What next?

[KICKSTART]

Well i went on monday for what i thought was to finally get some treatment for my COPD. I had the tests done in May ! As you know its interfering with my dialysis, i cough constantly and its making the tunnel line in my neck hurt , plus i start throwing up from all the coughing and all i get is lecture after lecture off the staff because i have to come off early (eg half hour or so early) because im hurting so much. Anyway  when i finally got to see the doctor (2 hour clinic start delay) he decided it isnt COPD and wants more tests and a scan . So back to square one , no treatment , mad nurses and feel like crap because i cant remember the last time i had a full nights sleep because of all the coughing.

[greg10]

I am sorry to hear that.  I am a total newbie caregiver, just here trying to learn, so I won't be much help.  Anyway I looked up some of the acronyms and this paper may be of some use:
"Continuous ambulatory peritoneal dialysis (CAPD ) may not be tolerated by patients with chronic obstructive pulmonary disease (COPD) because of increased abdominal pressure in the standing position after instillation ofperitonealfluid, We report, here, a patient with COPD who had marked distress while on CAPD but was more comfortable with supine intermittent peritoneal dialysis."

http://www.advancesinpd.com/adv94/27low94.html

[KICKSTART]

While i appreciate you posting , i dont understand why you are referring to CAPD?  I am on Hemo !  I did do CAPD for 6 years though without any problems ! and as i said they now dont think its COPD but something else ..thanks anyway 

[Jean]

I know this is probably a really stupid question, but, have you ever tried having a cough drop in your mouth while you sleep? I do that often, and itjust kind of sticks to the inside of your cheek. Of course, if you drool, it could become sticky.

[KICKSTART]

Sorry Jean but its not the sort of thing a cough drop will ease. They have a feeling its either something to do with my lungs ..hence the scan or to do with oxygen being carried round my body.

[paris]

I hate waiting for doctors and hospitals.  Just do the tests now and make you feel better!   You must be miserable right now.  I am so sorry.  You deserve a huge break.    When will they do the scan?  Keep us updated.  You know I worry!!   

[natnnnat]

Gah!!!!!    This sucks!  I'm coughing like a smoker all the time at present too, can't laugh or I cough, woke up this morning coughing, but that's just asthma.  They tell me.  But it hurts, and I don't have a catheter. 

[Riki]

I've been coughing a lot too lately. even my mom has noticed.  I don't think it's anything serious, though.. This may be TMI for some, but my nose runs a lot, so I"m thinking it's just post nasal drip that I'm trying to cough up