote from: bajanne2000 on December 12, 2006, 03:28:27 AM
Welcome to our community.  This is just the place for you.  We have lots to offer here, and I see you have much to offer us too.  So, let's hear some more from you.  We are soon going to have to have an Aussie section - we have a goodly group here.  Well, one thing is that I share a Queen with you - I am from Barbados and live in the British Virgin Islands.
Welcome again.
[OT] will there be a Canadian section too? :P [/OT]
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FREE Donor List for all Kidney Patients!

diagnosed ESRD 1982
PD 2/90 - 4/90, 5/02 - 6/05
Transplant 4/11/90
Hemo 7/05-present (Inclinic Fres. 2008k 3x/wk MWF)
mallory
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« Reply #13 on: December 12, 2006, 10:25:44 AM »
Welcome, ScottieX!  Good first post, looking forward to hearing more from you!  :welcomesign;
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Sometimes the light’s all shinin’ on me;
Other times I can barely see.
Lately it occurs to me what a long, strange trip it’s been.
                                  - Jerry Garcia
Epoman
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« Reply #14 on: December 12, 2006, 10:41:10 AM »
Quote from: angieskidney on December 12, 2006, 04:39:08 AM
Quote from: bajanne2000 on December 12, 2006, 03:28:27 AM
Welcome to our community.  This is just the place for you.  We have lots to offer here, and I see you have much to offer us too.  So, let's hear some more from you.  We are soon going to have to have an Aussie section - we have a goodly group here.  Well, one thing is that I share a Queen with you - I am from Barbados and live in the British Virgin Islands.
Welcome again.
[OT] will there be a Canadian section too? :P [/OT]

She doesn't mean it LITERALLY, Angie. She just means we have a lot of Aussies enough to fill a "section" like in a stadium.  ::)
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- Epoman
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13+ Years In-Center Hemo-Dialysis. (NO Transplant)
Current NxStage & PureFlow User.

Please help us advertise, post our link to other dialysis message boards. You
angieskidney
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« Reply #15 on: December 12, 2006, 10:49:11 AM »
I was being a smart ass Epoman.  But thanks for clarifying! I actually think it would be cool tho .. :P



Hi ScottieX! What is behind your name anyway?
« Last Edit: December 12, 2006, 12:46:56 PM by angieskidney » Logged
FREE Donor List for all Kidney Patients!

diagnosed ESRD 1982
PD 2/90 - 4/90, 5/02 - 6/05
Transplant 4/11/90
Hemo 7/05-present (Inclinic Fres. 2008k 3x/wk MWF)
AlasdairUK
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« Reply #16 on: December 12, 2006, 12:54:38 PM »
 :welcomesign; :welcomesign;

Just in case you did not get it the first time.
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94 - PD for 3 months
94 - HD Permcath for 3 months
95 - RLD Transplant 10 years
2005 - HD Permcath 6 months
2006 - 2008 HDF Fistula
2008 - 2nd Transplant
anja
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« Reply #17 on: December 12, 2006, 09:47:50 PM »
 :welcomesign;  ScottieX-  Glad you  joined us here.
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sugapea
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« Reply #18 on: December 13, 2006, 05:49:42 AM »
Hi Scottie,
   Hello from Boston MA.  I visited Australia in 2003, have to say it was one of the best 2 weeks of my life.   
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #19 on: December 13, 2006, 08:34:13 AM »
 :waving;  Hi Scottie -- Nice you could join IHD -welcome!
 :waving;  How much longer do you anticipate until you get a transplant?


Karol
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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